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Recap of Board Meeting Discussion - Aug. 23, 2012 - Plans for 2013
Board meeting TCDRI - August 23, 2012 6PM.
Attendees
Deborah Loncto
Roz Spiller
Jill Roemer
Marian Price
Marion Mattarazzo
John Derderian
Francine Fazio
DeeDee
Roz opened the meeting. PF Changs donated food for our dinner and everyone enjoyed the meal.
Marion M suggested reviewing the Mission Statement to be sure it is still relevant to our goals. A suggestion was made to add "restaurants" to the entities that we will educate about the dietary concerns of Celiacs. She also suggested removing the caps from the third bullet. Francine suggesting adding: "maintaining the website" to the "About us" section of the website. Roz reported that the Website was cyber attacked but has been restored.
Future meetings were discussed, as follows:
- Sept 20. Dr. Schar will speak at St. Peter's Mercy Auditorium. Francine will provide information to Jill for newspaper announcements.
- Oct. 16. if Lacy has not made plans for a young Celiacs program, Marion M. will try to arrange for Renee Tassone to of the Berkshire Celiac group to speak at the Berkshire Bank on Vly Rd. on her dietary recommendations for a healthy gluten free lifestyle.
- Nov 8. Price Chopper is hosting a holiday cooking presentation at their location in Schenectady.
- Dec. 4 Restaurant event at The Pasta Factory - John will seek to arrange and report if OK
- Jan. 29, 2013 (?) Restarant event at Karavalli Latham.
- Feb. possibly Marrottas in Schenectady per the suggestion of Margaret Beaton in an email.. The Board will check on it on Sept. 27
- Mar. 9, 2013 - Bake-Off at St. Peter's with prizes.
- In April we will seek to schedule a Restaurant Night similar to the Food Fair at St. Peter's. Exact date to be determined. John will contact restaurants. Seek 5-6 restaurants.
- We will determine whether we can schedule a family picnic in a local park in May or June.
Marian P. volunteered to contact members on the "mail only" list to determine if they have email addresses in order to pare down the mailing list. Marian will also review some magazine articles for the next newsletter.
The meeting was adjourned at 8 PM. |
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Dr. Schar - Sept. 20, 2012
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www.Schar.com | - 6:45 PM
Mercy Care Auditorium St. Peter's Hospital
310 South Manning Blvd. Albany, New York Sponsored by Shop Rite Reservations Requested
Click Here For Details: About_Us
ShopRite is pleased to host Anne Roland Lee, MSEd, RD, LD from Dr. Schar, Europe's #1 Gluten Free Brand. As the Dr. Schar dietitian, Anne is an expert on managing a healthy diet with Celiac disease. Come and hear Anne discuss how you can stay healthy and gluten-free. While you're here meet with Elicia, your ShopRite of Niskayuna dietitian!
With over 30 dedicated gluten-free items in the US, Schar has your solution for bread, pasta, cookies, snacks, crackers & pizza.
ShopRite is your destination for Gluten Free foods! With over 84 feet of product in the grocery aisle and 6 freezer cases all your Gluten Free needs are met. |
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October 2012 Plan
Further Details To Be Announced For:
an autumn glutenfree harvest festival with a focus on glutenfree kids. A dietitian will do a talk about navigating the school system during holiday/party season with glutenfree needs. Glutenfree foods & autumn activities will be available for families to enjoy. |
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Gluten-Free Holiday Cooking November 8, 2012: 7PM - 8:30 PM
Price Chopper Headquarters
461 Nott Street Schenectady, NY
Join us for gluten-free cooking and baking for the holidays with noted cookbook author, Elizabeth Barbone, graduate of The Culinary Institute of America. Her cookbooks, "Easy Gluten-Free Baking" and "How to Cook Gluten-Free", and her website, www.glutenfreebaking.com, offer delicious gluten-free recipes that make living gluten-free less challenging.
There is no charge for attending, but registration is required in order to prepare samples and accommodations for the large group expected.
