Scleroderma Foundation eLetter
eLetter #443
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Greetings!  

BACK BY POPULAR DEMAND!
Opening Keynote Speaker Dr. Jim G. Lemons
 
Jim Lemons 2012The Scleroderma Foundation is happy to announce that Jim G. Lemons, Ed.D., will present the opening keynote on Saturday, July 28. Dr. Lemons gave the closing keynote address at last year's National Patient Education Conference in San Francisco. He is the director of The Lemons Center for Behavioral Pain Management in Lenexa, Kan., and a medical psychologist.

Seth Ginsberg Keynote 2012Also announced recently is closing keynote speaker Seth Ginsberg, who is the co-founder and president of CreakyJoints, an arthritis advocacy organization and part of the Global Healthy Living Foundation (GHLF), which actively advocates on the state and federal level for improved access-to-care.

To learn more about the National Patient Education Conference or to register, please visit our website.

FDA Seeks Patient Representatives  

The Food and Drug Administration seeks patient representatives for its advisory committees. Representatives are responsible for providing the FDA with the unique perspective of patients and caregivers.

For more information, please download this PDF

Video: What Happens During a Colonoscopy? 

The American College of Gastroenterology has created a video to prepare people for a common procedure. Follow a female patient on the day of her colonoscopy. This video was created to instill confidence in the effectiveness and safety of the procedure.

colon video screenshot 

View the video now

What is Diffuse Interstitial Lung Disease  

Diffuse interstitial lung disease refers to a group of lung disorders in which the deep lung tissues become inflamed. It can be seen in some scleroderma patients.

Learn more about the disease such as potential causes, symptoms, diagnosis and treatments.  

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