Scleroderma Foundation
Scleroderma Foundation eLetter
eLetter #362

Greetings!

Woman Reading OnlineLooking for medical articles specific to your symptoms?
 
Check out the Scleroderma Foundation's online "Education and Resources" section, which features a collection of medical articles on various topics related to scleroderma.
 
To learn more, click here.
Diet
Actelion LogoYour physician will tell you if you need a special diet. If not, most of us can safely follow the diet guidelines of the American Heart Association or the American Cancer Society. Many patients have special dietary needs such as: Avoiding Spicy Foods; Choosing Soft, Smooth Items; Avoiding Alcohol and Wine; Avoiding Acidic Juices, Fruits, and Vegetables. Read More. 
Sjögren Syndrome
JAMA LogoSjögren syndrome is an autoimmune disorder in which the body's white blood cells attack and destroy other cells. It can exist by itself (primary Sjögren syndrome) or develop in association with another disorder such as rheumatoid arthritis, systemic sclerosis, primary biliary cirrhosis, or Hashimotothyroiditis (associated Sjögren syndrome). Hallmarks are the dry mouth and dry eyes known as the sicca syndrome. Sjögren syndrome affects 1 million to 4 million people in the United States. Most are over 40 years old at the time of diagnosis. Women are 9 times more likely to have Sjögren syndrome than men. The disease is named after Swedish ophthalmologist (eye physician) Henrik Sjögren (1899-1986), who first described it. The July 28, 2010, issue of JAMA includes an article about treatment of primary Sjögren syndrome. Read More.
PHA on the Road:PH Patients and Families Education Forum
PHA Logo PhotoPHA on the Road:PH Patients and Families Education Forum is based on the recognition that YOU, the patient, are the heart of a larger PH community that makes support, connection, information and education available to anyone who needs it. PHA on the Road is a FREE educational event with interactive live presentations, education sessions, exhibits and more. Topics will range from the basics of PH to updates regarding the latest developments in diagnosis, treatment and clinical trials.Read More.
Information on Systemic Sclerosis
Merck LogoSystemic sclerosis is a rare chronic disease of unknown cause characterized by diffuse fibrosis, degenerative changes, and vascular abnormalities in the skin, joints, and internal organs (especially the esophagus, lower GI tract, lung, heart, and kidney). Common symptoms include Raynaud's syndrome, polyarthralgia, dysphagia, heartburn, and swelling and eventually skin tightening and contractures of the fingers. Lung, heart, and kidney involvement accounts for most deaths. Diagnosis is clinical, but laboratory tests help with confirmation. Specific treatment is difficult, and emphasis is often on treatment of complications. Learn more.
Be an Informed Consumer...Do Your Homework
NCCAM Logo By: Josephine P. Briggs, M.D.
Recently, I was very disappointed to read an inaccurate news story that appeared in a respected consumer health publication (Prevention Magazine) and was picked up by the major news outlet MSNBC. The article stated that NCCAM and the National Institutes of Health (NIH) had endorsed "9 Natural Cures You Can Trust." This is not the first time-and will probably not be the last time-that such a misrepresentation of the facts has been disseminated, but I'd like to set the record straight. Learn more.
2010 National
Gold Sponsor
Actelion Pharmaceuticals, 2010 National Gold Sponsor
 
2010 Platinum Conference Sponsor
Pfizer, Inc., 2010 Platinum Conference Sponsor
2010 Bronze Conference Sponsors
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United Therapeutics Corporation Logo 
Lung Rx, LLC Logo 
 
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