Scleroderma Foundation eLetter
eLetter #411
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Greetings!  

Find a Scleroderma Support Group 

 

The Scleroderma Foundation has support groups all over the U.S. and Puerto Rico for you to connect with other patients, family members, caregivers, friends and health care professionals to share stories, learn about resources in your area and more. Find a support group on our website

 

If you are in an area not covered by a support group, you can join our online discussion board through Inspire, where you will find motivational messages and support 24/7.

 

Call our National Office at (800) 722-HOPE (4673) to find a support group near you. If you are interested in forming a support group, please contact our Chapter and Support Group Manager at the National Office.

Video: Living with Scleroderma

Christina Current Fidalgo, Fay Maushard and Donna Stone, all members of the Oregon Chapter, talked about what it is like for a person living with scleroderma on KATU-TV earlier this week.    

KATU - Video Oregon  

Watch the entire interview on KATU's website.

Applying for Social Security With Scleroderma  

If you have sufficient medical proof for scleroderma as outlined in the Social Security Administration's Blue Book of qualifying impairments, and can also prove that it is disabling, you may be eligible for Social Security Disability Insurance (SSDI).  

 

Scleroderma is listed as an immune system disorder in both the adult and childhood listing of impairments, and specifically as an autoimmune disease. Learn more about applying for SSDI now

Keep Up-to-Date with NIH

NIH logoFind out information about digestive issues, research and more.

Read about the latest public events, activities and health information resources from National Institutes of Health (NIH) in the latest issue of the "NIH Public Bulletin."  
 

Nominate a Caregiver for a 2011 Shire Brave Award

Shire Brave Awards logo Do you know a friend, sibling, neighbor, parent, child, or other family member that provides a specific and dedicated level of care to an individual(s) and who is not compensated in any direct way for their role as a caregiver?

 

Nominate someone today for the Shire Brave Awards. Nominees may be from France, Germany, Italy, Spain, Canada, the United Kingdom and the United States.

 

Learn more at www.shirebraveawards.com/braveawards/en/submitnomination. The deadline to apply is Wednesday, Aug. 31.  

2011 National  Gold Sponsor
Actelion Pharmaceuticals, 2010 National Gold Sponsor

2011 National
Silver Sponsor
Gilead logo
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