Advocates Extraordinaire™: Show me the love!
|
As an all-volunteer organization, P.A.N.D.O.R.A. owes much of its accomplishments to the help and dedication of our Advocates Extraordinaire. To celebrate Valentine's Day, we want to take this special time to show our AE's some love!
Here are just some of them:
 Denise Lopez-Majano, mother of two children with CFS/FM, shown here at
the CFSAC meeting in Washington D.C. last October. (Click on image to
watch Denise on YouTube) |
Advocates Extraordinaire™ on Social Media
|
Social Media Mavens: 
Social media offers great communication tools for the chronic pain community, but keeping up with posts and "tweets" can be time consuming. Fortunately, our "voices" behind our social media efforts on Facebook and Twitter, have been keeping our community lively and abuzz with news.
Special thanks to Mary Ann Parker (pictured ), Jill Serrato and Susan Cue-Sugman.
Thank you for all that you do! |
Become an Advocate Extraordinaire™!
|
 The Advocates Extraordinaire™ program is a patient community project of P.A.N.D.O.R.A. and the Lanford Foundation-Lifelyme™ which seeks to enhance public awareness, patient and medical educational efforts, as well as long-term fund raising initiatives for the NEI Center.
AEs from around the world can use the AE logo on personal business cards, Facebook pages, on e-mail signatures and/or when corresponding to government and health officials in their respective countries.
To apply as an Advocates Extraordinaire™, send an email to Marly Silverman. |
Racing for Awareness
|
 Celebrity race car driver Mitch Pagerey, who drove car No. 23 at the 2010 Rolex at Daytona last January 31, has thrown his support behind P.A.N.D.O.R.A. and the NEI Center. Watch for more upcoming news of Mitch and his car, which will soon be sporting the P.A.N.D.O.R.A. logo.
Go Mitch!
|
Ryan Baldwin Reunited with family!
|
 Throughout 2009, P.A.N.D.O.R.A. along with 23 other patient advocacy non-profit organizations, wrote letters and petitioned North Carolina Governor Bev Perdue, NC State Legislators and NC Federal legislators on behalf of 16-year-old CFS patient Ryan Baldwin and his family. The county had removed Ryan from his family, alleging that his parents have not provided him with "mental health care and access to a pediatrician".
Last Thanksgiving, Ryan was finally reunited with his family!
We are grateful to Pat Fero, from the Wisconsin CFS-ME Association for calling our attention to the plight of this courageous family.
|
XMRV Lectures draw large audiences
|
On Jan.22, Prohealth and the HHV6 foundation hosted a lecture by Dr. Judy Mikovits on the XMRV retrovirus. Over 3,000 viewers watched the live video presentation.
Click here or on the image (right) to view Dr. Mikovits' presentation.
|
Dr. David S. Bell
|
Another lecture on XMRV was hosted in southern California on January 15 by the Barborka Family featuring Dr. David S. Bell, a leading expert and one of the first medical professionals to correctly diagnose CFS in the U.S.
We would like to thank everybody involved for making all information publicly available
|
NEI Center: Our mission statement
|
|
The NeuroEndocrineImmune (NEI) Center™ is
a community patient-driven grass roots project of P.A.N.D.O.R.A, in
partnership with the Lanford Foundation-Lifelyme, Inc.
It is the first research center to incorporate
biomedical engineering scientific and clinical research, and integrating patient
computer aided disease diagnosis and treatment (CADDT) specifically designed
for multi-system illnesses and complex diseases.
To read the entire mission statement and for more information, go to P.A.N.D.O.R.A.'s Facebook Cause Page for the NeuroEndocrineImmune (NEI) Center™.
|
P.A.N.D.O.R.A.'s Mission
|
To be one strong voice for many© . . .
- Creating and Raising Community Awareness
- Advocating for Quality of Life Issues
- Providing Support and Educational Resources
- Establishing Partnerships in our worldwide community
- Supporting Scientific Research
- Encouraging Empowerment groups
- Organizing Educational Medical & Patient Conferences
These
goals will assist patients with neuroendocrineimmune disorders and
their families in leading productive and fulfilling lives.
Built on Hope * Strong on Advocacy
Finding a Cure through Research
1 Voice - 1 Community - 1 Cause™
| |
|
|
|
NEW MEETING LOCATION!
|
FT. Lauderdale Pompano Beach
Neuroendocrineimmune
Disorders Empowerment
Group
The
Center for Independent Living of Broward
4800 N.State Road Bldg. F Suite 102 Lauderdale Lakes, Florida 33319
ALWAYS held the
2nd Tuesday of each
month
Next meeting: February 9, 2010. 1:30 pm-2:30 p.m 2:30 pm -3:00 pm
Click here for other S.Florida and nationwide support groups.
|
Don't Dump It! Donate It!
|
P.A.N.D.O.R.A. is going "Green"!
Did
you ever wonder what to do with your old cell phones? How about
your ink toners and ink cartridges?
Donate them
to P.A.N.D.O.R.A.!
Through the assistance of Dade Recycling,
Miami, Florida,
we are participating in a fundraiser recycling program that will benefit
our environment by reducing some of the excessive and toxic waste found
in our landfills.
DROP-OFF SITES
(Florida)
Pro-Cleaners & Alterations
914 S. Pompano Parkway
Pompano Beach
954-975-4735
P.A.N.D.O.R.A., Inc. (Business Office)
255 Alhambra
Circle, Suite 715
Coral Gables
305-441-0070
Volunteer Help
Line: 954-783-6771
www.pandoranet.info
Center for Individual & Group Counseling
7301
W. Palmetto Park Rd., Suite
205A
Boca
Raton
561.544.8889
Drop off Hours:
T, W, Th 10am-5pm
|
In Memoriam
|
NEW!!!
P.A.N.D.O.R.A. NEI
in Memoriam
Click on image to join the Facebook Fans Page
|
JOIN US
|
|
JOIN US
|
|
JOIN US
|
|
|
|
