Scleroderma Foundation
Scleroderma Foundation eLetter
eLetter #385

Greetings!
 

 

Case Study: Can Technology Help

Solve Scleroderma Renal Crisis?

 

By Murray Baron, M.D.

 

My colleague Marie Hudson, M.D., a rheumatologist at the Jewish General Hospital and assistant professor of Medicine at McGill University, both in Montreal, realized that the Internet could be used as a unique resource for the study of Scleroderma Renal Crisis (SRC), a rare complication of an uncommon disease.


Her goal was to assess whether the use of ACE inhibitors prior to the onset of SRC was associated with worse outcomes. Because SRC is so rare, she hypothesized that if she could enlist most of the world's scleroderma experts to help her find and follow cases, she could find enough patients within a short time to answer the question.

 

Read the full case study in American College of Rheumatology's The Rheumatologist.

 

 ACR logo

 

Best Way to Evaluate Systemic Sclerosis

Musculoskeletal Network LogoPatients who have systemic sclerosis (SSc) and their physicians rate disease severity differently in magnitude and are influenced by different factors. Therefore, patient-assessed and physician-assessed measures of severity should be considered as complementary.

 

Click here to read more about the physician-patient collaboration in systemic sclerosis.

New Test for Lung Transplant Patients
A lung transplantUniversity of Michigan Health System can mean a new chance at life. But many who receive one develop a debilitating, fatal condition, bronchiolitis obliterans syndrome (BOS), that causes scar tissue to build up in the lungs and chokes off the ability to breathe. University of Michigan researchers hope a new diagnostic tool they developed to predict BOS will allow doctors to intervene earlier and, ultimately, to provide life-saving treatments.

Read more about the test
Dry Eye Season is Here
Med Lexicon LogoThe holiday season may have ended a few weeks ago, however, the weather outside is still frightful while the fire inside is delightful. Unfortunately, the changing temperatures and dryness in the air can wreak havoc on your eyes. And, if your eyes seem irritated, you may be experiencing dry eye syndrome.

Learn more about dry eye syndrome.
Thyroid Disease in Women

Healthy Women logoWomen are five to eight times more likely to have thyroid dysfunction than men, but most don't know they have it. Women often overlook their symptoms or mistake them for symptoms of other conditions. For example, women are at particularly high risk for developing thyroid disorders following childbirth. Symptoms such as fatigue and depression are common during this period, but these are also symptoms of thyroid disease.

 

Find out about thyroid disease

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