Scleroderma Foundation eLetter
eLetter #453
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Greetings!  

Win a Trip to the National Conference
Scleroderma Awareness Campaign Launched 

Earlier this week, the Scleroderma Foundation launched a website dedicated solely to scleroderma awareness activities. This is the first time the organization has created a website to promote June's Scleroderma Awareness Month. The goal is to get more people to tell others about how the disease has changed his/her lives, no matter if you're a patient, family member, caregiver, friend, volunteer or health care professional.

The Foundation selected the theme - "I. AM. SCLERODERMA." for this year's campaign to show the world that scleroderma doesn't define a person, but the person defines scleroderma. Through the website, people can share their stories, download special artwork for Facebook and other social networking sites, purchase scleroderma awareness gear and find helpful resources to spark conversations about the disease.

There's also an opportunity to submit a Scleroderma Doodle, or Sclerodoodle, for the chance to win a trip to the National Patient Education Conference in Dallas this July. You have until 5 p.m. Wednesday, May 30, to submit your artwork. Then, a panel of judges will select the top 20 finalists. It will then be up to website visitors to pick the grand prize winner. The winner will win full registration, hotel room and airfare to this year's conference; plus, his/her artwork will appear on special merchandise that will be available for purchase later in June. (Note: Please click here for the full contest rules and limitations.)

For more information about Scleroderma Awareness Month, please visit www.sclerodermaawareness.org.

Additional Workshops Announced
National Patient Education Conference 

Here are some other sample workshops for this year's conference:      

 

Blood Pressure Monitoring/Renal Crisis and Its Management: This workshop will cover the essentials about proper blood pressure monitoring, review the consequences of untreated blood pressure, and discuss scleroderma renal crisis and its management. Presented by: Julia J. Rhiannon, M.D., M.S.W.   

 

The Search for Predictive Biomarkers in Systemic Sclerosis: What Do We Have, and What Do We Need?: This presentation will define the concept of biomarkers that may help doctors determine which clinical manifestations of systemic sclerosis will require close follow-up or additional therapy in a specific patient. He will discuss aspects of the physical exam as well as laboratory tests that are currently useful predictors of disease behavior, and will touch on research suggesting combinations of tests that may be used in the future. Presented by: Jerry A. Molitor, M.D., Ph.D.  

  

Register for this year's conference in Dallas July 27-29. You also can view other workshop descriptions, learn about the hotel and more on our website. Remember, the early bird registration deadline is Friday, June 29.

Every Day Dental Care 

Your teeth and gums needs constant care, and sometimes, it can be a challenging task for a caregiver. Learn how to help someone brush, floss and keep good care of their mouth in this information provided by the National Institute for Dental and Craniofacial Research. 

Pulmonary Hypertension Webinars 

The Pulmonary Hypertension Association (PHA) offers free recordings of webinars to view at any time. The topics include what you need to know if you're newly diagnosed with PAH or how to maintain relationships with your family and friends.

View the webinars now online
Disclaimer: The Scleroderma Foundation in no way endorses any drugs or treatments reported in the eLetter. Information is provided to keep readers informed. Because the manifestations and severity of scleroderma vary among individuals, personal medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader's physician(s) for proper evaluation and treatment.


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