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The Celiac
Disease Resource, Inc.
Newsletter &
Schedule of Events
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We're off to a great start for 2012. Our VP, Francine Fazio, has put together a schedule of events that will be of interest to all. Further details follow below. We also have some interesting submissions which we hope you enjoy. Remember, we're all volunteer and our mission is to support the celiac community and anyone attempting to avoid gluten or wheat. Thanks for making it all possible go to our dedicated Board Members and volunteers. Your Comments and Suggestions are always welcome.
Roz Spiller, President
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Click Above for: newworldbistrobar.com |
February Restaurant
Get-Together:
New World Bistro Bar - February 20, 2012 at 6PM
300 Delaware Avenue
Albany, NY
We look forward to another incredible restaurant experience.
Debbie Loncto-Ulrich has arranged this event and Jessica Evans, NWBB's General Manager, said they "will make certain that all of your dietary needs are met." Reservations are limited to 20! Please RSVP by February 15th to Roz Spiller at upstateceliacs@yahoo.com or leave a message at 518-461-7065. |
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Click Above for Elizabeth's Videos |
March 8, 2012 - 7:00 PM
461 Nott Street, Schenectady, NY Reservations Required Attendance is Free & Open to the Public (Details Below)
Sponsors
ELIZABETH BARBONE
Elizabeth Barbone is the author of two cookbooks, "Easy Gluten-Free Baking" (Lake Isle Press, 2009) and "How to Cook Gluten-Free" (Lake Isle Press, 2012)
An alumna of the Culinary Institute of America, Elizabeth, is known for creating gluten-free recipes that taste just like their wheat counterparts. In addition to creating recipes for her website,
GlutenFreeBaking.com, Elizabeth travels the country speaking to celiac groups and teaching gluten-free baking classes.
Price Chopper is graciously hosting our kick-off meeting for 2012 at their new Headquarters in Schenectady NY. Come meet their dietitians and Senior Nutritionist, Ellie Wilson, ask questions and learn firsthand from Maureen Murphy, Manager of Consumer Trends, Nutrition & Lifestyles, what's new in gluten-free services in the aisles of Price Chopper.
Meet Elizabeth Barbone in person and be one of the first to purchase her latest cookbook "How to Cook Gluten-Free." It's your chance to have it personally autographed and then thoroughly enjoy her cooking demonstrations for several new recipes from her new cookbook. There will be samples and vendors to enjoy and you will be able to secure your reservation for the spring Gluten Free Food festival on May 16, 2012, at the Century House in Latham.
Make your reservations today by sending an email to: gailfailing@pricechopper.com or call her at 518-379-1617
with the names of all people attending.
Reservations are required for this meeting in order to prepare samples and accommodations for the large crowd expected. Please plan to attend. We look forward to seeing you all there.
Visit pricechopper.com and click on healthyu/glutenfreefor gluten free cooking videos featuring Elizabeth Barbone, as well an updated product list and blogs in various gluten free topics. |
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April 19, 2012 at 6:45 PM
Struggling With Celiac Disease & Diabetes?
By Elicia McMullen, RD of ShopRite, Niskayuna
Mercy Auditorium at St. Peter's Hospital
310 South Manning Blvd., Albany, NY (see www.celiacresource.org for directions)
A Question & Answer Session will follow.
Elicia McMullen, RD
Elicia will discuss healthy meal planning and practical tips to keep your meals gluten free and your blood sugars under control.
Retail Dietitian, ShopRite of Niskayuna 2333 Nott St. East, Schenectady, NY 12309 Office: 518-243-4571 - Mobil: 518-491-0050 - Elicia.McMullen@Wakefern.com |
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Future Event Plans
May 16, 2012 - Gluten Free Food Festival at the Century House & Sponsored by Price Chopper
June 2012 - Family Picnic (location and date to be determined)
July & August 2012 - Restaurant Get-Togethers
9/20/2012 - ShopRite to Present Anne Roland Lee from:
Dr. Schar: www.schar.com/us/
October 2012 (Date To Be Announced): Young Celiacs:
This Special Meeting is being planned for young people with Celiac Disease and gluten-intolerance. Breakout sessions will be organized by age group: grade-school and parents, including information for communicating with school foodservice and faculty; highschool, preparing to be gluten-free in college; and college/young adult, navigating the social scene as a gluten-free young-adult with a mixer to follow. More details with RSVP information to follow.
