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August 2011
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Celebrate your victories, honor your milestones
Whether you are a patient or a loved one of a patient, your cancer journey has been filled with challenges. So when you have something to celebrate, what better way is there than to throw a bash with the people who supported you?
Fight Colorectal Cancer can help you get started. Sign up online and receive a Survivor Celebration Starter Kit, free of charge. The kit includes everything you need to kick your planning into high gear: party favors, Blue Star of Hope pins, balloons and materials to make your event fun, easy and memorable.
Let's get your party started. Sign up online today.
Leucovorin shortage info now available for download
In response to the ongoing leucovorin shortage crisis, Fight Colorectal Cancer has created a Frequently Asked Questions document for patients.
The Fight CRC Answer Line (1-877-427-2111) has fielded over 100 calls from patients who were told they could not receive leucovorin due to a manufacturing shortage in the United States. Many patients, worried and confused, have had trouble determining their options if faced with this issue.
The FAQ addresses issues such as "What choices do I have if my doctor doesn't have leucovorin?" and "Why is there a leucovorin shortage?". It also directs patients to the Fight CRC online action center, where they can weigh in on the issue with their Members of Congress.
View and download the FAQ.
Programs offer information about Lynch syndrome
Lynch syndrome is an inherited condition that increases your risk for colorectal, endometrial and ovarian cancer. Also known as hereditary nonpolyposis colorectal cancer (HNPCC), Lynch syndrome increases the risk of getting colorectal cancer by 60 – 80 percent. Furthermore, Lynch-related cancers are often diagnosed at a young age, and they progress much more quickly than the usual colorectal cancers.
Two recent programs sought to raise awareness of Lynch syndrome.
- Dr. Henry Lynch, the man who discovered the genetic mutation in question, spoke with Fight Colorectal Cancer's Kate Murphy, who herself is a Lynch syndrome and multiple cancer survivor, in a free patient webinar led by Fight CRC. You can view a recording of the webinar here.
- The Cancer Support Community's "Frankly Speaking About Cancer" internet radio show interviewed Fight CRC advocate and Lynch syndrome survivor Cindy Robinson, along with a certified genetic counselor. You can listen to a recording of the show here.
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