|
Greetings!
|
Your Calls and Emails Matter
Feb. 8 - Scleroderma Call-in Day
 Join scleroderma patients, family members, friends, caregivers, medical professionals, Foundation supporters and others on Wednesday, Feb. 8, for the 2012 National Congressional Call-in Day. Your personal calls and emails can encourage leaders in Washington to become cosponsors of current scleroderma-related research legislation.
Learn more about how to take part in the call-in day now.
National Office Closed on Monday, Jan. 16
Our office will be closed Monday to observe the Martin Luther King Jr. Holiday. We will reopen at 8:30 a.m. (Eastern) Tuesday, Jan. 17.
|
|
Find a Cure for Scleroderma Through Advocacy
|
Join Brian Adams, the Foundation's National Advocacy Committee Chair, for a teleseminar at 11 a.m. (Pacific) Tuesday, Jan. 24. He will discuss "How You Can Help Find a Cure Through Advocacy."
During the call, you will learn more about:
- How to be a part of the National Congressional Call-in Day on Feb. 8
- The Scleroderma Research and Awareness legislation currently in the House and Senate
- How to contact your congressional leaders
- How to advocate for increased scleroderma-research funding from NIH
To join the teleseminar, call (877) 216-1555 and enter passcode 981555.
|
|
Can I Get Pregnant With Scleroderma?
|
 New data about women living with systemic sclerosis indicates that preterm birth, low birth weight and intrauterine growth restrictions are twice as high in these women than compared to the general population of pregnant women. Yet, women with scleroderma can still have successful pregnancies.
These findings were conducted by a team in Italy and were published in the December 2011 issue of Arthritis and Rheumatism. Read more about the study now.
|
|
What Is Your Mouth Telling You?
|
|
|
|
NIH Forms New Center to Advance Translational Science
|
 In a move to re-engineer the process of translating scientific discoveries into new drugs, diagnostics, and devices, the National Institutes of Health has established the National Center for Advancing Translational Sciences (NCATS). The center will serve as the nation's hub for catalyzing innovations in translational science. Working closely with partners in the regulatory, academic, nonprofit and private sectors, NCATS will strive to identify and overcome hurdles that slow the development of effective treatments and cures.
Find out more about the center, read the full press release.
|
