P.A.N.D.O.R.A. -  Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc.
P.A.N.D.O.R.A.'s & Lifelyme™ Newsletter
May 2010
May 2010

Inspiring Hope Through Awareness

May is a very special month for our communities.

Mother's Day is celebrated on May 9 this year.

We salute and give thanks to all the mothers around the world, especially those mothers who lovingly care for children with Chronic Fatigue Syndrome, Fibromyalgia and other NeuroEndocrineImmune (NEI) disorders. Their dedication and love inspire us everyday!

Another special day this month is May 12 - International Awareness Day for Neur
oEndocrineImmune Disorders.

P.A.N.D.O.R.A. is proud to support several Awareness Day events this year. Visit our website to see information on Awareness Day events.
FLORIDA: "Chronic Fatigue Syndrome Awareness Day Presentation and Discussion" - May 8

Dr. Nancy Klimas, speaker
photo courtesy: Robert Mayer

Nancy Klimas smiling
Saturday, May 8, 2010
12:30 pm Registration
1:00 pm - 3:00 pm Presentation

University of Miami Miller School of Medicine, Rosenstiel Medical Science Building
1600 NW 10th
Avenue, 3rd floor auditorium
Miami, Florida 33136

Cost: Free, Space is limited to 150
RSVP: Beth Goldberg or 305-243-3492

Parking: Park Plaza West Garage
Download PDF flyer
Sponsor: P.A.N.D.O.R.A., Inc.
Celebrate May 12 with P.A.N.D.O.R.A

Proclamations for Awareness Day

Columbus Proclamation
Columbus, Ohio Mayor Michael Coleman has issued a Proclamation Day letter declaring May 12 "P.A.N.D.O.R.A.'s Neuroendocrineimmune Disorders Awareness Day."

Murphy, North Carolina and Pompano Beach, Florida are also issuing proclamation day letters.

View Proclamations here...
Mark Emmins: Rocks 4 P.A.N.D.O.R.A.

Mark EmminsWe are grateful to Cue Entertainment for bringing Mark Emm
ins to our community and to our cause. Mark's musical talent can be another special voice to create awareness for our overall community.

Mark has already started raising awareness by creating the P.A.N.D.O.R.A. Twibbon on his Facebook profile!

Join Mark on Facebook
Petition to U.S. Secretary of Health

NEI Causes petitionJoin P.A.N.D.O.R.A. in asking U.S. Secretary of Health & Human Services, Kathleen Sebelius to meet with P.A.N.D.O.R.A. to ensure her support for aggressive and substantial funding for the NEI Center(TM) and other similar facilities throughout the U.S.

Sign the petition...
Steve Krafchick appointed to CFSAC

Steve KrafchickP.A.N.D.O.R.A. congratulates Steve Krafchick of Krafchick Law Firm for his recent appointment to the Advisory Board of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) by U.S. Secretary of Health Kathleen Sebelius.

He will be attending the CFSAC meeting on May 10, 2010 in WAshington D.C.

P.A.N.D.O.R.A. is proud to have nominated Steve to this prestigious position, and we know his professional background and expertise will be a fine addition and a remarkable enhancement to this distinguished committee.

We look forward to working with Steve on the pressing issues that affect the CFS-ME community now and in the future. P.A.N.D.O.R.A. as always, will continue to support the work of such an important committee to the neuroendocrineimmune disorders patient community. This is indeed a great accomplishment for our entire team!

Camera equipment needed for PSA

P.A.N.D.O.R.A. is seeking equipment donations to create and produce a Public Service Announcement (PSA) for its local South Florida regional area within and around Coral Gables, South Florida, where P.AN.D.O.R.A.'s headquarters are located.

The list of equipment and/or comparable equipment donations are as follows:
  • PowerMac G5
  • 1x Strobe light
  • 2x Soft box
  • 2x Light Umbrella
  • 1x Spot Light / Omni Light with Barn Door
  • 1x White Backdrop with stand
  • 1x Green (Chromakey) Backdrop with stand
  • Photo Camera DSLR
  • Laptops
To make a donation, please contact Marly Silverman at contact@pandoranet.info, call 954-783-6771.

For a financial donation, please go online at http://www.neicenter.com/donate.htm

All donations are tax deductible.
NEI Center: Our mission statement

The NeuroEndocrineImmune (NEI) Center™ is a community patient-driven grass roots project of P.A.N.D.O.R.A, in partnership with the Lanford Foundation-Lifelyme, Inc.

 NEI logo 2010

It is the first research center to incorporate biomedical engineering scientific and clinical research, and integrating patient computer aided disease diagnosis and treatment (CADDT) specifically designed for multi-system illnesses and complex diseases

To read the entire mission statement and for more information, go to
 P.A.N.D.O.R.A.'s Facebook Cause Page for the NeuroEndocrineImmune (NEI) Center™.
In This Issue
Awareness Day
CFS Awareness Day
Celebrate with P.A.N.D.O.R.A.
Awareness Day Proclamations
Mark Emmins Rocks!
Steve Krafchick appointed
Camera equipment needed
NEI Center: Our Mission Statement
Our Mission
facebook logo

FB screen shot
Agent for Change
Marly's Blog

Marly Silverman, Founder, P.A.N.D.O.R.A.
Mitch Pagerey Racing for P.A.N.D.O.R.A.
& NEI Center

Mitch pagerey car 3
Mitch Pagerey in car #89 with P.A.N.D.O.R.A. & NEI Center logos

Mitch Pagerey 3
Click here to see more photos of Mitch
Bringing Ryan Home

Ryan Michael Baldwin with Dog

Click on the image to join the "Bringing Ryan Home" Facebook Cause Page

Don't Dump It!
te It!

Click here for more info

.O.R.A. is going "Green"!

Donate your old cell phones, ink toners and ink cartridges and proceeds will benefit P.A.N.D.O.R.A.

In Memoriam

in Memoriam

In memorium
Click on image to join the Facebook Fans Page
YouTube logo
Twitter logo
eBay Giving Works
Buy or sell and donate to P.A.N.D.O.R.A
Ebay Giving Works Logo
NEI Center

NEI Center donate button high res
Contact Information

Join Our Mailing List
P.A.N.D.O.R.A.'s Mission

To be one strong voice for manyŠ . . .
  • Creating and Raising Community Awareness 
  • Advocating for Quality of Life Issues
  • Providing Support and Educational Resources
  • Establishing Partnerships in our worldwide community
  • Supporting Scientific Research
  • Encouraging Empowerment groups
  • Organizing Educational Medical & Patient Conferences

These goals will assist patients with neuroendocrineimmune disorders and their families in leading productive and fulfilling lives.

Built on Hope * Strong on Advocacy
Finding a Cure through Research

1 Voice - 1 Community - 1 Cause™