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DON'T MISS OUT!
BOOK YOUR CONFERENCE HOTEL ROOM TODAY
 Hotel rooms at the Hilton San Francisco Union Square are going fast for the 2011 National Patient Education Conference. We anticipate that rooms will sell out soon!
The group rate is $150 plus tax per night. Space is limited, so don't delay; reserve today! The discounted room rate is available for Wednesday, July 6, through Monday, July 11.
Reserve your hotel accommodations for the National Patient Education Conference in San Francisco today! Book online now!
Additional Workshops Added to Conference Program
 Robert Lafyatis, M.D., will conduct the workshop, "Are Clinical Trials Right for You?" He also will be one of the experts on the Research Discussion Panel for "Advances in Basic and Clinical Research." Dr. Lafyatis is Associate Professor of Medicine and Laboratory Director at Boston University Medical Center. He carries out patient-oriented research into the cause and treatment of systemic sclerosis. This includes early phase clinical trials into new therapeutic agents in patients with systemic sclerosis. He has been particularly investigating the mechanisms of actions and markers of response for novel therapeutics. An additional part of this effort is to lead a study of biomarkers in systemic sclerosis.
 Tracy Frech M.D., M.S., will present a workshop titled "The Importance of Blood Pressure Monitoring and Scleroderma Renal Crisis and its Management." Dr. Frech is an Assistant Professor of Rheumatology at the University of Utah, where she is the Director of the Systemic Sclerosis Center. She is active in the local Scleroderma Foundation and is committed to its goal of excellence in clinical care, education and research. Dr. Frech provides care to more than 250 systemic sclerosis patients in five states. Her research interest is vasculopathy aspect of systemic sclerosis.
Find out more about the presenters at this year's National Patient Education Conference, and don't forget to register!
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A recent study shows sleep disturbances are common in patients with systemic sclerosis (SSc), and are associated with worsening dyspnoea, depressed mood and severity of reflux symptoms.
If you're among America's 54 million caregivers, knowing how to evacuate a loved one or how a loved one can take shelter during an emergency may not be as easy as just stepping out a door, or crawling out a window, especially if your loved one has mobility challenges and physical issues. Not only do you have to consider how you yourself will get out of the house during an emergency, but how will you get to your loved one to make sure they get out?
John Marino, vice president of the eastern business unit at Actelion Pharmaceuticals U.S., Inc., spends his life constantly on the move, rushing from one coast to the other and back in a matter of days. During this mad dash, he values the moments when he can take a deep breath, lace up his running shoes, put on a biking helmet or head to the pool for some laps. John is part of the Actelion Athletes, a group of Actelion employees who will swim, bike and run at the June 5 Escape from Alcatraz triathlon in honor of the Scleroderma Foundation, raising awareness of PAH and its impact on patients with scleroderma. (
