P.A.N.D.O.R.A. -  Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc.
P.A.N.D.O.R.A.'s & Lifelyme™ Newsletter
March 2010
March 2010

NEI Center™ website launches!

NEI Center home pageThe website for the NeuroEndocrineImmune (NEI) Center™ is now live! The NEI Center™ is a project of P.A.N.D.O.R.A., Inc. in partnership with the Lanford Foundation - Lifelyme, Inc. The NEI Center™ will be the first research center of its kind.

NEI Center About pageTake a tour of the site today at www.neicenter.com. We welcome your feedback!
Intersports Racing picks Mitch!
Mitch Pagerey Intersport photoCongratulations to celebrity race car driver Mitch Pagerey!

Mitch, who has thrown his support behind P.A.N.D.O.R.A. and the NEI Center, has been named by Intersport Racing to drive its Le Mans Prototype Challenge for 2010.

Read more on Mitch here...
CFS Pediatric Conference: "Ryan Baldwin case is ominous wake-up call"
Ryan Baldwin coverOn February 28, P.A.N.D.O.R.A. released an official statement in response to an article detailing the ordeal of CFS patient Ryan Baldwin and his family published in the 2/24 issue of the Asheville Mountain Express.

Since releasing the statement, P.A.N.D.O.R.A
. has received numerous emails and calls in support of its planned CFS Pediatric Conference and call for committee members, as mentioned in the statement. Many of the emails came from other parents of children with CFS who are interested in participating in the conference committee.

For additional information on P.A.N.D.O.R.A.'s CFS Pediatric Conference committee, please contact Marly Silverman.

Read P.A.N.D.O.R.A.'s statement here.
Make an impact with eBay Giving Works

Do you have an item to sell or buy on eBay? Shop, sell and/or donate ebay gw logotoday - all for a great cause!    

Every time you buy an item from P.A.N.D.O.R.A.'s eBay page, the seller will donate 10%-100% of of the final sale price to P.A.N.D.O.R.A.

Previous eBay items donated to P.A.N.D.O.R.A. have included a one-hour visit or phone consultation with Dr. Nancy Klimas, an internationally recognized immunologist based in Miami, who normally has a 3-year waiting list.

Thank you to all our previous eBay donors and buyers!

Ms Magazine: "It's not in your head"

Ms Magazine cover winter 2010The Winter 2010 issue of Ms. Magazine includes an article by Dr. Nancy Klimas, "It's not in your head," about the recent breakthrough study suggesting that chronic fatigue syndrome is caused by the XMRV virus.

The Winter issue is currently available in news stands.

Dr. Klimas also wrote another article about CFS for Ms.Magazine in the Summer 2006 issue, (click on link below).

"Wake-Up Call: Hopeful new research shows that chronic fatigue syndrome may have a genetic basis"
XMRV Lecture with Dr. David Bell now online

Dr Bell Q&A lecture

Through a sponsorship by the Barborka Family, Dr. David Bell's lecture on the XMRV virus was recorded on Jan 15, 2010.

Watch the Q&A portion on P.A.N.D.O.R.A.'s YouTube page or click on the image above.

We are grateful to the Barborka Family for this special gift to our overall community.

Dr. Bell will be our key note speaker on CFS pediatric issues at P.A.N.D.O.R.A.s upcoming conference in Asheville, North Carolina on Pediatrics and Family Conference on Neuroendocrineimmune Disorders.

NEI Center: Our mission statement

The NeuroEndocrineImmune (NEI) Center™ is a community patient-driven grass roots project of P.A.N.D.O.R.A, in partnership with the Lanford Foundation-Lifelyme, Inc.

 NEI logo 2010

It is the first research center to incorporate biomedical engineering scientific and clinical research, and integrating patient computer aided disease diagnosis and treatment (CADDT) specifically designed for multi-system illnesses and complex diseases

To read the entire mission statement and for more information, go to
 P.A.N.D.O.R.A.'s Facebook Cause Page for the NeuroEndocrineImmune (NEI) Center™.
P.A.N.D.O.R.A.'s Mission

To be one strong voice for many© . . .
  • Creating and Raising Community Awareness 
  • Advocating for Quality of Life Issues
  • Providing Support and Educational Resources
  • Establishing Partnerships in our worldwide community
  • Supporting Scientific Research
  • Encouraging Empowerment groups
  • Organizing Educational Medical & Patient Conferences

These goals will assist patients with neuroendocrineimmune disorders and their families in leading productive and fulfilling lives.

Built on Hope * Strong on Advocacy
Finding a Cure through Research

1 Voice - 1 Community - 1 Cause™

In This Issue
NEI Center website launches!
More on Mitch!
CFS Pediatric Conference Committee now forming
eBay giving works
"It's not in your head"
Dr. Bell video on XMRV
NEI Center: Our Mission Statement
Our Mission
facebook logo
Agent for Change
Marly's Blog

Marly Silverman, Founder, P.A.N.D.O.R.A.

"Ryan Baldwin case is an ominous wake-up call"
Bringing Ryan Home

Ryan Michael Baldwin with Dog

Click on the image to join the "Bringing Ryan Home" Facebook Cause Page

Don't Dump It! Donate It!

.O.R.A. is going "Green"!

Did you ever wonder what to do with your old cell phones? How about your ink toners and ink cartridges?

them to P.A.N.D.O.R.A.!

Through the assistance of Dade Recycling, Miami, Florida, we are participating in a fundraiser
recycling program that will benefit our environment by reducing some of the excessive and toxic waste found in our landfills.


Pro-Cleaners & Alterations
914 S. Pompano Parkway
Pompano Beach
P.A.N.D.O.R.A., Inc. (Business Office)
255 Alhambra Circle, Suite 715
Coral Gables
Volunteer Help Line: 954-783-6771
Center for Individual & Group Counseling
7301 W. Palmetto Park Rd., Suite 205A
Boca Raton
Drop off Hours: T, W, Th 10am-5pm

In Memoriam

in Memoriam

In memorium
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FT. Lauderdale Pompano Beach
Neuroendocrineimmune Disorders Empowerment Group

The Center for Independent Living of Broward

4800 N.State Road Bldg. F Suite 102
Lauderdale Lakes, Florida 33319

ALWAYS held the 2nd Tuesday of each month

Next meeting:
March 9, 2010
1:30 pm-2:30 p.m 2:30 pm -3:00 pm

Click here for other S.Florida and nationwide support groups.

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