Lacey R. Wilson, MPH, CFT MS/RD Nutrition Candidate, Russell Sage College
November 8, 2012:
12 Days of Holiday Cooking - Sponsored by Price Chopper
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Reviews by Kathleen Boehning
An agreement between two Swiss companies, joined their talents to produce a 10 minute, easy celiac blood test kit, requiring needing no training to perform. One of these companies, Augurix, is a medical diagnostic that specializes in pocket sized, rapid, disposable tests to monitor or diagnose, focusing mainly on gastroenterology. With their Simtomax, one drop of blood measures lab-accurately, IgA and IgG 3 markers for celiac antibodies quickly and cheaply. It was the recipient of the 2010 Frost and Sullivan European Product Differentiation Excellence Award in the Point of Care division. The test is already available in Italy, Switzerland and France. Link to Augurix
Closer to home, a similar test kit has been available in Canada for several years now in their retail chains. Marketed as CELIACSURE or BIOCARD, it can determine whether one is negative, developing or has celiac. Like any blood test for celiac antibodies, you must actively consume gluten for weeks before the test is taken. www.celiachometest.com says that the company is waiting for approval for distribution in the US.
It might very well be possible to purchase this test now and have it mailed across the border since an advertisement for BIOCARD was printed in the Winter 2012 issue of Journal of Gluten Sensitivity, which is based in Santa Rosa, Cal. The ad mentioned BIOCARD is the only Health Canada licensed 10 minute celiac test and that it is 93.5% accurate. www.glutenpro.com
The Food and Drug Administration (FDA) currently doesn't require labeling of the gluten content in medications (neither nonprescription or prescription) - but that's changing soon, hopefully. Here's the good news: FDA's Center for Drug Evaluation and Research (CDER) just issued a request for public comments about gluten in prescription and nonprescription drug products. Comments must be submitted by March 20, 2012. Click Here to Read More. Also, http://glutenfreedrugs.com is a well researched and organized resource for anyone needing to take a medication and uncertain of it's GF status.
www.Italianglutenfreefoods.com - Another ad in this issue was tempting so I looked it up. Wow what delicious looking food! Made to order and flash frozen and delivered. I was nicely surprised to see they have a 516 area code which means Long Island. Pictures of their garlic bread, stuffed clams, rice balls, mozzarella sticks and veal marsala are mouth watering. They are about half the price one would spent at a restaurant, if you could find a restaurant to make them.
Speaking of Italian, while I can hardly claim to have tasted every GF pizza in the entire area, it is my humble opinion, as a long time resident of NYC, Brooklyn and Long Island, the best made to order pizza, by far the best in the area is Just Me Pizza, opposite the Times Union Arena. To quote one of the reviews I found online, "They take GF to a whole new level". The GF crust is made by a local woman in Scotia and each round or Sicilian crust is individually wrapped and kept in the freezer ready for an order. While both sizes make great pizza prefer the larger 12-slice Sicilian size. It reheats beautifully. They also make a 12" round 8-slice as well. The owner says he doesn't really make much on these pizzas because the crust costs so much. We can help support him by buying more of this truly wonderful pizza. They are located opposite the Times Union Arena on Broadway in downtown Albany. This Sat. night there was a game and every seat was taken by families. Yet, without calling ahead, I had to wait under 20 minutes for my pie. So take the kids to a concert or game and go get some great tasting pizza, the new vegetable. Ha! |
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TIDBITS FROM DARIA
www.starbucks.com
Last verified 4/11 1-800-235-2883, Ext. 0
Customers can get ingredient information by asking their barista or calling 1-800-235-LATTE (235-2883). Starbucks, depending on the size of the outlet, does sell some pre-packaged GF snacks that are labeled gluten free.
Customer service call on 4/11/11: The customer service representative said the only information he had was that Starbucks could not guarantee anything they served as gluten-free because of cross-contamination issues. He was not able to confirm the information given below.
