Scleroderma Foundation
Scleroderma Foundation eLetter
eLetter #380

Greetings!
   
 

 

Your Contributions Matter
The support and generosity of all members, volunteers, and sponsors have helped the Foundation to continue its three-fold mission of support, education and research.

As we near the end of 2010, it is important to say that the commitment and support of individuals like you is vital to the success of the Scleroderma Foundation.


While the economic times are still a challenge for many families, we remain focused on our constant and passionate mission to help individuals living with scleroderma.  


Dec 31Please help us continue this commitment. If you haven't already given this year through the national office or your local chapter, please consider a special holiday gift to the Foundation.


What a wonderful way to end 2010 by providing hope to people living with scleroderma.


You can make your gift easily on our secure Web site. Just click on "Give Now" or call the national office toll-free at (800) 722-HOPE (4673) between the hours of 8:30 a.m. and 5 p.m. (Eastern Standard Time).


Please note that you can support your local chapter by donating through our Web site or by calling the national office. All donations received from within a chapter territory are reverted to the chapter, unless otherwise directed by you.


Holiday Schedule for National Office

The National Office will be closed Friday, Dec. 24, to observe the Christmas holiday. We will be open Friday, Dec. 31. However, we will be closed Monday, Jan. 3, in observance of the New Year's holiday.


Our Holiday Wishes for You
Finally, we would like to extend our deepest appreciation and thanks to all those who have supported us throughout the year. From all of us at the Foundation, we wish you and your family a healthy and happy new year!

Medical conditions and special situations
Travelers with disabilities and medical conditions

 

TSA logoPersons with medical conditions or special situations should be aware that there's often no method for a Transportation Security Administration security officer to recognize your particular medical condition or special situation. You can, but are not required, to inform the officer if you have a medical condition or special situation, which requires extra care or sensitivity during the screening process.


Learn more about how you can prepare for your trip.


Early endoscopy in systemic sclerosis without gastrointestinal symptoms

Springer Online logoSystemic sclerosis (SSc) is a multisystem disorder characterized by endothelial injury, blood vessel dysfunction and vascular obliteration as well as fibrosis of the skin and multiple viscera. Gastrointestinal (GI) complications, like esophageal and gastric dysmotility, gastroesophageal reflux, erosive esophagitis, chronic affection of the vocal cords, gut dysmotility, bacterial overgrowth, malabsorption, interstitial lung disease and gastric antral vascular ectasia (GAVE) affect up to 90 percent of patients diagnosed with SSc.

 

Read the rest of this report.


Insights: Food and Fluid Daily Diary App
Track your important health information

Gilead Insights App for iPhone 

The Food and Fluid Daily Diary is a digital way to record your daily weight, PAH symptoms, food intake, and activities. Daily entries are quick and easy, and the reporting features make it possible to share the information with your healthcare team.


Find out more about this app for iPhone users.


2010 National
Gold Sponsor
Actelion Pharmaceuticals, 2010 National Gold Sponsor
 
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