Portland Fibromyalgia - ME/CFS Group Logo
In This Issue
Upcoming Events
The Studio at The Frida Center has "Punch Cards!"
Special Resource: Healing Companion Journal
March Webinar
March Meeting
"Secret" Facebook Group
February Recordings Available
Join our Private Web Group
Join Our Mailing List
Upcoming Events
Monday, Mar 12th from 6-7:30 PM (PDT): Dr. Melissa Congdon Talks About the Guaifenesin Protocol for Fibromyalgia; Webinar

Saturday, Mar 17th from 1-4 PM:  Gluten-Free/Allergen-Free Roundtable; Local Meeting

Every Thursday 7-8 PM (PDT): "Chat" Night on Ning!



Sponsor News
The Frida Center
The Studio has "Punch Cards!"

Did you know that you'll receive a discount 

on ALL of our programs in The Studio just by registering online? It's true! You can even purchase sessions of a particular class or course without actually registering for a particular date - and still get the discount.

 

Our system works like a virtual punch card: your purchased sessions are stored in your profile until you're ready to use them - for up to a full year. Learn More...

 


 

Special Resource
 
Healing Companion Journal 
One of our group leaders, Tamara Staples, has developed a Healing Companion Journal to help those of us with chronic illness track our symptoms.

 

Tamara originally developed this to help her with her own conditions, but is sharing it with everyone who would like it. You can access the journal here.


 
Quick Links


Our Sponsors
 
The Frida Center

Tami Stackelhouse, Fibromyalgia Coach

Time Fairy, LLC

Creating Healthy Families, LLC


Portland Fibromyalgia-ME/CFS Group Ribbon
The Thriving Fibromite
MARCH 2012
Greetings!   
 
Don't forget! We're now meeting at The Frida Center for Fibromyalgia in their studio. We had our first two meetings there and the space is wonderful! There is plenty of parking and the studio is a really great space with cork floors. You may want to bring a blanket and pillows and sit on the floor. The Frida Center has some great directions and a map on their website here.

PS... Think of one person with fibromyalgia or ME/CFS who has told you, "I wish there was some support for people like us!" and  to him/her.

 

Webinar: Dr. Melissa Congdon Talks About the Guaifenesin Protocol for Fibromyalgia

THIS MONDAY, March 12th

6-7:30 PM (PDT) 

 

Register here to attend!

 

Would you like to try a new way to feel better?


The guaifenesin protocol is a fibromyalgia treatment pioneered by fibromyalgia specialist Dr. Paul St. Amand. There is no medication (yet) that has been shown to make the syndrome disappear, but Dr. St. Amand, an 84 year-old fibromyalgia specialist (who himself has the syndrome and who has been working with fibromyalgia patients for 50 years), may have found a way to reverse the illness.

 

Dr. St. Amand believes that patients with FM are probably missing an enzyme needed by the kidneys to effectively remove excess phosphate from the body. Phosphate is an inorganic chemical that is constantly being produced in our bodies, and is necessary for energy production. When levels in the bloodstream get too high, the kidney cannot decrease the level due to the defective enzyme, and the phosphate (along with calcium and water) is deposited in "nodules" throughout the body. This overload of phosphate in the body, and in the nodules, is what is believed to cause the symptoms of the illness. Since phosphate overload can occur in the cells throughout our body, this can explain why so many different organs are effected in FM. This is why patients can have irritable bowel syndrome, body pain, and dizziness all within the same illness. And since the right amount of phosphate is crucial to the production of energy, this can explain why FM patients can feel so tired.

 

When treated by Dr. St. Amand, or someone trained by him, the success rate with this protocol is 95%.

 

Dr. St. Amand has also found that 40% of fibromyalgia patients have a tendency towards low blood sugar or carbohydrate intolerance. This is why eating a high-protein, low-carb diet can help you feel so much better.

 

Please join us for an interesting evening as Dr. Congdon talks about and answers your questions about the guaifenesin treatment for fibromyalgia and how keeping your blood sugar stable will help you feel your best.

 

To read Dr. Congdon's bio and register for the FREE webinar, click here!

Gluten-Free/Allergen-Free Roundtable
Dr. Ginevra LiptanSaturday, March 17th, 1-4 PM 

 

 

Have you been diagnosed with gluten intolerance or other food allergies? Or maybe you just have a hunch that you are sensitive to certain foods.

 

Would you like to know how to make living an allergy-free life easier?

 

Join us at our March meeting for a Gluten-Free / Allergy-Free Round Table. We will have several experts on GF/AF living joining us to share their knowledge and personal experience.