Make your reservations today by sending an email with the individual names of all persons planning to attend to Maureen Murphy at: maureenmurphy@pricechopper.com
Be sure to save the date! We look forward to seeing you for what is sure to be an enjoyable and informative evening! |
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Tidbits From Daria
There now is insurance against any celiac suing an establishment for getting sick .....Here is the article about insurance for restaurants. "Gluten-Free" Trend Spurs Demand for Restaurant Liability Insurance. Specialized Food-Service Coverage Is Insureon's Latest in Series of Insurance Catering to Small or Micro Businesses. CHICAGO, IL--(Marketwire - Aug 10, 2012) - According to Insureon, the leading online agent for small business insurance, a growing trend toward "gluten-free" menu items at America's restaurants and catered events is increasing the demand for a special kind of insurance designed to protect food-service businesses against lawsuits arising from bad reactions to food products. The "gluten-free" trend is helping many establishments appeal to millions of Americans who are. Want to read more about it? www.marketwire.com
Cheap, Fast New Test Promises Accurate Results for Celiac Disease, Other Disorders By Jefferson Adams Published 07/26/2012
Wouldn't it be great if we didn't need a biopsy to confirm we had celiac disease? Read about a new test that can even detect other autoimmune diseases @ www.celiac.com
Is your problem gluten? Or faddish eating? July 31, 2012 RSS Feed Print By MIKE STOBBE, Associated Press. Interesting read on gluten sensitivity and fad eating. Is the explosion of available gluten free products good or bad? Will it last? Read more @ www.spokesman.com
Sorghum Flour ... is it the next wonder flour? Scientists are working to find how to utilize sorghum in making a flour for baked goods. Scientists are finding that sorghum flour has a positive effect on the glycemic index, resulting in a lower blood glucose level when compared to other grains. Read more @ www.triumphdining.com
Mini Pops - Like Popcorn, but with Sorghum!
By Laura (The Gluten-Free Traveller)
Not only are Mini Pops gluten-free, they are certified gluten-free and produced in a completely gluten free manufacturing facility which is also nut free, kosher and organic. Woohoo! They come in eight fun flavors - Petite Plain, Subatomic Sea Salt, Baby White Cheddar, Itty Bitty Butter, Hot n' Chilly Chili, Nano Pepper & Herb, Cutie Caramel Clusters and Itsy Bitsy Chili Cheese. The fact that they all have awesome names makes me like them even more. Read more @ www.triumphdining.com |
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Reviews by Kathleen Boehning
Doctors continue to say it is not possible to react to the topical application of gluten in a body care product. Yet, this is not the experience of some celiacs who may have a severe reaction to some lotion, shampoo or a Vitamin E product. The most common source for naturally derived Vitamin E is from wheat germ oil. Though this oil may be more troublesome for those allergic to wheat, rather than celiacs.
As reported in the summer issue of Journal of Gluten Sensitivity, a George Washington University study has proven that, indeed, the very sensitive celiac can have an unpleasant reaction for topically applied gluten.
A representative from Clariol could not confirm whether gluten might be in the fragrances used in their products. She also stated that even fragrance-free products actually have a masking chemical that might contain gluten. Also, it's a good idea to beware of the botanical names for several key ingredients:
triticum vulgare is wheat
hordeum distichon is barley
secale cereale is rye
avena sativa is oat
Others words to watch out for include:
hydrolyzed malt extract
wheat or vegetable protein
fermented grain extract
cyclodextrin
samino peptide complex
phytospingosine
stearydimoniumhydroxypropyl
Put those in you Ipad or whatever, because how the heck do we keep all of this in our heads.
The cosmetic industry is basically self-regulating. The FDA was tasked by Congress to complete guidelines and definitions of gluten by 2008. However, it is still not done. We really do need to read the labels of everything, don't we?
This company had an ad in the J of GS, stating they are a manufacture of GF, organic and vegan skincare products: www.sophyto.com
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In some people, eating gluten can trigger the making of a chemical called zonulin. Zonulin weakens the tight configuration of the cells of the small intestinal wall. This causes leakage of larger food particles into the blood stream, causing an immune response. (Journal of Gluten Sensitivity, Summer 2012). One such protein that might be mistaken as an invader is the protein in milk, casein. It, too, is similar chemically to gluten. Newly diagnosed celiacs often cannot tolerate dairy, though after a few years, many can once again enjoy milk products without ill effect.
