|
|
|
Annual Conference
This is now booked at the Holiday Inn in Runcorn for Saturday 20th April.
Don't be alarmed by the steps shown on this picture - there is a ramp, and the entrance into the Conference Suite is level! Professor Mary Reilly has confirmed her attendance and will be lead speaker - we will also be having workshops in the afternoon, so far, we have an Orthotist, a professional De-clutterer and with a bit of luck, Canine Partners! We have been able to reduce the costs quite signficantly for yourselves - basically, the hotel is cheaper all round! If you want to get in early, you can download a booking form from here, but remember, the Conference mailing goes to all in January. The only drawback is there are a very limited number of fully accessible bedrooms - unlike the Hilton in Coventry, full-time wheelchair users won't be able to manage in a standard room. Please only request an accessible room if you absolutely must have one and we will try to allocate them as fairly as possible.
|
|
Southampton Muscle Workshop -
Back to School
The Muscular Dystrophy Campaign would like to invite all parents living in or around Southampton to our next muscle group meeting. With education squarely back in the country's periphery the charity has decided to theme the meeting 'Back to School'.
The workshop will be an opportunity to talk about educational issues, growing up with muscular dystrophy or a related condition, options for the future and mentoring. Lilly Gyergyak, a Paediatric Neurology Nurse, will be speaking as well the inspirational John Hastie, the man behind the awarding winning film 'A Life Worth Living', which tells the story of one mans journey to meet remarkable Duchenners who are all living productive, creative and fulfilling lives.
With the changing landscape of the education system, the meeting is aimed at supporting and advising families about their child's education and how to manage their condition during this defining period in their lives.
You will also hear about the campaign work of the charity, fundraising opportunities in the area, and have the opportunity to share experiences with other individuals and parents live with a neuromuscular condition.
The details of the meeting are:
Friday 31st August 2012: 1pm-3pm, Holiday Inn Express Southampton, Botley Road, West End, Southampton SO30 3XA
The venue is wheelchair accessible and there is free parking.
New members are encouraged to come along!
If you are keen to attend please contact the Muscular Dystrophy Campaign at:
020 7803 4808
d.moore-crouch@muscular-dystrophy.org
|
|
Cake, Muffin and Tea Parties
We raised the best part of £2,000 from Tea Parties last year, so if you didn't have a go last year, why not give it a try this year? All the resources are available for download from www.cmt.org.uk/Teaparty.php or you can request a pack from me as usual.
Remember, the Party can be as large as you can cope with, or small and intimate with a handful of friends. You're not just raising money, but raising awareness too!
Give it a go!!
|
|
YOUNG PEOPLE'S WEEKEND 2012
Don't forget you can book NOW for the next YPW event at Bendrigg Lodge, Kendal on 26th-29th October. Email Karin at karin@cmtuk.org.uk for further information. The lower age limit is 12 and the cost will be £45. You can download forms and information at http://www.cmt.org.uk/ypw-events.php.
If you'd prefer me to send you forms in the post, just email or phone and I can do that, without any problem. We also have a small fund, kindly provided by a member, to assist with travelling expenses - please do ask us about how we might be able to help with this.
|
|
Scottish Conference
BOOKINGS ARE NOW OPEN! Please send in your bookings by 1st September to enjoy a smaller, but just as perfectly formed, Conference at the Hilton Hotel in Strathclyde, on Saturday 15th September.
All members north of the border should have received their booking form by now, but you can come no matter where you live. Download the booking form from here! |
|
Myelin Masquerade
My daughter, Catherine, has decided to try her hand at major fundraising next year, and is organising a Masquerade Ball/Dinner/Dance in Bournemouth to kick off Awareness Month 2013. The date for your diary is Saturday 7th September, the venue is the Highcliff Marriott Hotel in Bournemouth , the cost is £45 per head, and all funds raised will come to CMT United Kingdom.
If you're interested in finding out more, please email Catherine at myelin-masquerade@hotmail.co.uk or go to www.myelinmasquerade.com - the website is still under construction, so information is a bit sketchy, but as plans progress, more information will appear!
And for those of you further north, there is ANOTHER Ball being organised by a member in Nottingham. The date (provisionally) is Saturday 11th May, at the Collingtree Golf Club in Nottingham. At present, I don't know any further details, but please contact Terry Synnott on telstar.llp@googlemail.com for further information.
|
Justgiving Pages
If you can spare any support for our wonderful fundraisers, just go to www.justgiving.com/cmt to see all the latest active Justgiving pages for us - new ones are constantly being created all the time.
You can also donate to us via Text, through JustTextGiving Just text CMTK01 to 70070 + the amount of your donation. That will make a donation to our General Fund; for research, text CMTK03, and for the YPW Fund, CMTK02
|
 Awareness Month
It's not too late to submit your name and story for a case study for Awareness Month - go to http://www.surveymonkey.com/s/NS8GSXS
Many thanks - it really does make a huge difference if the press have a local story. FLYERS - We've decided NOT to send you all a poster or flyers to distribute this year, to save money on postage etc, but you can download them from the website now. You can find them at
Or, of course, we can still post supplies to you, if you're worried about the cost of ink jet cartridges - just email and let me know how many you'd like - and whether you want flyers (like the one above) or posters.
|
|
 SUBSCRIPTIONS
Please help us keep running smoothly by ensuring that your membership renewal is returned to us promptly - saving us time and money in remind you. Make it easier by paying by direct debit- download a Direct Debit Mandate here.
|
|
Christmas is a-coming....
|
|
DONATIONS don't have to just be in money, you know! Have you thought about sending in any unused Tesco vouchers (providing they haven't expired)? We can exchange them for raffle prizes or other goodies to use in fundraising (or YPW) events.
Don't forget we also collect used postage stamps (trimmed, please), inkjet/laser cartridges and old mobile phones. We can send you bags for cartridges and phones - just ask!
|
|
|
|
|
Membership of CMT United Kingdom
So what are the benefits of membership?
Access to our members only section of the CMT website with its huge library of publications
Three editions of our full colour magazine. ComMenT, per year
Monthly e-ComMenT's with lots of extra news.
Local groups around the country
Local contacts - there are almost 30 members around the country who are happy to talk to you by phone or by email - find the list on the website in the Member's Area
Discounted attendance at our fantastic Annual Conference - next one on 21st April 2012 at the Hilton Hotel, Coventry.
And all this for only £20 per year, or £25 for families!
Join at www.cmt.org.uk - membership is free for the first year for new members! |
| Social Networking
|
|
