Scleroderma Foundation eLetter
eLetter #414
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Greetings!  

Watch Sessions from the 2011
National Patient Education Conference  

 

Videos of the keynote speakers and selected workshops from the 2011 National Patient Education Conference in San Francisco now are available to view online.

Conference video screenshot 

Watch the opening keynote from Andreas Baxevanis, Ph.D., on the "Promise of Genomics/Genome Based Personal Health Care" or the closing keynote by James Lemons, Ph.D., about "Coping with Scleroderma." 

 

Other topics include "Managing GI Involvement," "Dental Issues in Scleroderma" and "Pulmonary Arterial Hypertension."

 

Watch the videos now at www.sclerodermavideo.com

Study Shows Stem Cell Transplant Helps Lung Function

Lancet Cover Aug 2011 A study conducted at Northwestern Memorial Hospital in Chicago recently concluded that stem cell transplantation in systemic sclerosis (SSC) patients helped improve lung function and skin flexibility.


Download the full report that appeared in the August 2011 issue of "The Lancet" in PDF format. 

Teleseminar: Hand & Face Exercises for Scleroderma - Aug. 23  

The Southern California Chapter invites you to attend a teleseminar at 11 a.m. (PST) Tuesday, Aug. 23, with Janet Poole, Ph.D. The seminar will cover "Hand and Face Exercises for Scleroderma."

 

Dr. Poole is an occupational therapist, educator and researcher with more than 25 years experience working with scleroderma patients. She recently was awarded the National Volunteer of the Year Award.

 

To attend this event, call (877) 216-1555. Enter the passcode 981555. If you are unable to attend, the audio of the seminar will be available online in the coming weeks.  

Fight Fatigue and Feel Young  

Let's Move Together Logo  

Fatigue can affect your life in many ways, hindering your productivity at work, making social interactions more difficult, and making everyday activities feel overwhelming. The good news is that there are simple changes you can make to feel better. 

 

Learn more about fighting fatigue in this podcast from the Arthritis Foundation

When Pain Interrupts Your Sleep   

WebMD Logo Whether it's from a sore lower back or throbbing tooth, pain is hard enough to deal with in the light of day. But pain at night that robs you of your much-needed sleep can be downright exhausting.

 

If pain keeps you up, take comfort in knowing you are not alone. According to the National Sleep Foundation, two out of three people with chronic pain have trouble sleeping. 

 

Find out how to beat insomnia from WebMD

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