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The Celiac Disease Resource, Inc.
celiacresource.org ..... upstateceliacs@yahoo.com
P.O. Box 621, Glenmont, NY 12077 - 518-461-7065 |
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The Celiac Disease Resource, Inc.
September 2011 Newsletter |
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Dr. Peter Green
Outback BBQ Fundraiser |
September 29, 2011 - 6PM
October 9, 2011 - 1PM |
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Mark Your Calendar!
Dr. Cary Qualia
Nov. 2, 2011
Pediatric Celiac Care
Mercy Care Auditorium
St. Peter's Hospital
310 S. Manning Blvd
Albany, NY |
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 Dr. Peter Green Returns to Albany
Dr. Green will speak on "CELIAC DISEASE" on September 29, 2011 at 6:00 PM at a celiac patient support group presentation open to the public and local healthcare providers at: St. Peter's Hospital -
Mercy Care Center Auditorium
310 South Manning Blvd., Albany, NY. Peter H.R. Green, M.D., Professor of Clinical Medicine, College of Physicians & Surgeons, Columbia University Director, Celiac Disease Center at Columbia University
The Celiac Disease Center at Columbia University was established within the Deptartment of Medicine at Columbia University in 2001 under the guidance of Peter Green, M.D., one of a few recognized experts on celiac disease in the United States. The Center provides comprehensive medical care for adults and pediatric patients with celiac disease, including nutrition and attention to the multiple associated conditions that occur in celiac disease. The Center is involved in the care of thousands of patients with celiac disease and gluten intolerance, providing better access to proper testing, diagnosis. treatment and follow-up care. In lieu of an admission charge, donations will be appreciated and accepted at the door on September 29th, OR send your donation made payable to (TCDRI) The Celiac Disease Resource, Inc., and send to: TCDRI, P.O. Box 621, Glenmont, NY 12077. Samples will be provided by various vendors. See below for information regarding sponsorship and participating vendors for this event. |
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 Outback Steakhouse
BBQ Fundraiser
October 9, 2011 - 1:00 PM
Shaker Road Loudonville Fire Dept
550 Albany Shaker Road, Loudonville, NY
Bruce Anderson, Proprietor of the Outback Steakhouse in Colonie, is again graciously hosting this important fundraiser. The Outback Steakhouse BBQ is one of our biggest fundraisers of the year. Celiacs, their families, and guests will have an opportunity to meet and socialize with other celiacs, enjoy a great meal, and exchange stories, etc. Feel free to also invite family, friends, and co-workers who are not Celiacs to enjoy a delicious gluten-free meal with us.
~~ Join Us & Enjoy a Great Gluten-Free Meal, Converstion & Raffle Prizes~~
Seating is Limited to 75!
$20 per person (children under 12 - $10 per child)
Reservations will be accepted on a FIRST PAID basis.
Payment is non-refundable. Print and fill out the attached reservation form (click here), or provide the reservation information requested on the attached reservation form, and send with a check payable to: The Celiac Disease Resource, Inc. (or TCDRI).
~~We will collect gratuity for the wait staff at the BBQ~~
Mail check and reservation form or information to:
Rosalind Spiller, 34 Florence Drive, Ballston Spa, NY 12020
Reservations with payment are requested by September 25th, 2011.
(Late Reservations Accepted Pending Available Seating no later than October 2nd, 2011.)
For questions feel free to call:
Roz @ (518) 461-7065 (leave phone #, I will get back to you) or send an e-mail to: UpstateCeliacs@yahoo.com
Anyone wishing to "make a donation" (payable to TCDRI) please include with your payment, indicating the amount of your donation on your reservation form.
Proceeds will be used to pay for operating expenses (printing, mailing, supplies, meeting expenses) and donations to medical organizations conducting celiac disease research. |
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 Shop Rite Opens in Niskayuna
& Sponsors
Dr. Peter Green's Presentation on September 29, 2011 at 6PM
www.shoprite.com/
2333 Nott Street, Schenectady, NY 12309
Shoprite of Niskayuna is honored to meet the needs of the local celiac community!
Are you:
* Looking for kitchen tips for gluten-free cooking and how to keep a gluten-free kitchen?
* Worried about hidden sources of gluten?
* Interested in learning about gluten-free safe substitutes?
ShopRite has the solution. As part of ShopRite's commitment to helping its customers live healthier lives, there will be an on-site registered dietitian at the ShopRite of Niskayuna. She will be available for customer consultations to help answer these questions. This free service offers customers the opportunity to discuss their health and dietary needs, empowering them to make the choices that are best for them. Whether you are newly diagnosed or a pro when it comes to living a gluten-free lifestyle, our ShopRite dietitian is a source for product knowledge and sampling, recipe modification and more.
ShopRite of Niskayuna will have an entire section of gluten-free products, which will be easily identifiable by our ShopRite label shelf tags. In addition our ShopRite Pharmacist will be available to answer any questions regarding hidden gluten in prescription drugs, cosmetics and over-the-counter products. Visit shoprite.com for a list of gluten-free products and other helpful health and wellness information. We recognize that you are on the forefront of the gluten-free lifestyle. As such we look forward to hearing your feedback on what gluten-free products you would like for us to carry at our new store in Niskayuna.