But while this time out may difficult, it is not considered a true allergy. An allergy to milk triggers an IgE response, causing a number of troublesome reactions, affecting multiple body systems. Milk allergy usually appears early in life, before the age of one and more common in boys than girls. But of the 1-2% of children, most out grow it by age 5. But till then they can develop hives, rashes, wheezing, throat tightness, trouble breathing and swallowing, diarrhea and other digestive issues.
Lactose intolerance occurs when the body doesn't produce enough of the enzyme, lactase, to break down the milk sugar lactose. Asians have the highest rate of this condition at a rate of 90%, African Americans at 85% and Native Americans at 70%. The older one becomes, the less lactase our bodies make. But one can drink lactaid milk and take the enzyme in supplement form to help.
Symptoms for lactose intolerance and milk allergy may be similar - both having vomiting and diarrhea. Those with milk allergy rarely experience the abdominal pain that some with lactose intolerance feels. The other differentiation is the length of the reaction time after consumption. With a milk allergy, even the smallest amount will trigger the autoimmune response within 2 hours of ingestion, whereas the lactose intolerance reaction can often occur beyond 2 hours from eating.
Those allergic to casein are also likely to be allergic to whey and 90% who are allergic to cow milk, react to any mammalian milk, goat, sheep, water buffalo, etc.
Your doctor can order a lactose tolerance test or hydrogen breath test. If the allergy is suspected then an IgE blood test or a skin prick testcan be employed. For more information see The Complete Idiot's Guide to Dairy-Free Eating (available at Amazon.com)
However, if you suspect your under 2 year old of CD, it is best to wait before doing the blood test for IgA and IgG, as it is not reliable till they are over 2. ---------
Worried about how you child's quality of life is now that they are on a GF diet? Well, relax. In a rare children's study of this nature, the newly diagnosed children proved to be very adaptable. They rated themselves with high scores in all categories of overall health. As one might expect, their parents rated them with lower scores. Those children that were more symptomatic experienced the most improvement and their scores were higher than those celiacs who were asymptomatic.
Health-Related-Quality-of-Life-in-Celiac-Children-on-GF-Diet
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The European Journal of Nutrition (2012) reported that an Italian study showed that a sourdough made from corn, rice and amaranth, actually helped improve the biopsy tests in 8 newly diagnosed celiacs. I hope they share the recipe with us soon. Maybe this sourdough can help with refractory celiac. For Further Details - Click Here
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Celiac expert from the Mayo Clinic, Joseph Murray, MD and Mark Riddle, MD of the Naval Medical Center, tracked the US armed forces from 1999-2008. Their study, published in the Journal of Gastroenterology (May 2012), points to a rising number of soldiers developing CD within 2 years prior to experiencing infectious gastroenteritis.
www.medscape.com
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Researchers at the Celiac Disease Center at Columbia University expressed their beliefs that CD is under diagnosed because endoscopies do not routinely include a biopsy sample (and Dr. Green says there should be 8 or so samples). I was shocked to discover that only 45% of women had samples taken, 39% men, and only 28% of African Americans. The source for this information was searched from the Clinical Outcomes Research Initiative Endoscopy Database. I guess you have to ask them to take a sample. Gee. Who would have guessed it?
Low-Rates-of-Biopsy-May-Drive-Under-Diagnosis
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Horse lovers. Listen up! The faculty researchers at the Dept. of Equine Sciences at the Univ. of Utrecht, Netherlands, have been studying horses with inflammatory small bowel disease (ISBD). In a controlled study, those with ISBD had higher levels of IgA. When put on a GF grains, their symptoms cleared, including those different their bowel issues, and their IgA levels came down. Horse Lovers -------- |
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The Celiac Disease Resource, Inc.
P.O. Box 621, Glenmont, NY 12077
518-461-7065 |
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