The national support group for people with Charcot-Marie-Tooth  

    

August 2011
CMT United Kingdom E-ComMenT

Greetings!

  

Just a quick update - a proper e-newsletter will follow in a week or so.

 

But we need YOUR help urgently, and there's no time to spare!!

 

Karen

 

 
In This Issue
Awareness Month Publicity
Dates for your Diary
Last but not least...
Benefits of Membership
Social Networking
AWARENESS MONTH PUBLICITY
 
We have engaged the services of a freelance PR lady to help Kate co-ordinate a massive publicity campaign for Awareness Month, and she's doing extremely well getting interest from the national press and from some magazines.
 
But - all the stories need interesting and emotive case studies to make them come alive.  If you would like to share your story, PLEASE get in touch with Kate Pearson URGENTLY.  In order to take advantage of the interest generated so far, we need to send them case stories like yesterday!
 
We particularly need someone who wasn't diagnosed until their 50/60s for Saga Magazine.
 
If you can help, please contact Kate on katejpearson@gmail.com.
Dates for your Diary

September - AWARENESS MONTH!!!

Magical Muscle

Magical Muscle - 12th September

 

Show being held on Bournemouth Pier Theatre at 8pm - all proceeds to CMT United Kingdom!!  

 

Young People's Weekend - 28th-31st October
You can download booking forms/medical consent form and information from here.   This is available to kids between 12 and 20(ish) and there are a very limited number of places.  Book now!!! 
Family Conference - 5th/6th November

You can download booking forms and a draft programme from here. 

All bookings should be received by 14th October, and places will be allocated on a first come-first served basis!  (Still plenty of places)

ComMenT 

For those of you who customarily access their copy of ComMenT via the website, the download from the website wasn't working.  It's now been fixed, so you can access the latest edition of ComMenT from here..

http://www.cmt.org.uk/ComMenT_Archive.php     

 

Membership of CMT United Kingdom 
 

 

So  what are the benefits of membership?

 

 

Access to our members only section of the CMT website with its huge library of publications

Three editions of our full colour magazine. ComMenT, per year 

 Monthly e-ComMenT's with lots of extra news. 

Local groups around the country

Local contacts - there are almost 30 members around the country who are happy to talk to you by phone or by email - find the list on the website in the Member's Area

Discounted attendance at our fantastic Annual Conference - next one on 21st April 2012 at the Hilton Hotel, Coventry. 

 Access to our freephone helpline !
And all this for only £20 per year, or £25 for families!  
Join at www.cmt.org.uk - membership is free for the first year for new members!
Social Networking

 

 

Find us on Facebook

 

Follow us on Twitter
  
View our photos on flickr
  
Please do help if you can - email Kate and ask her what exactly she needs from you, before you put pen to paper, or fingers to keyboard.  She'll be able to give you a hand with writing your story!

Regards

Karen

Karen Butcher, CMT United Kingdom
0800 652 6316