Sent by email in 10/10 from Starbucks Customer Relations:
"Starbucks is unable to guarantee a 'gluten-free' environment in our retail locations due to the potential for cross contamination with gluten-containing products. The open environment and operating procedures of our store locations may present additional risk for gluten-sensitive customers aside from the gluten-containing ingredients themselves. 'Gluten-free' is a claim with specific requirements defined by government agencies and industry standards. We are unable to make this claim on a product unless the item is specifically formulated and manufactured to meet the definition of the claim."
Sent by email in 12/10 from Starbucks Customer Relations: "The only syrup with gluten is Light Coffee Frappuccino Syrup. Java chips do contain wheat. Caramel Sauce, Caramel Brulee Sauce and Caramel Brulee Topping all contain corn syrup. There is always a chance of cross contamination, we can't guarantee anything being gluten- or corn-free."
The Blended Light Frap Mix contains gluten. The regular Frappuccino base mix does not contain gluten. Read the following blog, which also has a written response from Starbucks discussing their current policy. May, 2010. Click To Read More
Announcing...CDF's 1st Children's Celiac Camp!
Located in Southern California's beautiful San Bernardino Mountains near Big Bear, the 2012 Camp Session Week, July 30 - August 3, will be filled with fun activities and adventure in an environment dedicated to their gluten-free dietary needs. Spaces are limited. Reserve now. Call the CDF at 818.990.2354 or visit our website at: Camp Nawakwa
www.kindsnacks.com/kindaholics
Your kindness kicked off the New Year with the gift of shoes for people in need: Today, hundreds of people living without shoes are tying up the laces of a brand new pair - all because of you.
This was the January BIG KIND Act and it was made possible by the collective kindness of thousands of KINDAHOLICS who accepted last month's KINDING Mission.
As we speak, members of the KIND team are paying your kindness forward at the Atlanta Mission where they are giving shoes to hundreds of people who have been living without this basic need. Joined by Soles 4 Souls volunteers, KIND team members are welcoming local homeless men, women and children as they take a seat to be fit with the gift of a new pair of shoes! Read more about this story and about some Hollywood Actors like .... Gwyneth Paltrow, Cameron Diaz, Orlando Bloom & Piper Perabo at: Celebs Do Lunch

From
JONES DAIRY:
Ready
for
some Football? |
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Gluten Free Disney World
by Colleen Cook

When my daughter was first diagnosed with celiac disease at 18-months of age, I feared she would miss out on parts of childhood. One of the big trips we wanted to do with our kids was Disney World. A google search revealed that Disney had a solid reputation for its handling of food restrictions. But still, I was nervous when we went to Disney World in March 2011.
I didn't have to be. With some careful planning, my daughter was able to eat safely. The first step was to contact Disney's Special Diets team. They can be reached by email at: SpecialDiets@DisneyWorld.com. I emailed them our dietary restrictions and they promptly responded with a several page list of every restaurant and quick-serve establishment at the parks, resorts, and Downtown Disney that could accommodate our specific needs (gluten-free and coconut-free). They even included a list of all the snacks served at vendors throughout the parks noting all allergens. I printed out the list and carried it everywhere we went. I made sure to note the food restrictions when I made reservations so that the restaurant could be prepared for our dining needs.
We spent the first day at Animal Kingdom where we had a character breakfast at Tusker House. The breakfast is buffet and the chef walked us through which items were gluten-free. He then mentioned that he could make Isabella gluten-free Mickey Mouse waffles on a dedicated waffle iron! Isabella was thrilled. Since I am nervous about buffets and cross-contamination, I asked the chef if he could bring her some fruit to go with the waffles from the kitchen. He was glad to accommodate. Below is a picture of a very happy girl. Since breakfast was pretty filling we just ate some cereal bars I packed into our pack along with some fruit we purchased at a stand for lunch. For dinner we went to Restaurantosaurus where I had read about gluten-free chicken tenders and fries. We went around 5, before the dinner rush. As soon as we mentioned we needed a gluten-free order a manager came out and handled the order from start to finish. We all ate gluten-free there-it was easier. The chicken tenders and fries were piping hot from their dedicated fryer. The meals included baby carrots and French Meadow Gluten-Free brownies. The kids' meals came in little beach pails ,which were a hit. The meal was tasty and safe.
