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Greetings!
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United States Supreme Court
Upholds Affordable Care Act
A Brief Commentary by Scleroderma Foundation CEO, Robert J. Riggs
It's inconceivable to believe that anyone has missed yesterday's big news on healthcare reform with the United States Supreme Court ruling to uphold the "Patient Protection and Affordable Care Act ("PPACA"). News organizations, pundits, bloggers, and elected officials from both sides of the issue have been scrambling towards the bright lights and live microphones of media to weigh in on their views related to this landmark legislation, and now landmark ruling by the nation's highest court. The membership of the Scleroderma Foundation is a microcosm of the United States as a whole, with patients, family members, researchers, physicians, and friends from every walk of life, every socio-economic strata, race, ethnicity, and political point of view represented. We've received calls and emails from many members asking what yesterday's ruling on PPACA means to the scleroderma community. And many of the comments I've heard have come down along political affiliation lines. While the Scleroderma Foundation has an active patient advocacy program and frequently engages with elected officials in Washington... Read the rest of Mr. Riggs' comments about PPACA here. Other Useful Links For a brief synopsis of PPACA and the Supreme Court decision, click here. For more information about the advocacy efforts of the Scleroderma Foundation, visit www.scleroderma.org/advocacy.
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Pennsylvania Center Recognized by Medical Advisory Board
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The Scleroderma Clinic at the University of Pennsylvania in Philadelphia recently was designated as a Scleroderma Center by the Scleroderma Foundation's Medical Advisory Board. To be designated as a Scleroderma Center on our website, institutions must:
- Demonstrate expertise in scleroderma including clinical and laboratory-based research.
- Conduct clinical trials in scleroderma.
- Conduct educational activities about scleroderma, and provide information about the advances in the care and treatment of patients with scleroderma to health care professionals and the public.
All institutions designated as a center have been reviewed by the Scleroderma Foundation's Medical Advisory Board to ensure patients are provided with knowledgeable resources about diagnosis, care and research. to learn more about this center and others around the U.S., visit our website.
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What is Thyroid Disease?
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Your thyroid is an important gland, and when functioning properly it releases hormones to regulate your metabolism. However, there are two types of thyroid disease that occur when your body produces too many or too little hormones. Learn more about your thyroid, who is at risk for thyroid disease and what you can do if you experience symptoms in this article from the Society for Women's Health.
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Finding Long-Term and Independent Living Resources
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 The U.S. Department of Health and Human Services maintains several databases to help you find long-term and independent living resources for the elderly or if you have a chronic illness. Search for resources in your state today.
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More Workshops Announced
National Patient Education Conference
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs or treatments reported in the eLetter. Information is provided to keep readers informed. Because the manifestations and severity of scleroderma vary among individuals, personal medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader's physician(s) for proper evaluation and treatment.
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