Scleroderma Awareness Month Just Around the Corner

Scleroderma Foundation eLetter

eLetter #451

Greetings!

Scleroderma Awareness Month
Just Around the Corner

Scleroderma Awareness Month is almost here. For more than 20 years, the Scleroderma Foundation, its chapters and support groups have recognized June as Scleroderma Awareness Month, marking it with annual awareness and fundraising events, as well as obtaining presidential, state and local proclamations.

The Scleroderma Foundation, along with the Federation of European Scleroderma Associations (FESCA), and other international scleroderma organizations, will recognize Friday, June 29 as World Scleroderma Awareness Day.

Stay tuned to the weekly eLetter for more details about how you can get involved with Scleroderma Awareness Month! Get ready for June with these special gifts we've created just for Scleroderma Awareness Month!

Additional Workshops Announced
National Patient Education Conference

Here are some other sample workshops for this year's conference:

Dental Issues Related to Scleroderma

Scleroderma is rare autoimmune disease, but the manifestations of it are life altering. This workshop will provide you with the crucial information about oral signs and symptoms of scleroderma, diagnosis, complications, treatment options, and maintenance. Presented by Dr. Valentina Lyssova.

Managing GI Involvement in Scleroderma

People with scleroderma may develop abnormalities of the gastrointestinal (GI) tract. Any part of the GI tract can be involved in scleroderma, including the mouth, esophagus, stomach and small and large intestines. Improve your understanding of how to treat and manage gastrointestinal tract problems in scleroderma. Presented by Dinesh Khanna, M.D., M.S.

Register for this year's conference in Dallas July 27-29. You also can view other workshop descriptions, learn about the hotel and more on our website. Remember, the early bird registration deadline is Friday, June 29.

Breathing Exercises At Home

If you have pulmonary arterial hypertension (PAH), asthma, COPD or another breathing issue, here are some exercises from the Exhale Foundation that you can do at home.

The Exhale Foundation is part of the Global Healthy Living Foundation (GHLF), and was created by the team who runs CreakyJoints, an arthritis patient advocacy organization. GHLF President Seth Ginsberg is the closing keynote speaker at this year's National Patient Education Conference.

What Is Iron-Deficiency Anemia?

Iron-deficiency anemia is a common but easily treated condition that happens when you don't have enough iron in your body. "Anemia" generally refers to a condition in which your blood has a lower than normal number of red blood cells. These cells are important because they carry oxygen and remove carbon dioxide (a waste product) from your body.

Low iron levels can be attributed to several factors including blood loss, poor diet or an inability to absorb iron from your food.