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| The Tourette Gazette |
September 2009 |
Greetings!
Welcome to our updated e-newsletter and this special Back to School issue. Since this is our first issue using this new format, there may be some kinks to work out. But we hope you enjoy our efforts just the same. Happy reading!
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Upcoming Support Group Events!
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Nationally Recognized Speaker:
TSA Education Specialist, Kathy Giordano
Topic: What You Need to Know -- Getting Help at School
IMPORTANT Date Change: Thursday, September 24, 2009
Time: 7:00-8:30 p.m.
Ms. Giordano will be speaking from
7:00-8:00 p.m. There will be time for Q&A from
8:00-8:30 p.m.
Location: Maryland Association of Non Profit
Organizations,
8720 Georgia Ave Ste 303,
Silver Spring MD 20910
All are
welcome and there is no charge for attending.
Please RSVP to
daradeutsch@tsagw.org if you will be attending
Kathy Giordano is a parent of two adult children with Tourette Syndrome,
Kathy Giordano is on staff as a national TSA Education Specialist. Over the
past fifteen years, Ms. Giordano has presented workshops concerning
educational, behavioral, and advocacy issues related to TS and co-occurring
disorders to over 14,000 individuals. Previously, Ms.Giordano had been chair of
national TSA's Advocacy Committee.
TSAGW holds a
monthly informal support group for individuals with TS and families with
children who have TS to provide guidance, support, and a place to learn from
others who may have shared experiences. We try to incorporate guest speakers every few
months. If you have any topics you would like discussed at the upcoming support
group meeting please contact daradeutsch@tsagw.org and if you have any
questions you can call TSAGW's main office at 301-681-4133.
The information provided in
this presentation is supported by grant/cooperative agreement # 5U38DD000343-03 from the Centers for Disease Control
and Prevention (CDC). Its contents are solely the responsibility of the
authors and do not necessarily represent the official views of the CDC.
Additional Support Group Events:
Tidewater Support Group
Meeting
Thursday, September 17, 2009
6:30 PM - 7:30 PM
Willow Oaks Branch Library
227 Fox Hill Road
Hampton, VA 23669
Richmond Support
Group
Wii Tournament and
Meeting
Friday, September 25,
2009
7:00-9:00 p.m.
Richmond Community
Church
11801 Nuckols Road, Glen Allen, VA 23059.
All are welcome!!!
For further information, contact Elise
Buncher (804) 364-3784 or at elisemgb@comcast.net
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This Month's Feature Article
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Tics, Tourettes, and ADHD
by Gary Bergman, M.D., F.A.A.P
This is the second of a two-part discussion on tics, Tourette syndrome
and ADHD. In the last newsletter, some of the issues of treating
individuals who has both tics and ADHD with the traditional stimulant
medications of methylphenidate (ex. Ritalin, Concerta, Daytrana,
Metadate, Focalin) or amphetamine (ex. Dexadrine, Adderall, Vyvanse)
were examined. In this article some other treatments and issues will
be discussed.
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| Back to School. . . |
"Making Successful Transitions"
Audio Presentation Now Available!
On August 18th, TSA conducted a teleconference on easing back-to-school transitions for students with Tourette Syndrome. The audio was recorded and posted on the TSA website and is now available. This 53 minute audio presentation supplies significant information to families and caregivers with transition needs as they pertain to students attending a new school, new grade or a teacher new to them.
Read More
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| Research Participants Wanted! |
Brain Imaging Research
NIH is currently conducting two brain imaging studies to learn more
about the roles of two brain chemicals (dopamine and serotonin) in
Tourette's syndrome and obsessive-compulsive disorder (aGO). People
with Tourette's syndrome (TS), people with TS and aGO, people with aGO,
and healthy people without aGO and without TS, ages 18 to 70 years are
needed to participate in brain imaging research studies performed at
The Johns Hopkins University and supported by the National Institutes
of Health.
Read More
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| Educational Resources |
New DVD Available FREE from TSA!
The national Tourette Syndrome Association, Inc. (TSA) brought together
a committee of experienced educators and parents to produce a new tool
that parents can use to introduce teachers, school administrators,
clinicians and other school personnel to the facts about Tourette
Syndrome and the impact that TS has on many students.
Read More
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Advocating for Your Child
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A Sample Letter for Teachers and Administrators
The start of the new school year is an opportune-and critical-time to
communicate with your child's team of teachers in order to ensure they
are informed of specific challenges, needs, or behaviors related to
your child. Below is a sample letter that you can use as a guide when
you craft your own.
Read More
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Upcoming Workshops
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Check Out These Special Events in October
Disability Law and TS
October 4, 1:00-2:30 p.m.
Sheri Abrams (an attorney specializing in disability
law) will be speaking at Fairfax Hospital's Physician Center to discuss employment and disability law as it relates to TS
and associated disorders. There is no charge for attending and no registration is necessary.
Address: 3300 Gallows Road, Falls Church, Virginia.
How to Teach Others About TS
October 18, 10:00 a.m. - 1:00 p.m.
To be held at the Maryland Association for Nonprofit Organizations, 8720 Georgia Avenue, Suite 303,
Silver Spring, Maryland. Learn how
to present information about Tourette syndrome, ADHD, OCD and learning disabilites in this "Train the Trainer" workshop. Many times, school staff needs help recognizing and understanding the symptoms
of TS and the associated disorders. This workshop shares details about common
accommodations and helps attendees learn to think of creative solutions. Please join us and
receive a free training disk complements of TSA!
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| Special Events |
Bowl-a-thon a Smashing Success
The Tidewater Support Group held its Third Annual Bowl-a-thon on
Saturday afternoon, July 11, 2009 at the AMF Lynnhaven Lanes in
Virginia Beach, Va. Twenty-five people attended and 15 people bowled,
raising $575.00 for TSAGW and the Tidewater Support Group.
Read More
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