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Now available, NEW bi-lingual (Spanish/English) booklet from the nbmtLINK!
 Bone Marrow/Stem Cell Transplant: Frequently Asked Questions--Helpful Information for Patients, Caregivers & Families is now available. Patients and familes often have many questions when considering transplant as a treatment option. They are concerned about the risks and costs associated with their care and need unbiased information to help them make informed decisions. This booklet discusses the answers to 20 pertinent questions and includes a comprehensive resource listing.
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Coping with Chronic Graft Versus Host Disease: Telephone Education and Support
Group
Registration is currently open for a free 4-week Telephone Education and Support Group. (Group fills up fast, so register early!)
Coping with Chronic Graft vs. Host Disease (cGvHD) for the BMT Patient/Survivor & Caregiver is facilitated by Sandra Mitchell, PhD, CRNP, AOP, and Mike Krumlauf, RN, BSN, from the National Institutes of Health. The program will take place 4 consecutive Tuesday evenings starting October 2, 2012 through October 23, 2012 from 7:00 - 8:15 pm (EST) for 10-12 survivors and caregivers living and coping with the late effects of cGvHD.
The following topics will be discussed:
- Overview of chronic Graft versus Host Disease
- Understanding and Living with chronic Graft versus Host Disease
- Exploring Options for Improving Health and Well-Being
- Facing Forward: Developing Your Personal Plan for Managing chronic Graft versus Host Disease and Living Well
For additional information about the group or to register, contact Cindy Goldman at cindygoldman@nbmtlink.org or (800) 546-5268. This program is supported by educational grants provided by the Leukemia & Lymphoma Society,The Meredith A. Cowden Foundation, and Amgen, Inc.
It is important to note that these groups are not designed to substitute for medical advice or counseling. They are meant to promote discussion with other transplant survivors and caregivers to enhance positive coping. |
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Calling All Previous Participants in the cGvHD Telephone Education/Support Group!
Are you a former participant of our four-week Chronic Graft versus Host Disease Telephone Education/Support Group (cGvHD)?
Finding Peace, in the Midst of Uncertainty
Synonomous with the experience of surviving stem cell transplantation and coping with cGVHD is uncertainty: financial, physical, emotional, spiritual, and relational. The burden of uncertainty can weigh heavy on the mind and leave one in a constant state of stress and worry. Mind-body-spirit practices have been around for millenniums, helping people cope with stress and providing some respite with peace. Our focus for this alumni cGVHD support group session will be on meditation, relaxation, affirmations, and imagery practices, as a way to find peace in the midst of uncertainty
Thursday, September 13th, 2012
7:00 to 8:30 p.m. (EST)
Presenter:
Rick Dickens, LCSW-R
Mind/Body Project Coordinator
CancerCare
This "Alumni" session will reconnect 8-10 previous cGvHD support group participants. The session will be facilitated by Sandra Mitchell, PhD, CRNP, AOP and Mike Krumlauf, RN, BSN from the National Institutes of Health and will feature guest speaker Rick Dickens, LCSW-R of CancerCare.
For additional information about the group or to register, contact Cindy Goldman at cindygoldman@nbmtlink.org or (800) 546-5268. This program is supported by educational grants provided by the Leukemia & Lymphoma Society, The Meredith A. Cowden Foundation, and Amgen Inc.
It is important to note that these groups are not designed to substitute for medical advice or counseling. They are meant to promote discussion with other transplant survivors and caregivers to enhance positive coping.
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Join our List of Distinguished LINK Partners who Generously Support the Work of the nbmtLINK & receive free booklets!!
Barbara Ann Karmanos Cancer Institute · City of Hope · Dana-Farber/Brigham and Women's Cancer Center · Duke Medicine Adult Bone Marrow & Stem Cell Transplant Program · Fred Hutchinson Transplant Program at Seattle Cancer Care Alliance · Froedtert Hospital and the Medical College of Wisconsin · Henry Ford Transplant Institute · Loyola University Medical Center · Mayo Clinic Cancer Center · Memorial Sloan-Kettering Cancer Center · The Blood and Marrow Transplant Program at Northside Hospital · Oregon Health & Science University · Roswell Park Cancer Institute · Blood & Marrow Transplant Program, Department of Medical Oncology, Thomas Jefferson University & Hospitals, Kimmel Cancer Center· University Hospitals Seidman Cancer Center · University of Michigan Comprehensive Cancer Center · The University of Nebraska Medical Center and The Nebraska Medical Center · Vanderbilt Ingram Cancer Center · American Society for Blood and Marrow Transplantation · Be the Match · The General Motors Foundation · The Leukemia & Lymphoma Society · Meredith A. Cowden Foundation
For additional information about becoming a LINK Partner, please contact Myra Jacobs at 800-546-5268 myrajacobs@nbmtlink.org. |
