Have you benefited from the information, education, friendly support, and encouragement you received from the Sturge-Weber Foundation?  Don't keep it a secret.

 Have you shown Branching Out to a neighbor or relative or have you given brochures or Check It Out cards to your doctor, employer or church friends?  Keep that good feeling moving along.

Let's be Partners and Maintain the Momentum.

AWARENESS. EMPOWERMENT. RESEARCH.

A rare disease, a small number of individuals affected, for a lifetime.  Together we can make a difference.  Join us to improve services and understanding of a birthmark many have never heard of yet.  We need your voice to be heard around the world; hope starts with you. 

Every SWF member can do something during Sturge-Weber Foundation Awareness Month!

Each May, we ask our members to re-dedicate themselves and focus their attention on helping create awareness of SWS/PWB/KT in any way possible.  Your investment in The Sturge-Weber Foundation makes a difference now and in the future. 

Check out the Month of Awarenss Page on the SWF website to get ideas of how you can raise awareness and/or funds today! Below are a few highlights featured on the website.

Invite family, friends and neighbors for a Dine-In party at your house. Set a suggested donation amount per guest with proceeds to benefit The Sturge-Weber Foundation. Check out ideas below:

• Have a barbecue! Invite the whole neighborhood and ask for a dinner donation, you set the price. Yes, they can bring side dishes and desserts to make your BBQ complete.
• Invite some relatives over for a steak dinner-$15 - $50 for per person. Pasta night! Keep the noodles coming for your own $10 never-ending bowl.
• Not one for dinner? Host dessert! Throw together some $5 ice-cream sundaes or bake some variously priced cakes and cookies. Don't forget the milk!
• Hold a movie night in your living room with a minimal donation for popcorn, chips, candy and sodas.

What to do:                 

• Decide what your tasty treat of choice will be and create invitations. You can do this by e-mail, post, telephone-however you like! Don't be afraid to get creative.
• Contact the SWF and let us know if you are participating. We will send you brochures to share with your guests to help spread awareness.
• Enjoy your event! Make it so much fun that it can become an annual tradition during Month of Awareness
• Collected donations: Please don't mail cash to the SWF-please write a check made payable to The Sturge-Weber Foundation for the amount of money raised and send it to:  The Sturge-Weber Foundation, P.O. Box 418, Mt. Freedom, NJ  07970
• Don't forget to take pictures! Share them with us by emailing them to bayers@sturge-weber.org so they can be used in our 'Branching Out' magazine or on the website

Questions? Contact Bonnie Ayers, bayers@sturge-weber.org or 973-895-4445 x 106

• Month of Awareness Poster and/or Month of Awareness Flyer:   Ask your workplace, school, physician and place of worship to post it.
• Create a Firstgivng page to share your story and raise funds during Month of Awareness at www.firstgiving.com/swf
• Be a champion for the cure!  Please send your Brain Imaging Reports for us to add to your registry data.  Help us collect the data on SWS that we need by emailing them to swf@sturge-weber.org, faxing them to 973-895-4846 or mailing them to P.O. Box 418, Mt. Freedom, NJ  07970.
• Make a donation today at www.sturge-weber.org/donate.  
• Read the complete list of ideas now! 

Thanks in advance for getting involved!

• Did you know the SWF is approaching its 25th anniversary?  Simply amazing!  As we grow, sometimes records get outdated or new information has not been shared.  In an effort to provide the best referrals possible and include your doctor(s) on research updates and other information shared by the SWF Medical Advisory Board, we are requesting the following information about your Dermatologist, Neurologist and Ophthalmologist: Name, Specialty, Address, Phone Number, Email, Web Address. (If they do have a web address, we should be able to get all the information. Please send this information to swf@sturge-weber.org
• Brain Vascular Malformation Consortium SWS Research - did you sign up? 
• Skin Advocate iPhone Application- did you pass the information on to your doctor(s)