Scleroderma Foundation eLetter
eLetter #447
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Greetings!  

Why Do You Walk for Scleroderma? 
New Online Campaign Empowers Autoimmune Community
 
The "Walk for Cure" Video Awareness campaign launched this week to support the Scleroderma Foundation and its signature fundraising and awareness event, "Stepping Out to Cure Scleroderma." This multichannel media campaign hopes to spread more awareness about the disease.
Why Do You Walk for Scleroderma?
Why Do You Walk for Scleroderma? - Campaign Promo Video
WALKFORCURE.ORG is a video sharing website featuring a wall of scleroderma supporters sharing their reasons for taking part in Stepping Out to Cure Scleroderma walks and raising awareness for scleroderma in general. Supporters are asked to upload an original video and describe why they walk. Some messages will be inspirational, some touching, some funny, but the goal of each video is to increase scleroderma awareness and provide hope and inspiration to the entire scleroderma community.

 

At the end of the campaign, uploaded videos will be edited together, burned onto DVDs, and sent to members of Congress and the President of the United States. This powerful message echoes the need to increase federal resources for the National Institutes of Health and, more specifically, scleroderma-related medical research.  

 

To learn more about Walk For Cure, visit www.walkforcure.org.The deadline to submit videos is Monday, Oct. 15. View the full announcement from the Foundation

Grand Lecture Speaker Announced 

Aryeh Fischer, M.D., will present the grand lecture on Pulmonary Hypertension in Scleroderma at the National Patient Education Conference this July.


Pulmonary Arterial Hypertension (PAH) can be a serious complication of scleroderma. New therapies offer hope to those who have been diagnosed with PAH. In this session, participants will gain a clear understanding of the biological process of PAH symptoms, how PAH is diagnosed and monitored, treatment options, and the latest research.  

 

View more sessions at the national conference now and get more information about how to register and why you should attend

Early Bird Deadline is April 9 for PHA Annual Conference 

The 10th annual Pulmonary Hypertension Association (PHA) conference will be held June 22-24 in Orlando. People living with pulmonary hypertension may attend support group meetings, workshops and other sessions about the disease. The conference also includes a separate program for medical professionals.   

 

Learn more about the PHA conference today, visit www.phassociation.org/page.aspx?pid=3497

How to Exercise with Fibromyalgia 

It can be tough to stick to an exercise program if you're living with fibromyalgia, arthritis or other chronic illnesses. Achy joints and other setbacks might dissuade you from hitting the gym more frequently.

 

Check out this article for some information and tips from doctors about why getting active could make you feel better. 

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