Greetings!  

Scleroderma Foundation Launches Updated Website

Thanks to a generous gift from the Ben D. Rea Estate, we have worked for more than a year on a new website. This week, the Scleroderma Foundation is pleased to announce that the new scleroderma.org is live! We teamed up with Convio and Cathexis Partners to transform our outdated website into a home of easy-to-navigate valuable information for the entire scleroderma community.  

 

Highlights include:

  • New look, same reliable resources. The website received a major facelift. Whether you are a patient or newly diagnosed, a caregiver or friend, or health care professional, we've made it much easier for you to find the information you want including support group information and how to find a scleroderma treatment center
  • Hope Raisers. With this new campaign, you can start to fundraise and help find the cure for scleroderma. Whether you want to host a garage sale or a karaoke contest (or anything in between), we provide you with the tools, such as your own personal fundraising page, coaching emails and more! Get started >> 
  • Online store. You can order some of our most popular items online, such as scleroderma information cards, awareness bracelets and hoodies. Shop >> 
  • And much more!

Several features, including an interactive body tool, are still in development or undergoing modifications. So, please be patient with us as we continue to improve the site. 

 

We hope you like these new features and upgrades. As with any remodeling project, it takes some time to get used to, so if you have any questions or feedback, let us know! Email webmaster@scleroderma.org.   

Ask the Expert: How Is Scleroderma Treated?  

Naomi Rothfield, M.D., answers the question, "How is Scleroderma Treated?," in this article from HealthyWomen.org. Dr. Rothfield is a professor of Medicine at the University of Connecticut Health Center.

Read Dr. Rothfield's answer now...

What is Dysphagia? 

Dysphagia, or a difficulty swallowing, is a debilitating complication.  

 

The Agency for Health Care Policy and Research estimates that more than 60,000 Americans die as a result of swallowing difficulties each year. But, the condition is treatable.

 

Learn more about dysphagia in this article from Today's Caregiver.

How To Apply For Low-Income
Energy Assistance  

Do you or loved one need help with your home heating or cooling bills? You may be eligible for assistance. The Low Income Home Energy Assistance Program, or LIHEAP, may be able to help.

View this document from the U.S. Department of Health and Human Services for more information.
Disclaimer: The Scleroderma Foundation in no way endorses any drugs or treatments reported in the eLetter. Information is provided to keep readers informed. Because the manifestations and severity of scleroderma vary among individuals, personal medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader's physician(s) for proper evaluation and treatment.



eLetter #465
Donate Now!
Connect With Us!
Find us on FacebookFollow us on TwitterView our videos on YouTube


Corporate Sponsors
Gilead- jpg for web

Quick Links
Home

 

Join Our Mailing List