|
Greetings!
Discovering New Avenues for Hope. This weekend marks the annual meeting of the Scleroderma Foundation's
Peer-Review Committee. This committee, composed of medical experts on scleroderma from around the world, helps determine which proposals will be funded each year by reading, critiquing, and ranking all applications.
Research is a vital part of the three-fold mission of the Scleroderma Foundation. What makes the Scleroderma Foundation both unique and progressive has much to do with its commitment to scleroderma research. Funding quality research projects is a top priority of the Foundation, and we continue the long-standing tradition of making research our single largest budgetary expense each year. An average of $1 million dollars is awarded in research grants annually.
Inherent in each Scleroderma Foundation research grant is the hope that our funds will make a significant difference to a researcher whose investigation may lead to finding the cause -- and ultimately a cure.
The Scleroderma Foundation and its predecessor organizations have funded nearly $18 million in research grants since 1989.
Read about the 2011 grant recipients and their proposals in the next issue of the Foundation's Voice magazine coming out in February 2011! (To receive the magazine, please become a member or renew your membership by clicking here!) |
|
Juvenile Localized Scleroderma News |
Juvenile Localized Scleroderma: Fewer Flares With Methotrexate
By: SHARON WORCESTER, Skin & Allergy News Digital Network
ATLANTA - Methotrexate was an effective and well-tolerated treatment for juvenile localized scleroderma in a randomized, double-blind, placebo-controlled trial involving 70 patients with active disease. At the end of the 12-month study, 31 of 46 patients randomized to receive methotrexate had responded to treatment and were flare-free, compared with 7 of 24 patients given placebo, Dr. Francesco Zulian reported at the annual meeting of the American College of Rheumatology. |
|
Reminder - Participate in a Research Interview for Digital Ulcers |
|
Have you been diagnosed with systemic sclerosis, scleroderma, or CREST? Do you currently have at least one digital ulcer on your hand?
If you answered "yes" to both questions and you live in the US, then you could be eligible to take part in an interview study and be paid for your time and participation. Click here for more information. 
|
General Sjögren's Survival Tips |

The Sjögren's Foundation has published over 100 short but essential survival tips for Sjögren's patients.
Please click here to view the information.
|
|
Pulmonary Hypertension Association Continues e-Learning Classes |

Browse classes by topic area and watch the ones you're interested in at your leisure. Whether it's from your desk, your sofa or the local coffee shop, all you need is an Internet connectionIntroduction.
To visit the PHA Classroom, please click here.
|
Delphi Consensus Study from EULAR Scleroderma Trials and Research Group. |
Published by U.S. National Library of Medicine National Institutes of Health
Study: Preliminary criteria for the very early diagnosis of systemic sclerosis: results of a Delphi Consensus Study from EULAR Scleroderma Trials and Research Group.
OBJECTIVE: To identify a core set of preliminary items considered as important for the very early diagnosis of systemic sclerosis (SSc).
CONCLUSION: The three Delphi rounds allowed us to identify the items considered by experts as necessary for the very early diagnosis of SSc. The validation of these items to establish diagnostic criteria is currently ongoing in a prospective observational cohort.
To read more about this study, please click here. |