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In This Issue
Upcoming Events
Article: Explosive Facts About Sugar Substitutes!
Featured Article: How to Exercise with Chronic Pain
August Meeting
August Webinar
August Social Events
Article: 7 Keys to Savvy Traveling with Fibromyalgia
July Recordings Available
Join our Private Web Group
Join Our Mailing List
Upcoming Events
Saturday, August 11th from 12-1:00 PM   Walk in George Rogers Park; Social
Monday, August 13th from 6:30-8:00 PM (PDT): Lyme Disease Presentation and Q&A; Webinar

Saturday, August 18th from 1-4:30 PM: 

Wednesday, August 29th from 1-3:00 PM:  Social Get-Together at Gustav's Restaurant; Social

Every Thursday from 7-8 PM (PDT): "Chat" Night on Ning!



Explosive Facts About Sugar Substitutes!  A Sweet Delight or Toxic Poison?
     

These 'disease' syndromes are commonly misdiagnosed because aspartame symptoms mock textbook 'disease' symptoms.  Aspartame may trigger, mimic, or cause the following illnesses:  Chronic Fatigue Syndrome, Epstein-Barr, Post-Polio Syndrome, Lyme Disease, Grave's Disease, Meniere's Disease, ALS, Epilepsy, Multiple Sclerosis (MS), EMS, Hypothyroidism, Fibromyalgia, Lupus, non-Hodgkin's Lymphoma, Attention Deficit Disorder (ADD).

How to Exercise with Chronic Pain

It is almost across-the-board true that exercise has a positive impact on chronic pain.  The trick is in starting low and going slow versus rushing headlong into a full workout that serves to flare your symptoms.


The source of your chronic pain will, to some extent, decide the exercise that is best for you.  Many people think that they can't exercise with back pain.  This iscategorically untrue.  We even start people on exercise the day after back surgery," says Maria Mepham, a physical therapist at the Cleveland Clinic.  Examples of appropriate exercise for back pain would be yoga or exercises in water (swimming, water aerobics).  The same would be true for joint pain, such as knee or hip pain.

 

The following text is written about fibromyalgia and chronic fatigue syndrome, but can also apply to other chronic pain conditions.  It is a way to start slowly and monitor yourself so that you don't overdo or increase your exercise intensity or length too quickly.


Quick Links


Meet Your Group Leaders


Our Sponsors
 
The Frida Center

Tami Stackelhouse, Fibromyalgia Coach

Portland Time Fairy

Pain Ninja, Tamara Staples




The Thriving Fibromite
AUGUST 2012
Greetings!   
 
Looks like we are finally going to experience some summer weather here in Oregon!  Remember to stay hydrated and not to overdo when you are out in the heat.     
 
PS... Think of one person with fibromyalgia or ME/CFS who has told you, "I wish there was some support for people like us!" and  to him/her.

 

An Introduction to Naturopathic Medicine and NCNM

Saturday, August 18th 1-4:30 PM

 

Dr. Brittany Kolluru from the National College of Natural Medicine will speak about affordable appointments and procedures available at the college that can be helpful to our membership.  She will explain who staffs the clinic at the college and how appointments there are handled.

 

Dr. Kolluru will also talk about the differences between Naturopathic Physicians and Medical Doctors.  She will explain the training that a Naturopathic Physician completes and how their philosophy differs from that of Medical Doctors.

 

Don't forget that the clinic is offering a summer special through September.

  • $50 for new patients
  • $25 for returning patients
  • Special pricing for hydrotherapy and group acupuncture
Call them for an appointment: 503.552.1551 

3025 SW Corbett Avenue
Portland, OR  97201
Located at the west end of the Ross Island Bridge.

  

 

To read Brittany Kolluru's bio,  click here.

To RSVP on Facebook,  click here.

To RSVP on Ning, click here.

 

 

Webinar: Q&A About Lyme Disease
Lyme DiseaseMonday, August 13th 6:30-8:00 PM (PDT)

 

What do you know about Lyme Disease? Have you ever wondered if you might be infected?  Do we have Lyme Disease here in Oregon? 

 

Lyme disease is an infection caused by a spirochete (say "SPY-ROH-KEET") that humans can get from the bite of an infected deer tick. The spirochete's scientific name is Borrelia burgdorferi. Lyme disease is called "The Great Imitator" because its symptoms mimic many other diseases. In fact, the symptom list could just as easily be fibromyalgia and ME/CFS!  It can affect any organ of the body, including the brain and nervous system, muscles and joints, and the heart.

 

Lyme disease has been found on every continent except Antarctica. It is found all across the United States, with a particularly high incidence in the east, midwest, and west coast. It seems to be spreading.

 

In August, Trish McCleary, survivor and now advocate of Chronic Lyme disease will speak to us about what Lyme Disease is, how it is contracted, diagnosed and treated.

 

To read Trish McCleary's bio, click here.

To read more and RSVP, click here.