FREE services available to all of our ShopRite customers include:
· Individual and family counseling
· Product information and health events
· Grocery shopping tours
· Community programs
· Healthy cooking classes
Please visit us on October 2nd 2011 for our Grand Opening!
Please contact Sarada Bernstein, MPH, RD Corporate Dietitian, for more information at sarada.bernstein@wakefern.com or (845) 649-5932.
Sarada is looking for feedback regarding:
· What are some of your favorite gluten free products?
· What are catagories/items of gluten free products that you have trouble obtaining? Breads, Ready Made Items etc.
· If ShopRite were to prepare deli sandwiches made with gluten free products, would this be a service you would utilize?
· ShopRite will have a full time retail dietitian on staff. What services would you like see the in-store dietitian provide e.g. seminars, cooking demos, classes etc? |
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Tidbits From Daria
GIG Survey:
Here is a survey you may be interested in:
Has Consumer Perception of GF Food Safety Changed Over Time?
Traveling? Here's a great Italian restaurant chain to check out
(Rochester, NY; Cary, NC & other locations): Health Items of Interest: |
Items of Interest from Kathleen
From Mark Hyman, MD's web page
http://drhyman.com/gluten-what-you-dont-know-might-kill-you"A review paper in The New England Journal of Medicine listed 55 'diseases' that can be caused by eating gluten. (iv) These include osteoporosis, irritable bowel disease, inflammatory bowel disease, anemia, cancer, fatigue, canker sores, (v) and rheumatoid arthritis, lupus, multiple sclerosis, and almost all other autoimmune diseases. Gluten is also linked to many psychiatric (vi) and neurological diseases, including anxiety,depression, (vii) schizophrenia, (viii) dementia, (ix) migraines, epilepsy, and neuropathy (nerve damage). (x) It has also been linked to autism.(ix)"
Article Reviews:
Journal of Gluten Sensitivity by celiac.com, Vol. 10, No. 3, Summer 2011(available by subscription at http://www.celiac.com/)
"CD and Coronary Heart Disease(CHD)" by Brian Dean, MS, RD
In January of this year, researchers from Sweden, published their findings from tracking 15,000 celiacs. They found a 20% higher risk of coronary heart disease (CHD) morbidity among celiacs. Among possible reasons for this, is the difficulty celiacs have absorbing nutrients, particularly lipids or fats. Omega 3 fatty acids are particularly important for heart health. Among their beneficial properties is their anti-inflammatory ability. Studies have shown that celiacs also have higher amounts of inflammatory markers, like C reactive Protein, IL-6 and TNF-a. Celiacs also have poor absorption of other fat soluble vitamins, like D and E, which low levels of leads to increased risk of CHD. Another contributing factor is elevated homocysteine levels. This amino acid, when not kept in check by the trio of B's, 6,9 (folate) and 12, is directly responsible for the formation of plague in the arteries. Researchers at the Univ. of Milan found celiacs were 3.5 times more likely to have hyperhomocysteinemia then the public at large. Considering that celiacs also have difficulty absorbing B12, it might prove purdient to get both tested. According to Jay Marks, MD from Baylor Univ. College Hospital, celiacs should get 25% of their caloric intake from healthy fats, such as olive oil, seeds and nuts, avacados, legumes, fatty fish, like salmon. Also, enzymes, particularly lipase and pancreatin, facilitate the ability to absorb essential fatty acids (EFA's - essential because our body cannot manufacture them. We get them from food). Another beneficial attribute of Omega 3's, is their lubricating ability. So those 25% of celiacs who have arthritis or who have Sjojrens Syndrome, may benefit by an adequate amount daily. My commentary: Taking a B complex vitamin would be wise for us all. However, not all vitamins are equal. There is some interesting discussion about folate versus folic acid on the web. Folate comes from nature, from our food, whereas folic acid is an invention in the lab. In the wake of new evidence of the superiority of folate, there is likely to be a trend among vitamin companies, to replace folic acid, which is cheap to manufacture with folate. So check your labels. Many of us would benefit from additional B12, even if we are consumers of meat. It is usually better to purchase the "activated" forms of some nutrients. These vitamins are in forms that are basically ready to be used, instead of waiting for methyl group to donate part of itself to make it available for the body to pick. However, the form that is by far the more usable form is the methylcobalamin B12, which is rarely found in a conventional multivitamin. -------------------------- Dermatitis Herpetiformis Alert! Did you know that celiacs with DH can develop a serious condition when they take certain drugs or eat certain foods that turn them grey and bluish? It is called Methemoglobin. This condition disables the blood from carrying oxygen. The drugs that must be avoided are Lidocaine, Benzocaine, Prilocaine and foods with nitrates, like bacon and cold cuts. --------------------- Clumsiness and Imbalance Many celiacs have issues with balance, coordination and may have ataxia, which is an irregular walking gait. It seems that gliadin triggers an inflammatory response in the cerebellum in what is called the Purkinje cells. These cells are responsible for integrating information for balance. Beware that B12 plays a very important role in balance. --------------------- MYTH BUSTER! A small study done in Ireland of 143 celiacs, showed that there are 8 times more overweight celiacs then underweight ones. In a number of small studies, newly diagnosed celiacs, either lost weight or gained weight once on GF diet. There is nothing conclusive on the debate of whether one loses or gains once starting a GF diet, you can either loss or gain (like I did!) -------------------