We spent two days at Magic Kingdom. The first day we had lunch at Pinocchio's Village Haus. It was during rush time and was VERY busy. I was a bit nervous, but again a manager took care of the order from start to finish. We had an Amy's frozen pizza cooked in a dedicated area. The place was very busy, but the food was safe. The next day at Magic Kingdom we had lunch at Liberty Tree Tavern at Magic Kingdom. The chef came out to the table and suggested a gluten-free kids plate of Amy's gluten-free macaroni and cheese, salad, and fruit all served on a mouse ears plate. I ordered a gluten-free turkey meal that was good and moist.
Our other meals were back at the hotel or in Orlando. We stayed at a hotel on International Drive with a microwave and mini-fridge. After we checked in, I drove over to Wal-Mart and Whole Foods to stock up on fruit, Mission corn tortillas, Kraft shredded cheese, cereal, milk and applesauce. Most days we had breakfast and dinner at the hotel. I recommend this with any kid, as Disney can be overwhelming to their nerves. Not to mention parents' wallets. In Orlando we ate at the P.F. Chang's at The Mall at Millenia. It was very good, as usual. We noticed a Delmonico's Steak House under construction on International Drive and it is part of the same chain as the Albany Delmonico's. If we go back, we will check them out as well. One challenge was that Indian restaurants near our hotel used a lot of hing/asafetida which is often processed with wheat, and they did not feel safe serving Isabella. We were disappointed we couldn't eat there, but appreciated their honesty.
One last (non-celiac) tip: If you are a AAA member and buy your park tickets at AAA, you will receive a Diamond Parking pass. This allows you to use reserved parking spaces close to each park's entrance, just beyond the handicapped parking.
Disney Resources:
Disney Special Diets: SpecialDiets@DisneyWorld.com
Disney Dining Reservations: (407) WDW-DINE or (407) 939-3463 |
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Reviews by Kathleen Boehning (Continued)
Uncle Sam's in Latham have expanded into the store next to their original space. They have expanded their GF selection even more. They have added some new GF brands.
Have you been to the new Shop Rite in Niskyuna? Well, you should. They have an entire on side of an aisle devoted to GF. And each of the other GF sections are nicely labeled. And But if it is too far, then wait a few months. A new one is in progress off of Central Ave and Everrett (Exit 5 of of 90). If it is anything like the Niskyuna one, then you won't believe it. There's an entire aisle of GF dry goods (side that is.. but still!). And they clearly identify sections of the freezer, etc. as GF. And what a selection! And their prices are often much lower, such as Against the Grain Baguettes, which were $2 less than anywhere else I have compared.
Before you head home, go across the street to 2227 Nott St and Balltown Ave., to the must-visit, venerable Niskyuna Food Co-op, established in 1943, a grand-daddy of co-ops. Started when 300 neighbor's got together to form a store closer than Schenectady during WW II when gasoline was scarce and rationed. Niskayuna Co-Op They have had Udi's bread, even at a non-members price, way lower then anyone one else in the entire area. Have you tried Udi's dog or burger rolls yet? They are the BEST! Sami's Bakery rolls are pretty darn good too. I use their dog rolls like little baguettes. I slice them in half-length wise and then I make 4 slices length wise on each. Or you can make smaller rounds. No one can ever tell that this bread is GF. Their herbal croutons make an excellent stuffing, by the way. They might need to special ordered at your local source for Sami's because I only see the plain around these days.
Restaurants nationwide have increased items listed as GF by 61%! There is even an online course restaurants can take on all the details of GF cooking for $200. Anyone have friends who own a restaurant and want to do it right? Here you go: Click Here This site has training tailored for each audience. They offer 1.5 CE for the pharmacists version. There are versions tailored to nurses and for mental health workers.
There's a helpful guide for restaurants in the area that offer GF items.