 

  

Social Events in August

Walk in the Park

Saturday, August 11th 12-1:00 PM

 

Come join us for a walk in George Rogers Park in Lake Oswego. 

 

George Rogers Park is Lake Oswego's first community park and one of its most diverse. Situated on the Willamette River, the park is the site of significant Native American activity over 10,000 years ago, as well as the center of Lake Oswego's industrial iron history. The park is 26 acres and contains athletic fields, tennis courts, children's playground, picnicing, riverfront access, walking trails, and a large natural area. Of particular interest to history buffs is the "Iron Furnace", which is listed on the National Historic register and one of the few reminders of Lake Oswego's industrial past. One of the best views of the Willamette River can be found near the furnace in the lower park.

 

Directions
George Rogers Park
611 S. State Street
Lake OswegoOR
See map: Google Maps

 

 

Social Get-Together
Portland Fibromyalgia-ME/CFS Group RibbonWednesday, August 29th 1-3:00 PM

 

Come join us for some fun social time at Gustav's Restaurant in Tigard!

 

They do have a gluten-free menu and if you are in the mood, they even have gluten-free beer. 

 

The restaurant is located at 10350 SW Greenburg Road, Tigard.

Google Maps

 

 

Read more about these events or register here

7 Keys to Savvy Traveling with Fibromyalgia

  

Tami Stackelhouse, 7 Keys to Savvy Traveling with Fibromyalgia

In a prior lifetime, I used to travel quite a lot. So much, in fact, that I had elite airline status. That's over 50,000 miles trapped in an airplane, plus all the time on the ground trapped in a hotel. Some of that travel happened while my fibromyalgia was developing.

 

With all that traveling, I learned some tricks to make it a lot less painful and more enjoyable. Some of these things cost money. If they help you enjoy your trip-and survive it with grace-I suggest including them as part of your trip budget. Other items simply require a little more planning.

 

There's over 50 individual tips here, so pick and choose the ones that make the best sense for you!

 

Cont. Reading...

 

 

 

July Recordings Available

Practical Tips for Managing Your Energy with Fibromyalgia

 

In July, our co-leader and Fibromyalgia Health Coach, Tami Stackelhouse, provided practical, everyday tips to help us better manage our energy.

 

She shared the tools that she used to manage her life, energy and illness to help her overcome most of the symptoms of fibromyalgia. This includes incorporating periods of rest and activity as well as learning your body's own rhythm and how best to work with it.

 

Tami taught us about scheduling, working effectively with our calendars and how to protect our healing time. This means learning to say "no" when we need to and also asking for help when the situation calls for it.

 

Practical Tips Video Recording

 

 

Q&A About Medical Marijuana Medical Marijuana

 

Have you thought about using Medical Marijuana? Maybe you have questions about how to get your card or where to get marijuana once you have your card.


In 1972, the US Congress placed marijuana in Schedule I of the Controlled Substances Act because they considered it to have "no accepted medical use." Since then, 16 of 50 US states and DC have legalized the medical use of marijuana.

Proponents of medical marijuana argue that it can be a safe and effective treatment for the symptoms of cancer, AIDS, multiple sclerosis, pain, glaucoma, epilepsy, and other conditions. They cite dozens of peer-reviewed studies, prominent medical organizations, major government reports, and the use of marijuana as medicine throughout world history.

This was a practical discussion by patients who have been through the process.

    

Medical Marijuana Audio Recording

 

Join our private web group here...

 

Portland Fibromyalgia-ME/CFS Group Ribbon
Join our Private Web Group

The Portland Area Fibromyalgia - ME/CFS Group provides a support system and social network for those dealing with fibromyalgia, chronic fatigue syndrome and other chronic illness and pain conditions. Our primary purpose is to encourage each other in thriving despite our illnesses.

By joining our private group, you'll have access to:
  • Videos of our monthly group meetings featuring knowledgable speakers on various aspects of coping with and healing from chronic illness.
  • Audio recordings of our monthly webinars featuring authors, doctors, naturopaths and other experts on fibromyalgia and ME/CFS from around the country. 
  • A compassionate online community where we share our stories and offer one another support.
  • A library of articles on fibromyalgia and ME/CFS.

There are no membership dues and it is free to join. We hope that you will find exactly what you need in our group and look forward to meeting you!

 

Join the Portland Fibromyalgia-ME/CFS Group...

 

 

Thanks for reading our March 2012 issue! We'd love your feedback on what you thought.

 

It would really help us if you would:

  • Think of one person with fibromyalgia or ME/CFS who has told you, "I wish there was some support for people like us!" and  to him/her. 
  • Join our private web support group.

To thriving, not just surviving,

Tamara signature              Tami Signature 

Tamara Staples                                Tami Stackelhouse
tamara@portlandfibrocfs.com            tami@myrestoredhealth.com
(503) 476-9520                                 (971) 832-9322

Group Leader                                   Co-Leader
Portland Fibromyalgia-ME/CFS Group
 
We don't want to merely survive, we want to thrive!