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In This Issue
Upcoming Events
Article: The Spoon Theory
Article: 11 Tips From 11 Years Sick
June Meeting
June Webinar
Article: Fibromyalgia Management Guide for Primary Care Doctors
May Recording Available
Join our Private Web Group
Join Our Mailing List
Upcoming Events
Saturday, June 16th from 1-4:30 PM:   Dr. Wendy Rogers Speaks on Adrenal Health and Sleep; Local Meeting

Saturday, May 19th from 1-4:30 PM: May "Retreat" for the Soul: Self Care; Local Meeting 

Every Thursday from 7-8 PM (PDT): "Chat" Night on Ning!



The Spoon Theory
by Christine Miserandino 

 

My best friend and I were in the diner, talking. As usual, it was very late and we were eating French fries with gravy. Like normal girls our age, we spent a lot of time in the diner while in college, and most of the time we spent talking about boys, music or trivial things, that seemed very important at the time. We never got serious about anything in particular and spent most of our time laughing.

 


As I went to take some of my medicine with a snack as I usually did, she watched me with an awkward kind of stare, instead of continuing the conversation. She then asked me out of the blue what it felt like to have Lupus and be sick. I was shocked not only because she asked the random question, but also because I assumed she knew all there was to know about Lupus. She came to doctors with me, she saw me walk with a cane, and throw up in the bathroom. She had seen me cry in pain, what else was there to know?

 

I started to ramble on about pills, and aches and pains, but she kept pursuing, and didn't seem satisfied with my answers. I was a little surprised as being my roommate in college and friend for years; I thought she already knew the medical definition of Lupus. Then she looked at me with a face every sick person knows well, the face of pure curiosity about something no one healthy can truly understand. She asked what it felt like, not physically, but what it felt like to be me, to be sick.

 

As I tried to gain my composure, I glanced around the table for help or guidance, or at least stall for time to think. I was trying to find the right words. How do I answer a question I never was able to answer for myself? How do I explain every detail of every day being effected, and give the emotions a sick person goes through with clarity. I could have given up, cracked a joke like I usually do, and changed the subject, but I remember thinking if I don't try to explain this, how could I ever expect her to understand. If I can't explain this to my best friend, how could I explain my world to anyone else? I had to at least try.

11 Tips From 11 Years Sick
by Toni Bernhard

A year ago, I posted a piece titled, "10 Tips from 10 Years Sick." Well, a year has gone by and I'm still sick. So, I've re-visited that post, changing some of the tips and adding to others. And, of course, there are now 11 tips, not 10! At the end of the post, I hope you'll share your own experiences.

 

1. The onset of chronic illness or pain is the beginning of a grieving process.

I could have weathered the first three stages of the grieving process-denial, anger, sadness-with a lot more grace had I known that grief is a natural response to a sudden, unexpected change in health. But I didn't know. The onset of chronic painor illness is a major life event. Looking back on what happened to me, now it seems obvious that losing my ability to freely function would trigger denial, anger, and sadness. But it took me many years to understand this and, until I did, I wasn't able to come close to touching that fourth stage of grief: acceptance.
 
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Time Fairy, LLC

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The Thriving Fibromite
JUNE 2012
Greetings!   
 
June has arrived!  Thoughts turn to summer vacations, cookouts and weekend trips to the beach.   
 
We hope you and your family have wonderful plans for a fun summer vacation.
 
PS... Think of one person with fibromyalgia or ME/CFS who has told you, "I wish there was some support for people like us!" and  to him/her.

 

Dr. Wendy Rogers Speaks on Adrenal Health and Sleep

Saturday, June 16th 1-4:30 PM

 

 

Dr. Wendy Rogers, Naturopathic Physician is back by popular demand to speak to us on adrenal health.  She will particularly be addressing adrenals and sleep.

  

For various reasons that Dr. Rogers will explain, our adrenal glands can become fatigued and not work the way they are supposed to.  Our circadian rhythm can become confused causing our adrenals to pump out cortisol at the wrong times of the day.  When cortisol is released during the nighttime, it will keep you from getting good quality sleep.  This can a lot of times be paired with not enough cortisol in the mornings, which leaves you feeling exhausted and not ready to start your day. 

