|
Greetings!
 Want to receive even more news about scleroderma and the Scleroderma Foundation?
Consider becoming a member! For just $25 a year, you'll receive four issues of the Scleroderma VOICE magazine, discount registration at the National Conference, and many other special advantages. To learn more about the benefits of membership,
Are you a physician or medical professional? If so, you can become a member of our Physician Referral Program. Click here for more info. |
| Appropriations Action Alert! |
 On Wednesday, July 14th the House Labor-HHS-Education Appropriations Subcommittee is scheduled to mark-up its FY11 spending bill. This is the annual bill that funds biomedical research at the National Institutes of Health. Now is the time to contact your representative and encourage him/her to support a robust increase in funding for the NIH. Please dial the Capitol Switchboard at (202) 225-3121 and they will direct you to your legislator (even if you do not know who your representative is). Read More |
| New Interactive Workshop: Gastrointestinal Issues |
"Gastrointestinal Issues" with Dinesh Khanna, M.D. features a free interactive online survey for attendees. Prior to the conference, individuals can fill out a personal survey about their gastrointestinal health. After completing the online survey, individuals receive a printable summary of their results which can then be brought to Dr. Khanna's Conference workshop for analysis and discussion. To access and complete the online survey, click here. |
| Additional Hotel Rooms Now Available! |
 The Sheraton Boston Hotel group rate has sold out. In an effort to accommodate the increasing number of individuals attending the 2010 National Conference, the Foundation has reserved an additional block of discounted hotel rooms at the Hilton Boston Back Bay Hotel!Located across the street from the conference hotel (Sheraton Boston Hotel), the Hilton hotel provides ideal accommodations for attendees at a group rate of $159.00 per night (not incl. tax/gratuity). There are only 20 days left to register for the 2010 National Conference! To register, click here. To learn more about the Hilton Back Bay Hotel or to book your stay, click here. |
| "Why I Am Attending the Conference" |
Bunny Cappellucci |
"The 2009 Conference in St. Louis was my first time attending a National Conference, and at first I was apprehensive about going. But once I got there, I was amazed at how much I was able to learn, and I met so many wonderful new people. It was such an inspiration to talk with so many others who had shared the same feelings and experiences that I have with this disease. The Conference had such a warm, supportive environment, and I enjoyed it immensely. I learned just as much from all of my new friends as I did in the workshops. Plus this year's Conference is right in my hometown of Boston, so I am looking forward to bringing my family. See you all at the Conference!"
- Bunny Cappellucci of Peabody, Mass. |
| Sjögren's Syndrome |  What Is Sjögren's Syndrome?
Sjögren's (SHOW-grens) syndrome is an autoimmune disease - that is, a disease in which the immune system turns against the body's own cells. Normally, the immune system works to protect us from disease by destroying harmful invading organisms like viruses and bacteria. In the case of Sjögren's syndrome, disease-fighting cells attack various organs, most notably the glands that produce tears and saliva (the lacrimal and salivary glands). Damage to these glands causes a reduction in both the quantity and quality of their secretions. This results in symptoms that include dry eyes and dry mouth. In technical terms, the form of eye dryness associated with Sjögren's syndrome is called keratoconjunctivitis sicca, or KCS, and the symptoms of dry mouth are called xerostomia. Your doctor may use these terms when talking to you about Sjögren's syndrome. Read more. |
| Swollen Ankles and/or Swollen Feet Symptoms |  Swelling of the feet and ankles can occur as a result of conditions involving the local extremities as well as systemic conditions (diseases and conditions that affect the entire body). Localized processes such as injuries and infections may lead to a swollen foot and/or ankle only on the involved side. Swelling of the ankle on one side is often a result of sprains or strains. Sometimes diseases that affect the entire body, such as heart disease and kidney or liver failure, can result in excess fluid buildup (edema) that is often concentrated in the legs and feet, leading to swelling not only of the ankles but also of the feet and lower legs. Learn more. |
| IBS Community |
 The IBS [Irritable Bowel Syndrome] Self Help and Support Group, formed its charter in 1987 as a public education organization for those who suffer from IBS, those who are looking for support for someone who has IBS, medical professionals who want to learn more about IBS and to be responsible patient advocates on local, regional and federal levels. Learn more. |
|
|
|
|
|
2010 National
Gold Sponsor | |
|
|
2010 Platinum Conference Sponsor | |
|
|
|
2010 Bronze Conference Sponsors | |
|
|
| Donate Now! |
 |
|
|
