Senate Resolution 20 will establish first research center dedicated to chronic immune disorders
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CORAL GABLES, Fl.-(13 MARCH 2010)-A resolution encouraging the establishment of the NeuroEndocrineImmune (NEI) Center™ , the first research center in the state of New Jersey dedicated to understanding and treating chronic neuroendocrineimmune (NEI) illnesses which includes Chronic Fatigue Syndrome and Fibromyalgia, is currently awaiting passage in the New Jersey State Senate.
Senate Resolution (SR) 20, sponsored by Senator Christopher "Kip" Bateman (R), Senate Deputy Conference Leader, and Senator Loretta Weinberg (D), Chair of the Senate Health Committee, cites studies that an estimated 20 million American adults and children suffer with NEIDs.
The economic impact and loss of worker productivity in the United States due to CFS/ME, alone, is estimated to be over $9 billion per year. Chronic illness represents 75% of all the health care costs in the U.S.
Assembly Resolution 202 passes unanimously
Late last year, a similar resolution unanimously passed the New Jersey State Assembly 78-0. "Having a research center...is essential to promoting research into the etiology of, and therapeutic interventions for neuroendocrineimmune disorders (NEIDs)," according to Assembly Resolution (AR) 202 which was sponsored by Assemblyman Upendra Chivukula (D), Deputy Speaker; Assemblyman Herb Conaway, Jr. (D), Chairman, Health Committee; Assemblywoman Connie Wagner(D), Vice-Chairman; and Assemblywoman Mary Pat Angelini (R), member of the Health Committee.  |
From Senator Loretta Weinberg (D)
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"It makes sense to locate the NEI center in New Jersey. As the nation's medicine chest, New Jersey is home to research institutions and private businesses that can cooperate to find a cure for these debilitating diseases."
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From Senator Kip Bateman (R)
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"I look forward to the passage of Senate Resolution 20, solidifying legislative support for the research center, and have high hopes that this will, in fact, be a great step forward toward finding answers for the sufferers of these debilitating diseases."
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State-of-the-art-facility
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To be based in
Newark, New Jersey, the NeuroEndocrineImmune (NEI) Center™ is a
community patient-driven project of P.A.N.D.O.R.A, (Patient Alliance
for Neuroendocrineimmune Disorders Organization for Research &
Advocacy, Inc) in partnership with the Lanford Foundation-Lifelyme™,
Inc.
The NEI Center™ is the first research center to
incorporate scientific and clinical research, quality in patient care,
and social services, all in one state-of-the art facility. The
establishment of The NEI Center™ is based on the philosophy that the
similarities in symptoms of neuroendocrineimmune disorders (NEIDs) are
the human body's response to similarities in the underlying
pathophysiologies that cause these disorders.
The cornerstone
of the NEI Center's mission is that discoveries and advances made in
any one of the NEIDs will be applicable and beneficial to other NEIDs,
thereby bringing medical researchers closer to a cure.
At its inception, the NEI Center™ will include research of the following disorders/illnesses:
- Chronic Fatigue Syndrome (CFS)
- Fibromyalgia (FM)
- Gulf War Syndrome or Illness (GWS/I)
- Multiple chemical sensitivity (MCS) and other associated bacterial and viral illnesses
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"We urge passage of SR 20"
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"On behalf of P.A.N.D.O.R.A. and Sandi Lanford
from the Lanford Foundation-Lifelyme™, Inc., we urge the New Jersey
legislators to pass SR 20 and be part of an amazing and pivotal moment
in the history of the neuroendocrine immune disorders communities. Your
vote would demonstrate a caring commitment to a community of patients
who for the first time can look forward to a brighter future."
Marly Silverman, CFS and fibromyalgia patient
Founder, P.A.N.D.O.R.A., Inc.
"The passage of
SR 20 would be a moral and political victory for millions of
individuals stricken with neuroendocrineimmune disorders who have been
living far too long without the compassionate support, research and
treatment options they deserve."
Veny
Musum, chairman of the NEI Center who was diagnosed with chronic lyme
disease in 2004 along with his wife, Patricia.
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NEI center set to open by 2012
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SR 20 after approval will be recorded by the New Jersey Secretary of State.
The NEI Center founders are already preparing fundraising efforts to make the Center operational by late 2011-early 2012.
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Petition for NEI Center funding
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Join in asking U.S. Secretary of Health to meet with P.A.N.D.O.R.A. & to provide funding for the NEI Center.
Click on image or link below to sign the petition on our Facebook Cause Page. |
NEI Center: Our mission statement
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The NeuroEndocrineImmune (NEI) Center(TM) is a community patient-driven grass roots project of P.A.N.D.O.R.A. in partnership with the Lanford Foundation-Lifelyme, Inc.
It is the first research center to incorporate
biomedical engineering scientific and clinical research, and integrating patient
computer aided disease diagnosis and treatment (CADDT) specifically designed
for multi-system illnesses and complex diseases.
To read the entire mission statement and for more information, go to P.A.N.D.O.R.A.'s Facebook Cause Page for the NeuroEndocrineimmune (NEI) Center™.
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