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Greetings!
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Special Room Rate for Conference Attendees
People attending the National Patient Education Conference in Texas this summer can receive a discounted hotel rate at the Gaylord Resort and Conference Center. Standard rooms are available for the lowered rate of $165 per night. Included with your room, you will receive the following: - Local phone calls up to 20 minutes
- Toll-free and credit card calls up to 20 minutes
- Bottled water (two per day)
- Access to the resort's state-of-the-art fitness center and waterpark
- Daily newspaper
- Hi-speed wireless internet access in each guestroom and throughout the hotel
- Two telephones
- Coffee service, fridge and iron and ironing board
- Discounted shuttle service to Grapevine Mills shopping center and Downtown Grapevine
The Gaylord Texan Resort and Conference Center is located on 150 acres of land just a few minutes from Dallas-Fort Worth International Airport. You also can enjoy the resort's several restaurants, a world-class spa, 10-acre pool and water park with a 600-foot lazy river and 42-foot zip line, and more! Book your room now online or by calling (866) 782-7897. Please use the group code: A-SDF12. (Note: Space is limited, so reserve early! The discounted room rate is available during the conference as well as three days before and after. The discounted rate is not guaranteed after Monday, June 25, nor if the room block has sold out. The hotel cannot guarantee your room location, bed type or other special requests until check-in.)
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Scleroderma Research Study Needs You
Help Evaluate Online Program
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 Researchers from the University of New Mexico (UNM) need participants for a study to evaluate an internet self-management program for people with scleroderma. To be eligible, you must:
- Have been diagnosed with limited or diffuse systemic sclerosis
- Be 18 years of age
- Possess basic computer literacy and have access to a computer with Internet and email capabilities
- Communicate in reading and writing in English
- Be a U.S. resident
- Be willing to complete the study protocol.
The protocol consists of completing a packet of questionnaires, accessing and completing the internet self-management program at home during a 10-week time period. This also includes logging in at least three times for a total of one to two hours over a period of six to eight weeks to record the use of the self-management modules every other week, post action plans, and participate in a discussion board. In addition, you would need to complete a second set of questionnaires including a program evaluation. This study was approved by the UNM Human Research Review Committee (HRRC No. 12-018). For more information, contact Janet Poole Ph.D., OTR/L at jpoole@salud.unm.edu or (505) 272-8276, or Cindy Mendelson Ph.D., R.N., at cfmendelson@salud.unm.edu or (505) 272-8241.
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NIH Launches New Registry for Genetic Testing Data
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 Earlier this month, the National Institutes of Health (NIH) officially launched a web-based Genetic Testing Registry. The goal of the registry is to provide a centralized public resource for clinicians, researchers and consumers to access information about the availability and scientific basis of numerous genetic tests. For example, you could search for a specific condition, like scleroderma, and find all the available genetic tests for it. Users can then find out more about the labs that run the tests.
You can access the Genetic Testing Registry at www.ncbi.nlm.nih.gov/gtr/.
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How Depression Hurts Your Health
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Depression doesn't just hurt your mind, but your entire body. Discover these 10 effects that depression can have on your health from LifeScript, a healthy living website for women.
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