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Stay tuned for new bi-lingual (Spanish/English) booklet from the nbmtLINK!
 Bone Marrow/Stem Cell Transplant: Frequently Asked Questions--Helpful Information for Patients, Caregivers & Families will be available soon. Patients and familes often have many questions when considering transplant as a treatment option. They are concerned about the risks and costs associated with their care and need unbiased information to help them make informed decisions. This booklet discusses the answers to 20 pertinent questions and includes a comprehensive resource listing.
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Transplant Survivors Celebrating Second Birthdays
Transplant survivors celebrate two birthdays each year, the day they were born and the day of their transplant. We'd like to help you celebrate your "second birthday" by sending you a special card to commemorate the day. If you would like take part in the Celebrating Second Birthdays Program, please fill out the short online form or contact Cindy Goldman at cindygoldman@nbmtlink.org. |
Survivorship Tips During Hot Summer Days:
Excerpt from the Survivorship Guide for Bone Marrow/Stem Cell Transplant: Coping with Late Effects
 It's that time of year again! It's summer -- time to enjoy family barbecues, go swimming, and listen to your favorite band perform at an outdoor amphitheater. During hot summer days it is very important for BMT survivors, particularly those with chronic graft vs. host disease, to be extremely cautious when outside in the sun. Below is an excerpt from the Survivorship Guide for Bone Marrow/Stem Cell Transplant.
Caring for Your Skin and Joints
Radiation and skin GVHD, as well as some of the medications to treat GVHD, may make your skin more sensitive to the sun and more susceptible to dryness. Even long after treatment and after the GVHD is resolved, you may continue to experience skin sensitivity.
It is therefore important to:
- Regularly use a sunscreen with an SPF of 30 or more
- Avoid prolonged sun exposure and wear long sleeves, pants, and a hat
- Use an oil-based moisturizing lotion regularly, especially after bathing
- Avoid very hot showers and baths
- Use humidifiers to moisten the air in your home or office, particularly in cold winter climates
- Stretch regularly to maintain flexibility.
To learn about skin and joints, please read more from the Survivorship Guide. Click here. |
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Workshops for BMT patients, survivors, and caregivers in San Francisco, CA
Managing Difficult Emotions During Cancer Treatment
with Sarah Schneider, LCSW
Thursdays, July 19 & July 26, 5:30 - 6:45 p.m.
In this 2-part workshop, we will identify common emotions and reactions to treatment and discuss skills and strategies to manage these more effectively. Participants will also learn useful tools for self-care and find out about resources to help cope.
No charge. Open to patients in active treatment and their caregivers. Limited space available. To get the full benefit of the program, attendees are asked to attend both sessions.
Nutrition Know-How: Best Practices for Online Information, Programs and Apps
with Ari Kleiman, UCSF patient health librarian & Greta Macaire, MS, RD, CSO
Monday, August 13, 5:30 - 7 p.m.
This free seminar will offer you tips and strategies for finding trustworthy nutritional information and online programs. We'll demonstrate some helpful and recommended nutrition apps to help you select and monitor your nutrient intake. You'll also hear about our most highly recommended websites for health information, and find out how the UCSF Patient Health Library can help you.
Both workshops will be held at the UCSF Helen Diller Family Comprehensive Cancer Center, 1600 Divisadero Street, 3rd floor. For further questions or to register, contact the Cancer Resource Center at (415) 885-3693. |
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Join our List of Distinguished LINK Partners who Generously Support the Work of the nbmtLINK!
Barbara Ann Karmanos Cancer Institute · Children's Hospital of Michigan Blood and Marrow Transplant Program · City of Hope · Dana-Farber/Brigham and Women's Cancer Center · Duke Medicine Adult Bone Marrow & Stem Cell Transplant Program · Fred Hutchinson Transplant Program at Seattle Cancer Care Alliance · Froedtert Hospital and the Medical College of Wisconsin · Henry Ford Transplant Institute · Loyola University Medical Center · Mayo Clinic Cancer Center · Memorial Sloan-Kettering Cancer Center · The Blood and Marrow Transplant Program at Northside Hospital · Oregon Health & Science University · Roswell Park Cancer Institute · Blood & Marrow Transplant Program, Department of Medical Oncology, Thomas Jefferson University & Hospitals, Kimmel Cancer Center· University Hospitals Seidman Cancer Center · University of Michigan Comprehensive Cancer Center · The University of Nebraska Medical Center and The Nebraska Medical Center · Vanderbilt Ingram Cancer Center · American Society for Blood and Marrow Transplantation · Be the Match · The General Motors Foundation · The Leukemia & Lymphoma Society · Meredith A. Cowden Foundation
For additional information about becoming a LINK Partner, please contact Myra Jacobs at 800-546-5268 myrajacobs@nbmtlink.org. |