Journal of Gluten Sensitivity Spring 2011 Issue:
I gleaned one interesting bit of info on the high rate of cross-reactivity that celiacs have with a list of 24 foods. There is a blood test to determine whether one has antibody reaction to these. However, because we live in NY, it is tricky to work around the law that says no mailing to labs out of state. So, our doctors' hands are tied, unless a doctor has an office in Vermont. Also the author of the article on this cross reactive problem is on the team at Cyrex Lab that does the testing. They are a licensed lab. |
 | | Sa La Thai |
Lancaster, PA Restaurant Review
Here's a great restuarant review from:
Janet, The Celiac Lady razi-leidee@comcast.net
"Sa La Thai" Restaurant & Noodle House
337 N. Queen Street - Lancaster
What a little gem this restaurant is that we found in downtown Lancaster. They have the most enjoyable meals, which we have enjoyed several of them and the service is impeccable. This was truly a unique experience in dining, even if you've never had Thai food; you are in for a real treat. Some of the dishes are spicy, but you can request that they be prepared mild. Sa La Thai has now re-done their menu and have labeled many of the dishes as "gluten free", which only means that they can be prepared gluten free for us, so please tell the waitress that you need your selection GF, otherwise it will not be GF. Sa La Thai has a great luncheon menu -choose your soup, salad or appetizer and entrée meat. The soups are wonderful and made fresh daily - to date, I've enjoyed the Mixed Vegetable and the Jasmine Rice - as for salads, they offer a house salad and a Thai cabbage salad, which is so wonderful, but a bit spicy. As far as appetizers go, they only have one that is GF - a Spring Roll, which is steamed and made from rice paper and again it's very good. For entrees, may I suggest the Pineapple Fried Rice, the Cashew Nut or the Thai Ginger dish - all are very mild for those that don't like spicy foods. If you prefer a little or a lot of spice, may I suggest any of the curries or the Drunken Noodle dish - and don't be afraid to order anything with soy sauce either, as long as you tell them you need the dish to be GF - they use San J soy sauce, plus they prepare other sauces to also be gluten free for us. Oh, don't forget dessert - several different flavors of ice cream are prepared on the premises fresh every day. I'm not a big fan of coconut, but the Coconut Ice Cream was especially enjoyable, as was the Mango. Both were topped with just the right amount of ground peanuts. I have not tried the Thai Ice Tea, but their regular Ice Tea is brewed from tea leaves, not that powdered stuff you get at other eateries. If you are allergic to legumes/peanuts, pass up the Thai Coffee and opt for American Coffee - some Asian and Cuban coffees mix coffee beans with soy beans, which would not be appropriate for anyone with a nut/legume allergy.
So please consider giving the "Sa La Thai" a try the next time you want something different - I don't think you will be disappointed! |
News From Saratoga County:
SARATOGA GLUTEN FREE GOODS is pleased to announce a new retail location where you can purchase our fresh baked breads and rolls. Starting on Friday, September 23, 2011, you can find our products at:
BASIC FOODS, 585 Saratoga Road(Route 50) Glenville, NY - 518-399-2742
Some of you may have heard that Wild Thyme in Ballston Spa is closing its doors. Jeanne, MaryAnna and Robert are happy to report that it is staying OPEN and will continue to carry SARATOGA GLUTEN FREE GOODS! products. |
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Board Meeting Report - August 31, 2011
Items Discussed Included the Following:
-Shop Rite's new store opening in this area and their interest in supporting the local celiac community;
-Financial Report, including Price Shopper's Food Fair sponsor donation of $350 and also $500 from Price Chopper's Gluten Free Event earlier this year.
-Donation to Celiac Disease Center at Columbia University in honor of Dr. Green's visit and presentation.
-Dr. Green Program - asking for vendor ad donations.
-Reduced Role for President, in light of health and family issues; other Board Members agreed to assume more responsibilities.
-Youth Activities at General Meetings, e.g., Pizza Parties.
-Use of Lutheran School cafeteria, Colonie, NY, for next year's Gluten Free Food Fair.
-Reaching out to Berkshires and Schoharie (and possibly other locations) for satellite meetings.
-Selling advertising space on web site - decided not good policy for non-profit organization.
Roz Spiller, President; Francine Fazio, Vice President; Deborah Loncto-Ulrich, Secretary; Jill Roemer, Treasurer & Publicity; John Derderian, Restaurant Liaison. Also attending: Kathleen Boehning, Marian Price, Marion Matrazzo and Carolyn Keefe. |
Contact Info
Rosalind Spiller
upstateceliacs@yahoo.com - 518-461-7065
P.O. Box 621, Glenmont, NY 12 |
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