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Greetings!
 Foundation to Attend 2010 ACR Annual Meeting
Members of the Scleroderma Foundation national staff will be in attendance for the Annual Meeting of the American College of Rheumatology (ACR) in Atlanta, Georgia. This international event is considered the premier meeting for rheumatologists and basic and clinical researchers in the rheumatology field. ACR officials are expecting more than 18,000 attendees at this meeting, which is scheduled to run November 6-11.
The Foundation, which continues to uphold its longstanding presence at the conference, plans to bolster existing relationships with physicians, current and potential funding partners, patient/membership organizations, and others while creating new connections.
The meeting also provides a prime opportunity for the organization to launch the second edition of the "Scleroderma Spectrum," a clinical newsletter for medical professionals.
This edition of The Scleroderma Spectrum was made possible by unrestricted educational grants from Pfizer, Inc., and Actelion Pharmaceuticals US.
The Foundation is also sponsoring a forum on Juvenile Scleroderma at the ACR Conference which is being led by the Hamburger Zentrum für Kinder und Jugendrheumatologie in Hamburg, Germany. Topics will include:
- An update on the propspective inception cohort for Juvenile Systemic Sclerosis Project (for more information on this project, click here).
- "Consensus Treatment Plans for Localized Scleroderma: Update on the CARRA-Rx Project."
- Results of an international survey regarding indication for autologous bone marrow transplantation in children with juvenile systemic sclerosis.
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Caregiving: Insights for Caregivers |
Some people are thrust into the role of caregiver abruptly. After a loved one has a sudden illness, he or she may obviously need a lot of help. But often, caregiving is a gradual process with few clear dividing lines. How do you know when you've really become a caregiver? When is it time to start taking more control over a relative's life -- and to start taking control away? And how will your new responsibilities caring for someone else affect the rest of your life?
Visit WebMD for more information on getting started with caregiving by clicking here.
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Screening and Therapy for Malnutrition and Related Gastro-Intestinal Disorders in Systemic Sclerosis - A Study |
Posted Sep 02, 2010 by  The Canadian Scleroderma Research Group (CSRG) convened a meeting of experts in the areas of nutrition, speech pathology, oral health in SSc, SSc and gastroenterology to discuss the nutrition-GI paradigm in SSc. This meeting generated a set of recommendations based on expert opinion. The CSRG is a group of rheumatologists and researchers from across Canada working towards the same goal: to better understand Systemic Sclerosis (or scleroderma) in order to better treat those suffering from it. 
To view the results and conclusions, please click here. |
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The More You Know, the Healthier You Can Be... |
Do you have more than one health problem? Do you ever have trouble managing your conditions and your medicines? You are not alone. As you get older, you are more likely to have more than one health problem.
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