Fight CRC
May 2012
Regorafenib pills The Regorafenib Extended Access Program is giving colorectal cancer patients who have exhausted other treatment options new hope.

The drug's manufacturer, Bayer Healthcare, has opened four sites to receive the medicine, based on clinical trials that showed patients who took the drug lived longer than those with a placebo. 

toilet paper

Ask almost anyone after their first colonoscopy, and they'll tell you, "The procedure was nothing, but the prep was awful."

 

Now patients are reporting that combining MiraLAX®, an over-the-counter laxative, with 2 quarts of Gatorade tastes better and is easier to take than the standard 4-quart Golytely colonoscopy preparation. In a randomized clinical trial, almost 100 percent said they would repeat it again, compared to 1 out of 4 who wouldn't take GoLYTELY® in the future.

 

Read more.

H.R. 4120 gains support in Congress
Elderly man worried

If a colonoscopy is supposed to be free under Medicare, it should stay free. 

 

Thirty US representatives agree and have signed on to  H.R. 4120 - Removing Barriers to Colorectal Cancer Screening Act of 2012. The Act would correct an oversight in the current law that requires Medicare patients to pay coinsurance if a polyp is removed during their colonoscopy.
 
Take two minutes to urge your Representative to sign on.   

Your Brain After Chemo
As most colorectal cancer patients will tell you, chemo brain is real. 
 
Researcher Idelle Davidson provides an eye-opening look at the cognitive issues many cancer survivors suffer after chemotherapy treatment. 

Her Q&A with the Cancer Legal Resource Center looks at what legal protections might be available to patients if they can no longer work due to chemo brain. 
Indran and Gov Deal
Dr. Krishnan with Georgia Governor Nathan Deal
Gastroenterologist, colorectal cancer advocate and Fight Colorectal Cancer board member Indran Krishnan,  MD, recently answered questions about screening via an online Q&A session with TalkAboutHealth.com.

Check out his answers to questions like, "What makes a patient high risk?" and "Is there a link between Irritable Bowel Syndrome and colon cancer?"
Isn't that the tie you bought him for Father's Day last year? Are you re-gifting a graduation present?  

 

This year, add more meaning to your gift with a donation to Fight Colorectal Cancer.

 

Do your online shopping through Fight Colorectal Cancer's We-Care.com page. A percentage of your donation will go toward the organization - at no extra cost to you - and make your gift even more special. 

Does the thought of calling your representative make you nauseous? Easily frightened by men in suits?

 

The Advocate Toolbox makes it easy for you to get active and involved.  We've provided a handy video tutorial that outlines the steps to take action. Your fight to help beat this disease starts with just a click.  

kid in trash

Pain patches give patients needed relief, but they can be deadly within reach of children.

 

Used patches can still contain enough fentanyl to seriously hurt a child. Even patches loosely attached to patients can transfer the narcotic to children and babies while you're carrying them. 

 

Protect your little ones and keep your pain meds under wraps with these helpful tips.

 

Please Donate
In This Issue
Monthly patient webinars

"What's New in Colorectal Cancer Research?" with Dr. Axel Grothey, Mayo Clinic

June 20, 2012
8 - 9:30 PM Eastern time 

Register

 

"When You're Out of Options" with Dr. Len Saltz, Memorial Sloan Kettering

July 18, 2012

8 - 9:30 PM Eastern time

Register

  

Missed a webinar, or want to watch one again?  

Inspire logoA stage IV colon cancer patient who is a member of Fight Colorectal Cancer's Inspire online community wanted advice on how soon to start chemo after surgery. Within hours, he received 15 responses from other patients who have been in his shoes. 

 

If you're not part of Inspire, join the online support community for patients, caregivers and survivors today. Meet online Fight CRC moderator Kate Murphy and get support, a virtual hug and answers to your questions from those who know what you're going through.

 

We love sharing good news, especially on Tuesdays when you'll find our weekly GOOD NEWS TUESDAY post on our Facebook page. Did you recently have a cancer-free anniversary? A clean MRI? Finished chemo?

 

Let us know on Facebook at 

www.facebook.com/FightCRC.

                                       
Pat Steer
Pat Steer
Colorectal cancer advocate and guest blogger Pat Steer is a stage IV rectal cancer patient who was diagnosed in 2004.  

 

She stopped active treatment on March 28 and is focused on living the time she has left as well as she can.

 

You can read her story on FightColorectalCancer.org.



In the Spring issue:
  • Call to Action
  • Living with an Ostomy
  • When "Free" Isn't
  • A Living Legacy
  • Make Some Noise

 Download now. 

 

Fight CRC shirt Don't let
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Fight Colorectal Cancer demands a cure for colon and rectal cancer. We educate and support patients and caregivers, push for changes in policy that will increase and improve research, and empower survivors to raise their voices against the status quo.
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