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E-nnouncement from the National Bone Marrow Transplant Link -  September 2012
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Understanding & Coping with cGVHD Podcast 

 

Coping with cGVHD Webcast

 

BMT Spouse Webcast 


The Medical Aspects & Management of cGVHD in Children Webcast  
 

 Families Coping with cGVHD in Children Webcast 

 

The New Normal Video   

 

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Explore BMT

NMDP ExploreBMT

nbmtLINK has partnered with other patient-focused organizations to create ExploreBMT™, an easy-to-search online tool that provides direct access to information about blood and marrow transplantation.

 

Start your search today at ExploreBMT.org

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 


 

 

 

 

 

 

 

 

 

 

 

 

 

 

The National Bone Marrow Transplant Link (nbmtLINK) is pleased to inform you about the following programs, services, and publications. For your convenience, we've placed a number of helpful links on the left-hand sidebar.
Now available, NEW bi-lingual (Spanish/English) booklet from the nbmtLINK! 
Frequently Asked Questions Bone Marrow/Stem Cell Transplant: Frequently Asked Questions--Helpful Information for Patients, Caregivers & Families is now available. Patients and familes often have many questions when considering transplant as a treatment option. They are concerned about the risks and costs associated with their care and need unbiased information to help them make informed decisions. This booklet discusses the answers to 20 pertinent questions and includes a comprehensive resource listing.

Click here to order Frequently Asked Questions.
Become a Link Partner! 
 We invite your BMT Center or organization to join our distinguised list of LINK Partners to receive publications, recognition, and other special benefits. For additional information please Click here
Keep Up To Date on nbmtLINK Programs & Publications! 
 Please keep staff and your patients and families informed about nbmtLINK's programs and latest publications by printing out and distributing copies of our latest information brochure. Please click here for the brochure, or contact Cindy Goldman at cindygoldman@nbmtlink.org if you need further information. 
My Cancer Circle™

We would like to inform you about a new online resource from CancerCare that may be helpful to your patients and their loved ones.

My Cancer Circle™ is a simple, customizable online tool that helps organize a community of family members, caregivers, friends, and others who want to lend a hand. Through a Help Calendar, caregivers are able to enlist friends and family to sign up for tasks, including cooking dinner and offering rides to appointments. My Cancer Circle also encourages message and photo sharing among members.

To learn more, please visit mycancercircle.net or download the My Cancer Circle fact sheet

2012 GvHD National Symposium with Poster Session

Friday, November 2, 2012

Jointly Sponsored by Meredith A. Cowden Foundation and Case Western Reserve University

 

This conference is intended to raise awareness about Graft vs. Host Disease (GVHD), promote research to further our understanding of its cause, and review cutting edge approaches to prevention and treatment. The symposium will have two tracks: a scientifically rigorous one for physicians and practitioners, and a survivor track that will focus on BMT recipients and their families. Survivors and their families are free but they must pre-register.

 

Presented by Case Western Reserve University, Case Comprehensive Cancer Center

University Hospitals, Seidman Cancer Center

Cleveland Clinic, Taussig Cancer Institute

 

Embassy Suites Cleveland

5800 Rockside Woods Blvd.

Independence, Ohio

 

Registration

By Mail:        Seidman Cancer Center - CME

                   Attn: Christine Rhoads

                   11100 Euclid Avenue

                   Cleveland, OH 44106-5065

By Phone:     216-844-1675

By Fax:         216-844-7832

 

 


Reassurance, Understanding, and Support when you need them the most.

"Peer Support on Call" is a free service offered by the National Bone Marrow Transplant Link. Emotional support is available through one-on-one conversations with trained peer support volunteers who are bone marrow/stem cell transplant survivors, caregivers and marrow donors. Since they have been through the transplant experience themselves, they understand the patient's and caregiver's feelings and can provide an empathetic point of view.

One caregiver stated that "we really needed to hear the voice of a survivor" after experiencing their first Peer Support Call. A patient found his call from a Peer Support Volunteer "extremely helpful". In fact, he said that "whenever he is dealing with an emotional thing, he thinks back on" what the volunteer said to him. If you would like to request a phone call from a peer support volunteer, please call our office at 800-LINK-BMT (800-546-5268) and ask for Cindy Goldman, or email her at cindygoldman@nbmtlink.org .

We thank our Distinguished LINK Partners who Generously Support the Work of the nbmtLINK!

 

Barbara Ann Karmanos Cancer Institute · City of Hope · Dana-Farber/Brigham and Women's Cancer Center · Duke Medicine Adult Bone Marrow & Stem Cell Transplant Program · Fred Hutchinson Transplant Program at Seattle Cancer Care Alliance · Froedtert Hospital and the Medical College of Wisconsin · Henry Ford Transplant Institute · Loyola University Medical Center · Mayo Clinic Cancer Center · Memorial Sloan-Kettering Cancer Center · The Blood and Marrow Transplant Program at Northside Hospital · Oregon Health & Science University · Roswell Park Cancer Institute · Blood & Marrow Transplant Program, Department of Medical Oncology, Thomas Jefferson University & Hospitals, Kimmel Cancer Center· University Hospitals Seidman Cancer Center · University of Michigan Comprehensive Cancer Center · The University of Nebraska Medical Center and The Nebraska Medical Center · Vanderbilt Ingram Cancer Center · American Society for Blood and Marrow Transplantation · Be the Match · The General Motors Foundation · The Leukemia & Lymphoma Society · Meredith A. Cowden Foundation

 

For additional information about becoming a LINK Partner, please contact Myra Jacobs at 800-546-5268 myrajacobs@nbmtlink.org.

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