Out of thousands of charities across the nation, the Sturge-Weber Foundation was nominated and selected to be part of the 2012 Chase Community Giving program!   

With your help, the SWF can become one of the  top 196 charities with the most votes and will receive between $10,000 and $250,000!

You have the opportunity to make a meaningful difference for the future of Sturge-Weber Foundation programs by voting!  Voting is open for a short time - September 6th-19th, so now is the time to cast your vote and spread the word about this opportunity to your friends and family. 

It is more important than ever that we take advantage of the amazing opportunity this program presents to the SWF.   Please, cast your vote and share the opportunity with your friends, family, co-workers - your entire network!   

 Click Here or on the picture above and vote today!

On Facebook?  Check it out under SWF Events!     

PS:  When you click on the link or the picture, it may take more than a few seconds for the page to display, please don't close out of it!  Thanks!    

Calling everyone with Sturge-Weber syndrome to volunteer to participate today in the Brain Vascular Malformation Consortium (BVMC) research initiatives!! We still need over 100 participants to be consented and to register with the BVMC Sturge-Weber syndrome project's Aim 1.

It's now even easier with telephone (oral) consent and screening. We also need volunteers to donate skin tissue samples from the affected port wine birthmark area and from a non affected portion of skin (usually taken behind the ear or in the least conspicuous area).

Please email Anne Howard today to  volunteer to be a Champion for a Cure at ahoward@sturge-weber.org. Thank you in advance for actively working towards improved healthcare and quality of life for those we love and support!

The Sturge-Weber Foundation was honored to be selected for a third year to be part of the New Balance Falmouth Road Race Numbers for Non-Profits program. This is Falmouth's 40th running of the race and we appreciate recieving 10 numbers this year!

We are also thankful to have Cynosure as our Team Sponsor. 

This fantastic team of runners have raised over $88,000 for the SWF over the past 3 years - this year raising over $35,000! Jessica Melo and Pam McIntyre are two moms connected to the SWF through their sons, each affected by Sturge-Weber syndrome. Each year they do a fantastic job recruiting and motiviating their runners and we are truly grateful. We welcome back Kevin Melo, Kristi Callagahan and Helen Collins each participating for a third year. We also welcomenew team members, Chris Marino, Kathleen Porter, Michele O'Connor, Lesley Bouvier and Tom Pereira.  Read more

• Did you know the SWF is approaching its 25th anniversary?  Simply amazing!  As we grow, sometimes records get outdated or new information has not been shared.  In an effort to provide the best referrals possible and include your doctor(s) on research updates and other information shared by the SWF Medical Advisory Board, we are requesting the following information about your Dermatologist, Neurologist and Ophthalmologist: Name, Specialty, Address, Phone Number, Email, Web Address. (If they do have a web address, we should be able to get all the information. Please send this information to swf@sturge-weber.org
• Brain Vascular Malformation Consortium SWS Research - did you sign up? 
• Skin Advocate iPhone Application- did you pass the information on to your doctor(s)