 

A simple saliva test can show your cortisol levels throughout the day.  Dr. Rogers will discuss what can be done to heal your adrenals and bring your cortisol levels back into balance.  

 

Please join us for this important topic that affects so many of us! 

 

 

To read Dr. Rogers' bio, click here.

To RSVP on Facebook, click here.

To RSVP on Ning, click here.

 
Webinar: Q&A About Medical Marijuana
Medical MarijuanaDate to be determined - email invitation will be sent 

 

Have you thought about using Medical Marijuana?  Maybe you have questions about how to get your card or where to get marijuana once you have your card.  


In 1972, the US Congress placed marijuana in Schedule I of the Controlled Substances Act because they considered it to have "no accepted medical use." Since then, 16 of 50 US states and DC have legalized the medical use of marijuana.


Proponents of medical marijuana argue that it can be a safe and effective treatment for the symptoms of cancer, AIDS, multiple sclerosis, pain, glaucoma, epilepsy, and other conditions. They cite dozens of peer-reviewed studies, prominent medical organizations, major government reports, and the use of marijuana as medicine throughout world history.


Come join the discussion in a completely anonymous environment.  Get your questions answered by patients who have gone through the process.  


This is going to be a practical discussion not a theoretical or political one.  This webinar is for patients who have questions regarding how medical marijuana will help them.  This is not the place to discuss the pros and cons.    

New Free-Access Fibromyalgia Management Guide for Primary Care Doctors, Online Now

  

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Four fibromyalgia specialists - Lesley M ArnoldDaniel J ClauwL Jean Dunegan, and Dennis C Turk - have developed an educational framework that primary care doctors can use as a guide to best practices in fibromyalgia case management.

 

Cont. Reading...

 

Get Guide...   

 

 

 

Portland FibroCFS May Retreat
May Recording Available

May "Retreat" for the Soul: Self-Care

 

The retreat brought together three energy enhancing activities that helped us replenish our supply of spoons and recharge our batteries.

 

First, Maria Pfeiffer from "My Life Works Today" facilitated our experiencing "Wellness Discovery: Storytelling Through Images" where we utilized images in a brief collage exercise that tapped into our intuition.

 

Our second activity helped us find the flexibility and balance we need so that we don't injure ourselves in a fall.  Elisa Lochridge from "Your Fit Goal" showed us some very gentle exercises we could do at home to improve our balance.  

 

The third and final self care activity was gratitude journaling with Sheri Joi from "Find Your Kumu."  Sheri Joi showed us how to harness the power of gratitude to create the life we want.  We also explored taking our gratitude from ordinary to extraordinary!

 

May "Retreat" for the Soul: Self Care Video Recording Part 1 

May "Retreat" for the Soul: Self-Care Video Recording Part 2

 

 

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Join our Private Web Group

The Portland Area Fibromyalgia - ME/CFS Group provides a support system and social network for those dealing with fibromyalgia, chronic fatigue syndrome and other chronic illness and pain conditions. Our primary purpose is to encourage each other in thriving despite our illnesses.

By joining our private group, you'll have access to:
  • Videos of our monthly group meetings featuring knowledgable speakers on various aspects of coping with and healing from chronic illness.
  • Audio recordings of our monthly webinars featuring authors, doctors, naturopaths and other experts on fibromyalgia and ME/CFS from around the country. 
  • A compassionate online community where we share our stories and offer one another support.
  • A library of articles on fibromyalgia and ME/CFS.

There are no membership dues and it is free to join. We hope that you will find exactly what you need in our group and look forward to meeting you!

 

Join the Portland Fibromyalgia-ME/CFS Group...

 

 

Thanks for reading our March 2012 issue! We'd love your feedback on what you thought.

 

It would really help us if you would:

  • Think of one person with fibromyalgia or ME/CFS who has told you, "I wish there was some support for people like us!" and  to him/her. 
  • Join our private web support group.

To thriving, not just surviving,

Tamara signature              Tami Signature 

Tamara Staples                                Tami Stackelhouse
tamara@portlandfibrocfs.com            tami@myrestoredhealth.com
(503) 476-9520                                 (971) 832-9322

Group Leader                                   Co-Leader
Portland Fibromyalgia-ME/CFS Group
 
We don't want to merely survive, we want to thrive!