Scleroderma Foundation eLetter
eLetter #436
Scleroderma Foundation Logo

Greetings!  

You Can Help Increase
Scleroderma Awareness
 

One of the most important things all of us can do is educate others about scleroderma. Everyone from your friends and coworkers to medical professionals and elected officials needs to know about this disease and the battle that is being fought to end it.   

 

On Wednesday, Feb. 8, the Scleroderma Foundation is organizing a National Congressional Call-In Day. It's a day devoted to generating greater awareness of scleroderma and the need for more federally-supported research to find better treatments and a cure!   

 

Your voice counts. You can make a difference. 

Together, we can advance our hope of a cure through more research. Be a part of this important movement and plan to join thousands of members of the scleroderma community on Feb. 8 as we carry our important message to Congress.   

 

Learn how to make your voice heard! 

We Want Your Feedback  

The Scleroderma Foundation appreciates the more than 10,000 subscribers to our weekly email newsletter. We want to continue to bring you useful and relevant information about living with scleroderma, the most recent research and treatment news, important updates about the annual conference and more.

Please take a few minutes to give us your thoughts on the eLetter. Just click here to take the survey . Thank you for providing us with your feedback.
 

Is It Hard to Use a Computer Mouse?  

The mouse, which comes standard with most desktop and laptop computers, can be a difficult or nearly impossible tool for some people living with scleroderma to use. The constant gripping, dragging and other movements can be hard to perform when you have physical issues with your fingers, hands and arms.

Read this article by the Accessible Technology Coalition on alternatives to help make using your computer easier

Managing Your Medicines 

PHA Logo Managing all of the pills and other medications you need when you live with a chronic illness, like scleroderma, can be confusing and complicated.

The Pulmonary Hypertension Association provides medication management resources for patients to make taking your medicine easier and help you feel better. Check them out today! 

Connect with Other Caregivers 

Strength for Caring is a website pioneered by Johnson & Johnson to help support caregivers. Through the site, as a caregiver, you can:
  • Learn how to decrease stress
  • Find ways to balance work and family
  • Connect with other caregivers
  • And much more

To learn more, visit www.strengthforcaring.com.  


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