 

We know that many of you have been diagnosed with gluten or other allergies, but are struggling in how to successfully live an allergy-free lifestyle. This is your opportunity to bring all of your questions and learn from people who have "been there, done that!" No question is off limits!

 

In fact, if you have someone in your life who is having a hard time understanding why you need to eat the way you do, who maybe thinks that you're being too "picky" about your food, this would be an excellent meeting to bring them to! We will explain it to them for you!  

 

At this meeting, you will learn how to create a safe kitchen environment, how to stand up for yourself when you are not able to eat at home, and will receive some great GF/AF resources and handouts.
 

Portland is a fabulous place to live if you have to have food allergies. Did you know you can get gluten-free fish & chips and gluten-free, vegan chocolate cake here in Portland? It's true!

 
Come join us in March and get the scoop!
 
(Go here to see bios on the panelists)
"Secret" Facebook Group

 

Portland Fibromyalgia-ME/CFS Group RibbonDid you know we have a Facebook group?  If not, you won't be able to find us by searching because we are "secret."  This is Facebook's most private designation for a group.  

 

What is said in the group, stays in the group! 

 

If you are interested in joining, you will need to "friend" either Tami Stackelhouse or Tamara Robison Staples on Facebook. Let us know that you would like an invitation to the Portland Fibro CFS Facebook Group. Unfortunately, it is the only way that Facebook allows the "secret" groups to invite new members. 

 

Once you are in the group, you are welcome to "unfriend" us.  We won't mind. We promise!  

 

Tami on Facebook...

Tamara on Facebook...

 

 

February Recordings Available

Sheri Joi
Sheri Joi
Exploring the Power of Gratitude

 

Gratitude is one of the most powerful tools we have as human beings.  Do you know how to harness this power and use it to create the life you want?

 

Sheri Joi shared with us a very insightful evening of exploring the power of gratitude and how it changed her life.

 

During our February webinar, Sheri taught us the most effective way to use gratitude and what words are the most powerful. She also taught us how to take our gratitude from ordinary to extraordinary.

 

Listen to this webinar and learn how to use this gift that we are all given to transform your life.

 

Exploring the Power of Gratitude Webinar Recording

 
Dr. Liptan Speaks on Pain Management

Ginevra Liptan, MD
Ginevra Liptan, MD
Dr. Ginevra Liptan spoke at our February meeting on, and answering your questions about, pain management.


Do you wonder when you should take your pain medication?  What about how to know when pain is too much and you should go to the emergency room?  What do you tell the doctors once you are in the emergency room?  Have you always secretly wondered about medical marijuana?

 

No topic was off limits in this engaging meeting!

 


In order to access this recording, you do need to be a member of our private web group. Anyone, anywhere can join, membership is free and there are no monthly dues. 

Tami Stackelhouse, our co-leader, has also written two blog posts from the information presented by Dr. Liptan at this meeting. If you'd prefer to read, rather than watch the videos, these are for you! You also do not have to join our web group in order to access them.
Join our private web group here...

 

Portland Fibromyalgia-ME/CFS Group Ribbon
Join our Private Web Group

The Portland Area Fibromyalgia - ME/CFS Group provides a support system and social network for those dealing with fibromyalgia, chronic fatigue syndrome and other chronic illness and pain conditions. Our primary purpose is to encourage each other in thriving despite our illnesses.

By joining our private group, you'll have access to:
  • Videos of our monthly group meetings featuring knowledgable speakers on various aspects of coping with and healing from chronic illness.
  • Audio recordings of our monthly webinars featuring authors, doctors, naturopaths and other experts on fibromyalgia and ME/CFS from around the country. 
  • A compassionate online community where we share our stories and offer one another support.
  • A library of articles on fibromyalgia and ME/CFS.

There are no membership dues and it is free to join. We hope that you will find exactly what you need in our group and look forward to meeting you!

 

Join the Portland Fibromyalgia-ME/CFS Group...

 

 

Thanks for reading our March 2012 issue! We'd love your feedback on what you thought.

 

It would really help us if you would:

  • Think of one person with fibromyalgia or ME/CFS who has told you, "I wish there was some support for people like us!" and  to him/her. 
  • Join our private web support group.

To thriving, not just surviving,

Tamara signature              Tami Signature 

Tamara Staples                                Tami Stackelhouse
tamara@portlandfibrocfs.com            tami@myrestoredhealth.com
(503) 476-9520                                 (971) 832-9322

Group Leader                                   Co-Leader
Portland Fibromyalgia-ME/CFS Group
 
We don't want to merely survive, we want to thrive!