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Greetings!
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2011 National Patient Education
Conference is Here!
It's finally here. The 2011 Scleroderma Foundation National Patient Education Conference in San Francisco is under way this weekend.
The staff from the National Office looks forward to meeting many of you during the workshops, discussions and Awards Banquet.
"Yoga for Scleroderma" DVD and
Other Videos Available for Purchase
 You can purchase Kathleen Randolph's "Yoga for Scleroderma" DVD from the Scleroderma Foundation's online store. This 52-minute DVD was funded by a grant in 2003 from the Foundation's Texas Bluebonnet Chapter. Randolph, a yoga instructor, worked with Marilyn McDonald, a physical therapist, to create a yoga program to alleviate some of the common scleroderma symptoms. The program consists of a sequence of floor exercises, standing poses, inverted postures, and breathing and relaxation techniques-each selected because it addresses a specific symptom of scleroderma.
"Yoga for Scleroderma" is $17.50 plus shipping and handling. Visit our website at www.scleroderma.org/store/store-video.shtm to find this and other titles available for purchase. |
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Record Number of Medicines in Development for Rare Diseases
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 America's biopharmaceutical research companies are intensifying research into rare diseases, which often are among the most devastating to patients and complex for researchers. A record 460 medicines for rare diseases are in late stages of the pipeline, either in clinical trials or awaiting Food and Drug Administration (FDA) review, according to a new report by the Pharmaceutical Research and Manufacturers of America (PhRMA).
Read the full report from PhRMA now.
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10 Tips to Reduce Chronic Pain
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 From exercise to meditation and eating better to quitting smoking, there are daily habits you can incorporate into your everyday routine to help reduce chronic pain from scleroderma and other ailments.
Find the whole list from WebMD.
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What is a Gluten-Free Diet?
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 A gluten-free diet is used to treat celiac disease. Gluten causes inflammation in the small intestines of people with celiac disease. Eating a gluten-free diet helps people with celiac disease control their signs and symptoms and prevent complications.
Learn more from Mayo Clinic about a gluten-free diet and lifestyle.
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Survival Tips for Taking Your Kids to the Doctor's Office
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 Dragging your kids to the doctor can be as daunting as climbing Mt. Everest, but with these tips from a chronic patient, who also is a mom, you can survive taking your kids to their medical appointments.
Learn more about these "Survival Guidelines" from But You Don't Look Sick.
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