P.A.N.D.O.R.A. -  Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc.
P.A.N.D.O.R.A.'s & Lifelyme™ Newsletter
 NEWS FROM PANDORA
April 2010
April 2010
Mitche Banner 2
Racing for P.A.N.D.O.R.A. & NEI Center
Mitch Pagerey and Car #89


It's official! Mitch thumbs up

Celebrity race car driver and P.A.N.D.O.R.A. supporter, Mitch Pagerey
is proudly displaying the P.A.N.D.O.R.A. and NEI Center logos on his Car #89. Mitch is participating in the American LeMans Series presented by Yokohama. His next race is at the Toyota Grand Prix in Long Beach, California, April 16-18.
Special thanks to supporters of NEI Center as it awaits passage in New Jersey State Senate

Special thanks to the members of the New Jersey CFS Association for initiating a letter-writing campaign to New Jersey Governor Chris Christie and the NJ Senate in support of the passage of its Senate Resolution 20 (SR 20) which supports the NEI Center™ in the state.

Another special thanks to the Vermont CFIDS Association for writing a letter to the co-sponsors of SR-20, and a letter to the state of Vermont recommending a proclamation day supporting the NEI Center.

NEI Center press release












[click on image to read press release]

"Marly, this is very good news. All your hard work is paying off. The Center would be an asset to your well-established organization. Keep up the good work and good luck!
----Dr. Dharam Ablashi
HHV-6 Foundation
Founder, IACFS-ME International Association
Make a birthday wish for charity and support PA.N.D.O.R.A.'s Causes on Facebook

Through Facebook, P.A.N.D.O.R.A. now has several ways to raise awareness as well as funds using a Facebook "Cause" page. One of our Cause Pages allows your friends and family to support a nonprofit you care about in honor of your birthday.

Click below to see a sample "birthday wish" from Shari Blanchard.

Facebook Bday cause

"Thank you for all your help, for me and others.  You also make me and others feel like there is some help for us!!!
---JoyMarie Franklin
Port Angeles, WA
Camera equipment needed for PSA

P.A.N.D.O.R.A. is seeking equipment donations to create and produce a Public Service Announcement (PSA) for its local South Florida regional area within and around Coral Gables, South Florida, where P.AN.D.O.R.A.'s headquarters are located.

The list of equipment and/or comparable equipment donations are as follows:
  • PowerMac G5
  • 1x Strobe light
  • 2x Soft box
  • 2x Light Umbrella
  • 1x Spot Light / Omni Light with Barn Door
  • 1x White Backdrop with stand
  • 1x Green (Chromakey) Backdrop with stand
  • Photo Camera DSLR
  • Laptops
To make a donation, please contact Marly Silverman at contact@pandoranet.info, call 954-783-6771. For a financial donation, please go online at http://www.neicenter.com/donate.htm

All donations are tax deductible.
P.A.N.D.O.R.A. sponsors "Paint May Lyme Green" campaign
Lyme PSA filming
Day 1 of filming PSA with "Sonya"

May is Lyme disease awareness
month. To help raise awareness of Lyme disease across North America, P.A.N.D.O.R.A. has become the nonprofit sponsor of "Paint May Lyme Green" campaign,made up of three main parts; a Public Service Announcement, a Viral Campaign and a Visual Campaign.
Facebook Cause Page
Lyme green FB logo JPG

For more information, visit Lymenaide or contact:


Ashley van Tol
Executive Producer
(530) 386-6323
ashvantol@lymenaide.com


FLORIDA: "Does Chronic Pain Make the Brain Shrink?" - Dr. Roland Staud

Dr. Roland Staud, University of Gainesville, Florida 9th Annual Fibromyalgia Meeting
Saturday, April 24, 2010
2:00-4:00pm
McKnight Brain Institute
University of Florida
Room LG-101A, DeWeese Auditorium
RSVP: (352) 265-8901

Dr. Staud will present new research findings on the relationship between chronic pain and shrinking brain volume.
May 12: International Awareness Day for NeuroEndocrineImmune Disorders
Awareness Day 2010

NEI Center: Our mission statement

The NeuroEndocrineImmune (NEI) Center™ is a community patient-driven grass roots project of P.A.N.D.O.R.A, in partnership with the Lanford Foundation-Lifelyme, Inc.

 NEI logo 2010

It is the first research center to incorporate biomedical engineering scientific and clinical research, and integrating patient computer aided disease diagnosis and treatment (CADDT) specifically designed for multi-system illnesses and complex diseases


To read the entire mission statement and for more information, go to
 P.A.N.D.O.R.A.'s Facebook Cause Page for the NeuroEndocrineImmune (NEI) Center™.
In This Issue
Racing for Awareness
Response to NEI Center
Facebook Birthday Wishes
Camera equipment needed
Paint May Lyme Green
Dr. Roland Staud lecture
May 12: International Awareness Day
NEI Center: Our Mission Statement
Our Mission
JOIN US
facebook logo

FB screen shot
Agent for Change
Marly's Blog

Marly Silverman, Founder, P.A.N.D.O.R.A.
Mitch Pagerey Racing for P.A.N.D.O.R.A.
& NEI Center


Mitch pagerey car 3
Mitch Pagerey in car #89 with P.A.N.D.O.R.A. & NEI Center logos

Mitch Pagerey 3

Bringing Ryan Home

Ryan Michael Baldwin with Dog

Click on the image to join the "Bringing Ryan Home" Facebook Cause Page

Don't Dump It!
Dona
te It!
PANDORA;S RECYCLING FUND RAISER

Click here for more info

P.A.N.D
.O.R.A. is going "Green"!

Donate your old cell phones, ink toners and ink cartridges and proceeds will benefit P.A.N.D.O.R.A.

In Memoriam

P.A.N.D.O.R.A. NEI
in Memoriam

In memorium
Click on image to join the Facebook Fans Page
WATCH US
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JOIN US
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eBay Giving Works
Buy or sell and donate to P.A.N.D.O.R.A
Ebay Giving Works Logo
NEI Center

NEI Center donate button high res
Contact Information


Join Our Mailing List
P.A.N.D.O.R.A.'s Mission

To be one strong voice for manyŠ . . .
  • Creating and Raising Community Awareness 
  • Advocating for Quality of Life Issues
  • Providing Support and Educational Resources
  • Establishing Partnerships in our worldwide community
  • Supporting Scientific Research
  • Encouraging Empowerment groups
  • Organizing Educational Medical & Patient Conferences

These goals will assist patients with neuroendocrineimmune disorders and their families in leading productive and fulfilling lives.

Built on Hope * Strong on Advocacy
Finding a Cure through Research


1 Voice - 1 Community - 1 Cause™