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Greetings!
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Share Your Scleroderma Story
Wednesday, Feb. 8
 It's important for all of us to educate others about scleroderma. Everyone needs to know about this disease and the battle that is being fought to end it.
On Wednesday, Feb. 8, the Scleroderma Foundation is organizing a National Congressional Call-In Day. It's a day devoted to generating greater awareness of scleroderma and the need for more federally-supported research to find better treatments and a cure! Your voice counts. You can make a difference.
Together, we can advance our hope of a cure through more research. Join the movement and thousands of other members of the scleroderma community on Feb. 8 as we carry our important message to Congress. Learn how to make your voice heard!
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Study: Late-Onset Systemic Sclerosis
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A study published in the June 2011 issue of "The Journal of Rheumatology," finds that older people living with scleroderma are at greater risk for pulmonary hypertension, renal impairment, cardiac disease and muscle weakness. The research team evaluated 2,300 people with scleroderma between 1990 and 2009.
Read the full summary now.
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Find Out Your Medication Side Effects
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 DrugCite is an online resource to help you view side effects from many FDA-approved medications.
Simply type in the name of the drug and read about the side effects that have been reported to the FDA from other patients just like you.
Visit www.drugcite.com to use the tool.
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Chronic Illness & Time Management
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 If you live with chronic illness and experience bouts of difficult fatigue, you know how hard it can be to plan out your time. A person living without fatigue could simply get by with a to-do list, but for someone experiencing fatigue, you need to plan out your days and prioritize your activities.
Check out this blog post by Pamela Rice Hahn about how to improve your time management when you suffer from fatigue. |
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How Often Would You Like the eLetter?
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You still have time to provide your feedback about the Scleroderma Foundation's weekly email newsletter. We want to continue to bring you useful and relevant information about living with scleroderma, recent research and treatment news, important updates about the annual conference and more.
Please take a few minutes before Thursday, Feb. 2, to give us your thoughts. Just click here to take the survey. Thank you!
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