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E-nnouncement from the National Bone Marrow Transplant Link -  June 2012
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Voices of Hope & Healing

 

Resource Guide 
 

 Caregivers' Guide 

 

 Survivorship Guide

 

Online Resources

Understanding & Coping with cGVHD Podcast 

 

Coping with cGVHD Webcast

 

BMT Spouse Webcast 


The Medical Aspects & Management of cGVHD in Children Webcast  
 

 Families Coping with cGVHD in Children Webcast 

 

The New Normal Video   

 

Support Services

Celebrate Your Transplant 

Request Peer Support 

 

 

 

Explore BMT

NMDP ExploreBMT

nbmtLINK has partnered with other patient-focused organizations to create ExploreBMT™, an easy-to-search online tool that provides direct access to information about blood and marrow transplantation.

 

Start your search today at ExploreBMT.org

 

   

 

 

 

 

 

 

  

  

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

  

 

 

 

 


 

 

 

 

 

 

 

 

 

 

 

 

 

 

The National Bone Marrow Transplant Link (nbmtLINK) is pleased to inform you about the following programs, services, and publications. For your convenience, we've placed a number of helpful links on the left-hand sidebar.
Would You Like to TalkPeer Support-Phone to Someone Who's "Been There"?

"Peer Support on Call" is a free service offered by the nbmtLINK. Emotional support is available through one-on-one conversations with trained peer support volunteers who are bone marrow/stem cell transplant survivors and caregivers. Since they have been through the transplant experience themselves, they can provide an empathetic point of view. If you would like to request a phone call from a peer support volunteer, please fill out our online form or call 800-LINK-BMT (800-546-5268). 

nbmtLINK is Looking for Volunteers in the Detroit Metropolitan Area 

The Southfield, Michigan office of nbmtLINK is looking for a volunteer that is familiar with computers and interested in helping us with some data entry, mailings, and other office tasks.  Our office is volunteer-friendly, and we would be very appreciative of your help.  Please email tiffanyrowe@nbmtlink.org if you are interested. 

The Tenth Annual Cancer Survivorship Series: Living With, Through & Beyond Cancer

CancerCare, in collaboration with the National Cancer Institute: Office of Cancer Survivorship and Office of Communications and Education, LIVESTRONG, American Cancer Society, Intercultural Cancer Council, Living Beyond Breast Cancer and National Coalition for Cancer Survivorship, is pleased to invite you to participate in the last part of a free, four-part workshop series.

 

Part IV of the series, "Managing Post-Treatment Neuropathy" will be held on July 17th from 1:30-2:30 pm Eastern Time. You can listen to this workshop on the telephone or via live streaming through the internet. This workshop is free - no phone charges apply.  However, pre-registration is required.  For more information, simply go to the CancerCare website, www.cancercare.org/connect or 

register here.
Earn money by participating in a research study!

Are you a bone marrow or stem cell transplant survivor or spouse of someone who has undergone a stem cell transplant?

 Couple 2

Take part in an important study examining the impact of bone marrow transplant on thinking, memory and attention!

  

The Behavioral Medicine Research Team at Eastern Michigan University is conducting a study on methods of evaluating how adult bone marrow or stem cell transplantation may affect memory, attention and thinking processes.     

 

  • We encourage persons and their partners over the age of 18 years who have had a bone marrow or stem cell transplant within the past three years (and who live within a 300 mile radius of Detroit) to sign up for participation!
  • Study participants will be asked to complete a series of brief questionnaires as well as memory and attention tasks on the computer and with a study administrator.
  • Participation will take approximately 1 hour to complete and each participant will be paid $25 for their time. 

The results of this study may benefit other transplant survivors through informing future investigations of cognitive functioning and rehabilitation programs.

 

To find out more about the study or sign up to participate, please contact the Principal Investigator, Bethany Gourley at bgourley@emich.edu  or 734-487-4987.  

 

This study has been approved by the Eastern Michigan University Human Subjects Review Committee. HSRC Approval # 110805.

Living On, Living Well:  A Day Retreat for Cancer Survivors in San Francisco, CA 

Saturday, June 23, 9:30a.m. - 4 p.m.

 

This day-long retreat will offer informational sessions by physicians and other UCSF health experts on how to navigate the period after active treatment into a post treatment phase of physical and emotional recovery.  The day will also include an exercise session, mindfulness activities, and a cooking class where participants will prepare and eat a nutritious lunch.  There will be ample time for questions and discussion.   Please dress comfortably in clothes that allow for movement. 

 

No charge.  Held at the UCSF Osher Center for Integrative Medicine, 1545 Divisadero Street, 5th floor.  Register with the Cancer Resource Center at (415) 885-3693.  Limited space available. 

Join our List of Distinguished LINK Partners who Generously Support the Work of the nbmtLINK!

 

Barbara Ann Karmanos Cancer Institute · Children's Hospital of Michigan Blood and Marrow Transplant Program · City of Hope · Dana-Farber/Brigham and Women's Cancer Center · Duke Medicine Adult Bone Marrow & Stem Cell Transplant Program · Fred Hutchinson Transplant Program at Seattle Cancer Care Alliance · Froedtert Hospital and the Medical College of Wisconsin · Henry Ford Transplant Institute · Loyola University Medical Center · Mayo Clinic Cancer Center · Memorial Sloan-Kettering Cancer Center · The Blood and Marrow Transplant Program at Northside Hospital · Oregon Health & Science University · Roswell Park Cancer Institute · Blood & Marrow Transplant Program, Department of Medical Oncology, Thomas Jefferson University & Hospitals, Kimmel Cancer Center· University Hospitals Seidman Cancer Center · University of Michigan Comprehensive Cancer Center · The University of Nebraska Medical Center and The Nebraska Medical Center · Vanderbilt Ingram Cancer Center · American Society for Blood and Marrow Transplantation · Be the Match · The General Motors Foundation · The Leukemia & Lymphoma Society · Meredith A. Cowden Foundation

 

For additional information about becoming a LINK Partner, please contact Myra Jacobs at 800-546-5268 myrajacobs@nbmtlink.org.

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