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Greetings!
SF Youth Ambassador Samantha Murray |
Looking for more information on juvenile scleroderma?
Check out the Scleroderma Foundation's online "Juvenile Scleroderma" section, which features a variety of medical articles, profile stories, and helpful information for parents.
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| Actelion Pharmaceuticals Announces FDA Approval of Brand Name for Commercially Available VELETRI® (epoprostenol for injection) for Pulmonary Arterial Hypertension |
 SOUTH SAN FRANCISCO, Calif., Aug. 25 -Actelion Pharmaceuticals US, Inc., todayannounced that the U.S. Food and Drug Administration (FDA) has approved the brand name VELETRI® for the company's epoprostenol for injection therapy. VELETRI has been commercially available since April 2010 as Epoprostenol for Injection for the treatment of moderate to severe pulmonary arterial hypertension (PAH) and PAH associated with the scleroderma spectrum of disease. Actelion plans to release VELETRI-labeled product by early fourth quarter of 2010. Read More. |
| SCOT Study |
 SCOT is a clinical research study designed for people with severe forms of scleroderma. SCOT stands for Scleroderma: Cyclophosphamide Or Transplantation. The SCOT study will compare the potential benefits of stem cell transplant and high-dose monthly cyclophosphamide (Cytoxan) in the treatment of scleroderma. Read More. |
| Fearless Caregiver Conference at Sea |
 Ahoy family caregivers! Come aboard for the Fearless Caregiver Conference at Sea Jan 3-8, 2011. The 5-night western Carribean cruise will feature host Gary Edward Barg, author of "The Fearless Caregiver" book and Editor-In-Chief of Caregiver.com and Today's Caregiver magazine. During the cruise, guests will take part in stress workshops and learn more about fearless caregiving and relaxation techniques. For more information or to register, click here. |
| Your Treatment and You: Working Together for Better Health |
 Do you have more than one health problem? Do you ever have trouble managing your conditions and your medicines? You are not alone.
As you get older, you are more likely to have more than one health problem. This booklet is designed to help you take better care of your health and get the help you need to manage your health problems. Learn more. |
| Be Wary About Health Information You Get on the Internet |
 By: Dr. Joseph Kahn
About 70 percent of households have Internet access and with the increasing use of smart phones, the Internet is becoming an even more popular source of medical information for parents. Parents and adolescents often use the Internet before contact with a physician. Sometimes information obtained online may be the only health care advice sought and used. Learn more. |