Restaurant Options
The US GF food industry surpassed 6 billion in sales in 2011, according SPINS, an industry sales data analysis company, growing 16% over the previous year.
Read More
A study was done at the Dahousie Univ. in Nova Scotia, comparing prices between non-GF items and their gluten free alternatives. They found that the average unit price was .61 compared to $1.71!, a 242% increase in GF food.
Tina Turbin of www.glutenfreehelp.info, states that if you have a doctor's note stating you have CD and you anticipate filling a Schedule A Itemized Deductions, then start saving your receipts. She says you can deduct the difference between regular food prices and your GF prices. (Trouble is, many stores don't identify a product as GF on their register printout. So I don't know how one can keep track of what's GF and what's not. You would have to highlight the UPC or bar code as soon as you were unpacking.) You can also deduct items that usually only us celiacs use, like sorghum flour, xanthum gum. If you purchase mail order, then you can deduct the shipping as well.
Also from this same issue of Winter 2012 Journal of GS, a dietitian compared the sugar content of pre-made flour mixes. Most of those tested had from 2-4.5 teaspoons per serving. Unfortunately, my favorite, Betty Crocker's Chocolate Chip Cookie mix had the equivalent of 4 1/2 teaspoons of sugar per serving. She recommended making one's own mixes and to freeze them in bags ready to use. We will save money and we can control the amount of sugar we put in or even substitute some stevia.
Here's a recipe that looks fantastic and just like the Kaiser rolls I grew up eating. Click Here
A team of teens in Washington state won 1st in their regional science competition with a robot that monitored for gluten contamination in the kitchen. They are going on to the state with this autonomous robot. The 5 teens, ages 9-14, used LEGO MINDSTORMS NXT components to build it to watch over a shared kitchen. The article doesn't exactly say how. Click Here
In an "Osteoporosis and CD", Alexander Shikhmen, M.D., PhD, FACR, discusses the risks for developing osteoporosis. The celiacs have problems with a number of nutrients. Malabsorption of Vitamins D, K and magnesium is detrimental to the bones. Signs of magnesium deficiency are muscle cramping, twitching, irregular heartbeats and high blood pressure. Chronic diarrhea or loose bowes leads to a drop in levels of bicarbonate in the body, causing acidosis. This leads to the body leaching calcium from the bones to restore PH, leading to bone loss. Long term use of proton pump inhibitors as well as SSRI's also increase risk factors. Also, low levels of estrogen in both women and men leads to higher rates of osteoporosis and fractures and it has been found people with celiac have lower amounts of estrogen. An autoimmune response mechanism has been discovered showing that celiacs have significantly higher amounts of autoantibodies, which block the actions of the chemicals that regenerate or tune over bone. The inflammatory response, measured as C-reactive protein, seems to be at the root of nearly everything that hurts or is malfunctioning. Dr. Shikhmen said knowing these risks can help one be proactive by getting your D levels tested. That is, specially tell your Dr. to be tested for the 25-hydroxy D and to supplement with D3. Increase your intake of anti-inflammatory foods and taking enough of the correct supplements. Low levels of D are also linked with depression, another condition many celiacs suffer with.
In the Autumn issue of J of GS, Brian Dean, MS, RD wrote Celiac and Mental Health. He warns that the very nutrients needed to build the crucial neurotransmitters involved in brain functioning are the same nutrients that celiacs have difficulty absorbing. Our brain uses 1/3 of our daily nutrient intake. If we are not taking in ( or able to convert them to active forms) enough Omega-3, calcium, zinc, B6, B12, folate, or the amino acids like tryptophan, when we are able to make sufficient serotonin, dopamine, GABA and other "feel good" neurotransmitters. Other forms of mental illness can be helped by a GF diet. Schizophrenia, was called "bread madness" in the 1800's when some schizophrenics improved when bread was withheld. Autistic children often respond to a GF diet with improvements with eye contact, speaking and emotion expression. While this diet is very restrictive, if the pay offs were that pronounced, then it would be well worth the time and expense. |
| Contact Information |
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Rosalind Spiller
The Celiac Disease Resource, Inc.
518-461-7065
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