The national support group for people with Charcot-Marie-Tooth  

    

September 2011
CMT United Kingdom E-ComMenT

Greetings!

  

I never did get to send that E-ComMenT I promised after the last one.... oops!!  Never mind!

 

HAPPY AWARENESS MONTH, folks!  How are YOU celebrating, or coming out of the closet, or spreading the love?

 

I'll probably be sending more of these updates than usual this month, as we're made aware of publicity happening and tea-parties going on!  We're not spamming, I promise!

 

Karen

 

 
In This Issue
Awareness Month Publicity
Facebook
Publicity So Far
Dates for your Diary
Benefits of Membership
Social Networking
AWARENESS MONTH PUBLICITY
 
Thanks to everyone who responded to our plea for your stories and case histories - Kate was flooded with them!  Please do keep them coming, because we never know quite what a newspaper or magazine may ask for!  You can send them to me, and I'll forward them, or straight to Kate at [email protected]

Facebook    

 

Like it or loath it, I think social media sites like Facebook are here to stay and have become a huge part of our day to day interactions with each other.

 

Thank you SO much to all our members who have already flooded Facebook with their personal message, links to our website and Facebook page for Awareness Month.  We really need to keep the momentum going and make sure that everyone hears about CMT!

Awareness logo, version 2

 

 Many of you are using this logo as your profile picture and encouraging your non-CMT friends to do the same is an easy, painless way of spreading awareness.... hopefully, we can turn Facebook pink and blue over the next month.

 

Publicity So far.....              

 

I was interviewed "live" for Preston FM on Tuesday 30th August.  I'm going to email them and see if I can obtain a recording - not that I'm sure that anyone would want to listen to me waffling ......!

Preston FM

 If anyone spots anything relating to Cake Muffin and Tea Parties, Awareness Month, CMT or anything else related in the press, please let me know, and we'll try to give you the links here.

Dates for your Diary

September - AWARENESS MONTH!!!

Magical Muscle

Magical Muscle - 12th September

 

Show being held on Bournemouth Pier Theatre at 8pm - all proceeds to CMT United Kingdom!!  http://www.thebournemouthpier.com/magicalmuscle.html - and the link from that page to TicketMaster is now working, so tickets can be bought online!  Yippee!!!

 

Young People's Weekend - 28th-31st October
You can download booking forms/medical consent form and information from here.   This is available to kids between 12 and 20(ish) and there are a very limited number of places.  Book now!!!   Still a few places left - email Karin at [email protected] for more info!

Family Conference - 5th/6th November

You can download booking forms and a draft programme from here. 

All bookings should be received by 14th October, and places will be allocated on a first come-first served basis!  (Still plenty of places)

 

Membership of CMT United Kingdom 
 

 

So  what are the benefits of membership?

 

 

Access to our members only section of the CMT website with its huge library of publications

Three editions of our full colour magazine. ComMenT, per year 

 Monthly e-ComMenT's with lots of extra news. 

Local groups around the country

Local contacts - there are almost 30 members around the country who are happy to talk to you by phone or by email - find the list on the website in the Member's Area

Discounted attendance at our fantastic Annual Conference - next one on 21st April 2012 at the Hilton Hotel, Coventry. 

 Access to our freephone helpline !
And all this for only �20 per year, or �25 for families!  
Join at www.cmt.org.uk - membership is free for the first year for new members!
Social Networking

 

 

Find us on Facebook

 

Follow us on Twitter
  
View our photos on flickr
  
We'll keep you updated as and when things happen - no doubt this won't be the only E-ComMenT this month!!

Regards

Karen

Karen Butcher, CMT United Kingdom
0800 652 6316