Scleroderma Foundation eLetter
eLetter #398
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Greetings!  

Workshops Added for Gastrointestinal Issues and Patient Assistance Programs  

 

The Foundation has announced more speakers for this year's National Patient Education Conference in San Francisco July 8 through July 10.

 

Dinesh Khanna M.D.Dinesh Khanna, M.D., MSc, is an Associate Professor of Medicine and Director, University of Michigan Scleroderma Program. He will lead a lecture on gastrointestinal issues. Dr. Khanna has published more than 100 peer-reviewed articles and book chapters. Aside from his role as a Principal Investigator on NIH- and industry-sponsored clinical studies, Dr. Khanna also serves as a reviewer for several professional journals, society committees and training programs, and grant applications. In addition, Dr. Khanna conducts grand rounds and lectures at domestic and international conferences on management of systemic sclerosis (including gastrointestinal and pulmonary hypertension issues) and standards of care for this condition, among other topics.

Accessing Patient Assistance Programs/ NeedyMeds

David Sagall MD - Needy MedsRichard J. Sagall, M.D., a family physician, is the president and co-founder of NeedyMeds, a 501(c)(3) non-profit. Dr. Sagall will present "Accessing Patient Assistance Programs and Medical Skepticism." Too often people have to make tough choices between taking their medication or paying for other needs. There is help available for medications and other health costs. In this workshop attendees, will learn about the types of help available, how to access the information, and tips and tricks to use when applying for them. 

 

Learn more about the conference or call us at (800) 722-HOPE (4673). 

New Therapies for Rare and Neglected Diseases 

NIH News logoResearchers have begun screening the first definitive collection of thousands of approved drugs for clinical use against rare and neglected diseases. They are hunting for additional uses of the drugs hoping to find off-label therapies, for some of the 6,000 rare diseases that afflict 25 million Americans. The effort is coordinated by the National Institutes of Health's Chemical Genomics Center (NCGC).

 

"This is a critical step to explore the full potential of these drugs for new applications," said NIH Director Francis S. Collins, M.D., Ph.D. "The hope is that this process may identify some potential new treatments for rare and neglected diseases."


Read the entire press release from NIH.

Social Security Disability Resource Center

 

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The federal disability system is composed of two separate programs that are administered by the Social Security Administration. Find important resources, discussion forums and advice for managing SSDI at www.ssdrc.com/social-security-disability.html.

Methotrexate, Localized Scleroderma & Kids 

Arthritis and Rheumatism CoverJuvenile localized scleroderma (JLS) is a chronic progressive fibrotic process of the skin causing permanent disability and aesthetic damage. This study aimed to assess the safety and efficacy of methotrexate (MTX) in patients with JLS.

 

Read the full study from Arthritis & Rheumatism.

No Excuses: Mobility & Exercise 

CareGivers LogoSome caregivers may be quite challenged when it comes to helping their loved one decide upon what type of exercise regimen to participate in and benefit from safely. It can be as simple as asking a loved one what they would like to be involved with and what they are interested in doing. There are physical activities and sports that anyone with mobility issues can become a part of and enjoy, like adaptive aerobics, aquatic exercise (gives support to the entire body and is gentle on the joints), floor yoga, wheelchair workouts, and sports like basketball, baseball, skiing, and more.

Read more about the benefits of increased activity from Today's Caregiver.

The Truth About Probiotics

WebMD LogoResearchers believe that some digestive disorders result when the balance of friendly bacteria in the intestines becomes disturbed. This can happen after an infection or after taking antibiotics. Intestinal problems can also arise when the lining of the intestines is damaged. Introducing new beneficial organisms in the form of probiotics may help.

Discover more about the benefits of probiotics from WebMD

How to Dispose of Unused Medicine
Drug Take-Back Day Saturday, April 30 

Annual Drug Disposal Logo 

The Drug Enforcement Administration, working with state and local law enforcement agencies, is sponsoring National Prescription Drug Take-Back Day throughout the United States.

Find out more about safely disposing of unused prescription medications and find a location near you to take part in National Prescription Drug Take-Back Day tomorrow.
2011 National
Gold Sponsor
Actelion Pharmaceuticals, 2010 National Gold Sponsor

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