| Sponsor Thank You |  | |
Special thanks to Dr. Liptan, and her center, who have generously agreed to provide us with our meeting space at no charge.
Our first meeting at our new "home" will be our Holiday Potluck Party on Saturday, December 17th from 1-4 PM.
Dr. Liptan is a doctor who truly "gets it" when it comes to fibro because she has it herself. She was joined at her practice in October by Cheryl Hryciw, NP and fibromyalgia specialist from the Fibromyalgia Clinic at OHSU. We highly recommend them both! Cheryl spoke at our meeting last month. You can access the videos from the article below in this email. Dr. Liptan spoke at our June meeting earlier this year on Fascia and It's Role in Fibromyalgia Pain.
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| Survey Results |  | |
Last month we surveyed our group members to find out more about your wants and needs.
Take a look and see the results of the survey.
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Clever Newsletter Title
NOVEMBER 2011 |
Greetings!
Welcome to our first newsletter! We hope this will grow into a great resource for you. This month, we're starting simple.
We are going to be consolidating some of our communications to lighten up your email box by using this newsletter. However, if you ever need to update your email address or unsubscribe, you can always use the link at the bottom of each email.
You may have noticed that we need some help coming up with a title! We'd love it if you could send in your suggestions for a name for our newsletter. Feel free to just reply to this email for sending those in.
PS... Think of one person with fibromyalgia or ME/CFS who has told you, "I wish there was some support for people like us!" and to him/her. |
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Holiday-Related Stress & Self Care
 During our webinar on the 14th of this month, we are going to talk about holiday-related responsibilities and self-care with The Practical Fibromite, Michelle Graas. So many of us have struggles around pacing... Michelle has some wonderful, down-to-earth and easily implemented suggestions for us that are sure to keep our holidays more stress-free. This means fewer flares, less fatigue and more fun. Who wouldn't want that? This will be an enjoyable pre-holiday planning session where Michelle promises to also include some of her favorite holiday recipes and cooking tips. It really is a webinar you don't want to miss. If you can't make the webinar, be sure to join our private web group so that you will have access to the recording after the event!
Read all the details...
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Guilt, Blame, & "Shoulds": The 3 Enemies of Self-Care & Organization
 | | Jennifer Hofmann |
Our speaker on the 19th of this month will be Jennifer Hofmann, from Inspired Home Office.
Being nice to ourselves through kind self-talk and organization that can make our lives run more smoothly are two of the things that Jennifer will teach us in this meeting.
"If you've ever thought you should be more organized and feel guilty because you aren't, take heart," Jennifer says. "This session will explain how guilt, blame, and "shoulds" actually prevent you from being organized and caring for yourself."
Another interesting fact is that ADD has been equated to some extent with aspects of brain fog. So, much of Jennifer's experience with learning to work with ADD could transfer to our working with brain fog.
This really is a meeting you don't want to miss. Jennifer is just one of those lovely people that makes you feel better from just being around her.
If you can't make the meeting, or don't live in the Portland area, be sure to join our private web group so that you can watch the video after the meeting!
Get all the meeting details...
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Recordings from October Meetings Posted
 | | Cheryl Hryciw, The Frida Center |
Cheryl Hryciw, formerly of OHSU Fibromyalgia Clinic (now at The Frida Center) spoke at our October 15th meeting about fibromyalgia, subgroups of fibromites and how to treat them. She also offers a nice breakdown of medications.
Cheryl Hryciw, video part 1
Cheryl Hryciw, video part 2
On October 24th, Dr. Jacob Teitelbaum gave a fantastic webinar for our group on fibromyalgia and ME/CFS. He went over his SHINE protocol (Sleep, Hormones, Infections, Nutrition, and Exercise as able), as well as answered questions from the group.
In order to access these recordings, you do need to be a member of our private web group. Anyone can join, membership is free and there are no monthly dues.
Join our private web group here...
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 Join our Private Web Group
By joining our private group, you'll have access to:
- Videos of our monthly group meetings featuring knowledgable speakers on various aspects of coping with and healing from chronic illness.
- Audio recordings of our monthly webinars featuring authors, doctors, naturopaths and other experts on fibromyalgia and ME/CFS from around the country.
- A compassionate online community where we share our stories and offer one another support.
- A library of articles on fibromyalgia and ME/CFS.
There are no membership dues and it is free to join. We hope that you will find exactly what you need in our group and look forward to meeting you!
Join the Portland Fibromyalgia-ME/CFS Group...
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Thanks for reading our first newsletter issue! We'd love your feedback on what you thought.
It would really help us if you would:
- Think of one person with fibromyalgia or ME/CFS who has told you, "I wish there was some support for people like us!" and to him/her.
- Join our private web support group.
- Help us think of a clever newsletter title!
To thriving, not just surviving,
 
Tamara Staples Tami Stackelhouse
tamara@portlandfibrocfs.com tami@myrestoredhealth.com
(503) 476-9520 (971) 832-9322
Group Leader Co-Leader
Portland Fibromyalgia-ME/CFS Group |
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