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Greetings!
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Early Bird Deadline Friday, June 29
Save $50 on Conference Registration
 You've got one week left before the early bird deadline! Be sure to register for the conference by 11:59 p.m (EST) Friday, June 29. Early bird ticket prices are $195 for members and $245 for non-members. The price increases by $50 after June 29. So don't delay, register today!
Remember to Make Your Room Reservation
Also, be sure to secure your room for this year's conference before the room block runs out! Use the group code A-SDF12 when you make your reservation. Book your room online or by calling (866) 782-7897. We look forward to seeing you in Dallas! Read more about the conference below or visit our website. The actual per person cost of hosting the conference is more than $600. We would like to thank our corporate sponsors and donors for helping to reduce the cost for participants.
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NEW & IMPROVED Juvenile Program
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About the Program
The Scleroderma Foundation is proud to announce a new and improved juvenile track at this year's National Patient Education Conference. We hope you will join us!
We have teamed up with experts from around the country to develop our new program. This year's juvenile programming includes sessions designed for both children, teens and young adults living with scleroderma, as well as a separate path for parents, older family members and caregivers.
Speakers, presenters and moderators for juvenile sessions include:
Children's Hospital of Los Angeles
- Elizabeth Morasso, MSW
- Maggie Sepkowitz, LCSW
- Sandra Mintz, BSN, RN
CoachArt
Texas Scottish Rite Hospital for Children
- Lisa King, PT, DPT
- Wendy Wittenbrook, MA, RD, CSP, LD
- Ashley Cooper, MD
- Christy Weber, OT
- Andrea Brown, CCLS
- Teresa Martini, RD, CSP, LD
- Heather Benham, DNP, RN, CPNP
Also featuring...
- Kathleen Randolph, Certified Practitioner of Yoga for the Special Child, Certified Hatha Yoga Teacher
- Kathryn Torok, M.D., Children's Hospital of Pittsburgh
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More Workshops Announced
National Patient Education Conference
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We have added more workshop descriptions for you. Take a look at some of this year's conference offerings:
 New in 2012! Beyond Google - Improved Information Results Using MedlinePlus and Other Resources: This workshop will focus on targeted searching with medical subject terminology that produces quality disease specific results. Learn valuable tips and tricks to help you identify and evaluate free, reliable health information on the Internet. Presented by Claudia DeShay, Ph.D. and Mary Ann Huslig, MLS.
You and Your Pharmacist - A Focus on Gastrointestinal Complications and OTC Products in Scleroderma: Come learn about how you can get the most out of your relationship with your community pharmacist. Also, discuss aspects of treatment for scleroderma-related gastrointestinal complications. Lastly, learn how to safely choose over-the-counter products. Presented by Jessica Farrell, Pharm.D.
Register for this year's conference in Dallas July 27-29. You also can view other workshop descriptions, learn about the hotel and more on our website.
Remember, the early bird registration deadline is next Friday, June 29. Act now to save $50 on your registration!
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Need Help at the Airport?
Call the TSA Toll-Free Helpline
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 The Transportation Security Administration (TSA) launched a toll-free helpline last year to assist travelers with medical conditions. If you have questions about screening policies and procedures before flying to the conference in Dallas, or don't know what to expect at the security checkpoint, this resource can help you before you leave home.
"TSA Cares provides passengers with disabilities and medical needs another resource to use before they fly, so they know what to expect when going through the screening process," said TSA Administrator John Pistole. "This additional level of personal communication helps ensure that even those who do not travel often are aware of our screening policies before they arrive at the airport." When a passenger with a disability or medical condition calls TSA Cares, a representative will provide assistance, either with information about screening that is relevant to the passenger's specific disability or medical condition, or the passenger may be referred to disability experts at TSA. The TSA recommends that passengers call at least 72 hours before his/her flight so that TSA has the opportunity to coordinate with the TSA manager at your airport. You may call (855) 787-2227 between 9 a.m. and 9 p.m. Eastern Monday through Friday. You also can find more information for travelers with disabilities and medical needs here.
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Disclaimer: The Scleroderma Foundation in no way endorses any drugs or treatments reported in the eLetter. Information is provided to keep readers informed. Because the manifestations and severity of scleroderma vary among individuals, personal medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader's physician(s) for proper evaluation and treatment.
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