Scleroderma Foundation eLetter
eLetter #395
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Greetings!  

APPLY TODAY! Scholarship Deadline is April 22

 

Apply for conference scholarshipThe deadline to apply for scholarships to attend this year's National Patient Education Conference is Friday, April 22. Scholarships are intended for individuals who otherwise wouldn't be able to attend the conference. A patient-led committee will administer the award process based on the available funding.

 

For more information, contact Tracey O. Sperry, Director of Development and Research, at (800) 722-HOPE (4673), Ext. 248. 

 

Download the scholarship application.  

 

This year's conference will be held Friday, July 8, through Sunday, July 10, in San Francisco at the Hilton San Francisco Union Square. Learn more about the conference.


Scleroderma Research Act Reintroduced in the Senate 

Capitol Building-ADVOCACY ALERT-

Sen. Kirsten Gillibrand (D-NY) has reintroduced legislation in the U.S. Senate to increase scleroderma research and awareness (S. 649). The legislation would increase federal funding for scleroderma research and be the first federal public awareness program on scleroderma. It is an excellent opportunity to raise awareness about scleroderma in Congress and among other policymakers in Washington.

 

We urge you to contact your senators and ask him/her to become a co-sponsor of S. 649. To find your two senators, simply visit www.senate.gov and select your state from the drop-down menu in the upper right corner.

 

Talking Points for Calling Your Senators  

  • Identify yourself as a constituent and ask to speak with the staff member who handles health issues.
  • Explain what scleroderma is and briefly tell your story about living with the disease.
  • Explain that Sen. Gillibrand from New York has introduced a bill calling for increased funding for scleroderma. It would be the first public awareness program about scleroderma. It is designated as S. 649.
  • Ask them to contact Karina Cabrera in Sen. Gillibrand's office and become a co-sponsor of S. 649 at (202) 224-4451.
  • Thank them for their time and ask them to advise you of the action they took in response to your request (leave your contact information).
  • If you would prefer to send an email to your senators instead, information on how to do this is available on each senator's Web page, which is accessible through www.senate.gov.

If you have any questions, please contact the Scleroderma Foundation at (800) 722-HOPE (4673).

[Video] Testimony from SSA's Compassionate Allowance Hearing   

Social Security LogoDid you miss last month's Compassionate Allowances Hearing on Autoimmune Diseases by the Social Security Administration?

View the testimony and statements from doctors and patients including Virginia Steen, M.D., Professor of Medicine, Rheumatology, Immunology, and Allergy, at Georgetown University; and Rosemary Markoff, a Scleroderma Foundation member.

Cardiovascular & Pulmonary Resources  

AACVPR logoWhether you are a patient, a family member of a patient, or a medical professional looking for information for your patients, American Association of Cardiovascular and Pulmonary Rehabilitation (AACVPR) has put together a collection of links to help you find the information you're searching for about cardiovascular and pulmonary issues.

 

View the resources from AACVPR.  

What Causes Hypoxia?

Buzzle LogoHypoxia specifically affects the tissues of the brain, heart and the liver. In severe cases, hypoxia can also lead to cardiac arrest. There are different types of hypoxia - hypoxemic, anemic, hypemic, cerebral and histotoxic. The types are classified depending on the shortage of oxygen to the whole body or only a part of it.

Learn more about hypoxia from Buzzle.

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Actelion Pharmaceuticals, 2010 National Gold Sponsor

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