|
Greetings!
|
Psst! It's Called Scleroderma...Pass It On!
Rare Disease Day - Feb. 29 Chances are you already know what scleroderma is since you subscribe to our weekly eLetter. However, there are millions of others around the world who have never heard of the disease. YOU CAN HELP CHANGE THAT!Next Wednesday, Feb. 29, is Rare Disease Day. Be a part of the movement of people living with scleroderma, and their family and friends, who will share their inspiring and compelling stories with the world. Visit www.rarediseaseday.org to download images to share on your social networks, share your story, find an awareness event and more. Join the Scleroderma Foundation and other supporters on Feb. 29 as we spread the slogan 'Rare but Strong Together.' You've Been Challenged!  Remember our New Year's Resolution to get to 10,000 fans on Facebook? We challenge ALL of our 7,793 FANS to get ONE - just ONE - of your friends to LIKE our page before Rare Disease Day on Feb. 29. That would mean we would have more than 14,000 followers. But most importantly, that would mean 14,000 people now know about a rare disease called scleroderma!
If you haven't already, LIKE US today on Facebook and urge your family, friends and coworkers, as well!
|
|
Download Presentations from
Second Scleroderma World Congress
|
 The Second Scleroderma World Congress was held Feb. 2-4 in Madrid, Spain. Two-hundred and sixty-one patients attended the patient congress, along with more than 1,100 medical professionals at the medical congress. Now, you can download presentations from the patient sessions on topics including: gastointestinal issues, cardiopulmonary, coping with chronic disease and more. Click here to access the presentations. Simply click on the name of the presentation you would like to download and you can view it in PDF format.
|
|
Study Participants Needed
|
 The National Institute of Environmental Health Sciences (NIEHS) in Bethesda, Maryland, is conducting a study for families with siblings or twins in which one sibling has developed an autoimmune disease and the other has not. The goal of this research study is to understand the genetic and environmental factors that may result in autoimmune diseases. You may qualify if you or your child has: - Adult or juvenile rheumatoid arthritis, lupus, scleroderma or myositis diagnosed within the last four years
- A sibling or twin of the same gender within four years of age without an autoimmune disease
For more information, call (800) 411-1222 or visit clinicatrials.gov. Refer to study No. 03-E-0099. Download a flier.
|
|
Teleseminar: Scleroderma & Your Skin
|
Join the Scleroderma Foundation's Southern California Chapter for their next teleseminar at 11 a.m. (Pacific) Thursday, March 15. Dr. Suzanne Kafaja will discuss "Scleroderma and Your Skin: All Your Questions Answered." Dr. Kafaja is a clinical instructor of Rheumatology at UCLA in Los Angeles.
The teleseminar is open to everyone. Simply call (877) 216-1555 and enter the passcode 981555. For more information, contact Karen Gottesman at (877) 443-5755.
|
|
|
|
|
| Donate Now! | 
|
|
|
