|
Greetings!
|
|
Registration Now Open for
2011 Patient Education Conference!
 Registration is now open for the Scleroderma Foundation's 2011 National Patient Education Conference! The conference takes place Friday, July 8, through Sunday, July 10, in San Francisco. Below you'll find hotel and early bird registration information.
|
|
Hotel Registration & Early Bird Discount
|
|
Hilton San Francisco Union Square
Group Discounts Available!
The Hilton San Francisco Union Square puts you in the middle of the action near the Golden Gate Bridge, Fisherman's Wharf, Alcatraz and other great locales. The hotel is offering a group discount rate to conference attendees for $150 per night for July 6 through July 11. This rate is available for rooms booked by Monday, June 6. Space is limited, so be sure to book early! For hotel information, maps and directions, click here.
Early Bird Registration Special
Register Now Through June 21 and Save!
Take advantage of the early bird registration discount through Tuesday, June 21. Members and non-members save an average of 20-25 percent off the regular price! Don't miss out on this great opportunity to reserve your ticket at the lowest price! Register today!
|
|
2011 National Conference Scholarship Fund
|
Now Accepting Applications!
 Full and partial scholarships are available for the 2011 National Patient Education Conference in San Francisco in July. Conference scholarships are intended for those who would be unable to attend without outside financial assistance. The application deadline for interested candidates is Friday, April 22. For more information or to download the application form, click here.
Help Others Attend the Conference!
 The National Conference Scholarship Fund offers financial assistance to qualified individuals to attend the Scleroderma Foundation's National Conference. Please help support the National Conference Scholarship Program and make a gift today. The more funds we can raise together, the more opportunities we can create for new and aspiring attendees. Donate now.
|
| Patient Advocacy Teleseminar Feb. 16 |
The Scleroderma Foundation's Southern California Chapter is hosting a special teleseminar at 11 a.m. (PST) Wednesday, Feb. 16. Learn how to be your own best patient advocate. For all patients and family members.
Enter the passcode: 981555
|
| New Genetic Link Found to Scleroderma |
 New research supported, in part, by the National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS) has identified a new genetic link to systemic sclerosis (also known as systemic scleroderma) and confirmed three previously discovered links to the disease, which can cause thickening of the skin, narrowing of blood vessels and scarring of internal organs. Read more about the study. |
| Celebrate Rare Disease Day Feb. 28 |
Rare Disease Day is an  international advocacy day to bring widespread recognition of rare diseases as a global health challenge. Take part in this day to educate others about scleroderma. Urge your Congressional leaders to join the Rare Disease Caucus. Share your story by making a video. Find events going on in your area. Learn more about Rare Disease Day at http://rarediseaseday.us. |
